Roz Posted September 3, 2020 Author Share Posted September 3, 2020 For chemo drugs she mentioned trying the Texane and Ramucirab. Link to comment Share on other sites More sharing options...
Roz Posted September 3, 2020 Author Share Posted September 3, 2020 That would be Taxane..not Texane. Link to comment Share on other sites More sharing options...
Lisa Haines Posted September 3, 2020 Share Posted September 3, 2020 Ro, We've been in touch so I know this has not been easy, but I'm still very hopeful you can get a slot in the trial! I'm here for you at anytime...as you know! Tom, Do you have your results yet? Hoping for another NED Report! See you Friday!! Link to comment Share on other sites More sharing options...
LexieCat Posted September 4, 2020 Share Posted September 4, 2020 2 hours ago, Lisa Haines said: Tom, Do you have your results yet? Hoping for another NED Report! See you Friday!! Link to comment Share on other sites More sharing options...
Lanny Posted September 5, 2020 Share Posted September 5, 2020 Roz Sorry 2 hear your treatment didn’t work hope there is a plan B Link to comment Share on other sites More sharing options...
Lisa Haines Posted September 6, 2020 Share Posted September 6, 2020 On 9/3/2020 at 9:50 PM, LexieCat said: WOOHOO!! Love hearing this news ! NED and Stable are always very happy news for us ALL! Link to comment Share on other sites More sharing options...
Lin wilki Posted October 7, 2020 Share Posted October 7, 2020 Roe I don’t know if you’ve been doing the Friday zooms. I haven’t because I’ve been feeling too crappy and fatigued. So I have scans next week and either Kadcyla isn’t working or I just can’t tolerate it. I don’t really get a break from side effects I haven’t seen an update from you Did you get into the trial? Or are you on another chemo? Wishing the best for you Link to comment Share on other sites More sharing options...
catlady91 Posted October 8, 2020 Share Posted October 8, 2020 Sorry to hear that you didn't good news. What about radiotherapy or immunotherapy? Maybe you could get a second opinion from another doctor? Link to comment Share on other sites More sharing options...
Roz Posted October 12, 2020 Author Share Posted October 12, 2020 The chemo would be Docetaxel. We are now waiting until the end of November to see if I get into the trial. Thanks everyone! Ro Link to comment Share on other sites More sharing options...
LouT Posted October 12, 2020 Share Posted October 12, 2020 Roz, Fingers and toes crossed and prayers going out that you get into the trial. Lou Link to comment Share on other sites More sharing options...
GaryG Posted October 12, 2020 Share Posted October 12, 2020 Let's hope you get into the trial and get good results to boot. Link to comment Share on other sites More sharing options...
Lin wilki Posted October 12, 2020 Share Posted October 12, 2020 That’s still a wait! Hope you get in the trial! Good luck and keep us posted Link to comment Share on other sites More sharing options...
Lin wilki Posted October 13, 2020 Share Posted October 13, 2020 So I’m kind of in the same boat as you Roz. Scan today showed more growth so my HER2 target Kadcyla isn’t working. Breathless too so now I will get portable oxygen as needed. Have to get another needle biopsy and a pet scan. Depending on findings of biopsy - maybe a trial? Or another chemo. My oncologist said not a lot of options for me. She’s going to continue to look into it. Had Kadcyla treatment today since lymph nodes stable so let’s keep them that way! Link to comment Share on other sites More sharing options...
Roz Posted October 15, 2020 Author Share Posted October 15, 2020 Hi Lin Wiki, I'm sorry to hear that your treatment isn't working. I'm hoping your oncologist finds a trial for you. That's good about your lymph nodes! Hang in there! Seems like we just get used to waiting and waiting! Best, Ro Link to comment Share on other sites More sharing options...
Judy M2 Posted October 16, 2020 Share Posted October 16, 2020 I just saw that there is a promising new drug being developed for HER2 mutations. It's an infusion, not yet FDA approved. I'm including a pic because there's no way I can remember the name. Fingers crossed for you, @Lin wilki. Link to comment Share on other sites More sharing options...
Lin wilki Posted October 16, 2020 Share Posted October 16, 2020 Yep I mentioned that but got no response from onc. I will ask again but I think you need HER2 Exon 20. I don’t have the Exon 20. See if the biopsy turns up anything else Link to comment Share on other sites More sharing options...
Lin wilki Posted October 27, 2020 Share Posted October 27, 2020 Roz. Not going to makeZoom tonite. Please update. What did radiologist suggest? Link to comment Share on other sites More sharing options...
Lin wilki Posted October 27, 2020 Share Posted October 27, 2020 Goes to show how “out of it” I am! Today is only Tuesday! Still so exhausted but might try got Friday Zoom Link to comment Share on other sites More sharing options...
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