Roz Posted August 29, 2020 Share Posted August 29, 2020 Going for my 3 month scans tomorrow morning. I get results Monday afternoon. Hoping for the best! Ro Link to comment Share on other sites More sharing options...
Robert A. Posted August 29, 2020 Share Posted August 29, 2020 Wishing good news for you. My wife had her scan Thursday and we have a tele visit next Thursday. Link to comment Share on other sites More sharing options...
Rower Michelle Posted August 29, 2020 Share Posted August 29, 2020 Kickin up the prayer volume! Link to comment Share on other sites More sharing options...
DebM Posted August 29, 2020 Share Posted August 29, 2020 Wishing you great scan results!!! Link to comment Share on other sites More sharing options...
Sheryl E Posted August 29, 2020 Share Posted August 29, 2020 Good thoughts and prayers for your wife🙏🏻 Link to comment Share on other sites More sharing options...
Sheryl E Posted August 29, 2020 Share Posted August 29, 2020 Good luck Roz, keeping you in my thoughts and prayers. Link to comment Share on other sites More sharing options...
BridgetO Posted August 29, 2020 Share Posted August 29, 2020 Fingers and toes crossed for you! Bridget O Link to comment Share on other sites More sharing options...
Deb W Posted August 29, 2020 Share Posted August 29, 2020 Wishing you good results, Roz🙏 Link to comment Share on other sites More sharing options...
Tom Galli Posted August 29, 2020 Share Posted August 29, 2020 Roz, My scans on Monday so I’m also in the scanziety zone. Let’s both wish hard for NED so we can celebrate together. Stay the course. Tom Link to comment Share on other sites More sharing options...
GaryG Posted August 29, 2020 Share Posted August 29, 2020 Roz and Tom: Wishing you the best results. Link to comment Share on other sites More sharing options...
LexieCat Posted August 29, 2020 Share Posted August 29, 2020 Good vibes heading out to Ro, Tom, and Robert's wife! We'll all be thinking of you and waiting for good reports! Link to comment Share on other sites More sharing options...
Roz Posted August 29, 2020 Author Share Posted August 29, 2020 Thanks for all the good vibes everyone! Sending the same to Tom and Robert's wife. I haven't been NED since 2018 so it's not an expectation. However, it would be a great present to have it at least be stable from the last time (also this has never happened). Have a great weekend everyone! Best, Ro Link to comment Share on other sites More sharing options...
Sheryl E Posted August 29, 2020 Share Posted August 29, 2020 Tom, didn’t realize you also have scans coming up. Sending good thoughts, and prayers to you for clean scans!! Link to comment Share on other sites More sharing options...
Sabacat Posted August 29, 2020 Share Posted August 29, 2020 Best wishes and positive energy flowing toward Roz, Tom and Robert's wife!! Can't wait to read about all those great scans! 🤞🤞🤞 Susan Link to comment Share on other sites More sharing options...
Roz Posted September 1, 2020 Author Share Posted September 1, 2020 I met with my oncologist (virtually) and the scans show that the cancer has continued to grow in both lungs. It's also becoming more solid and the size of the multiple nodules is of concern. We are waiting until the end of September to see if I get a slot in the just activated clinical trial that I have been waiting for. However, she told me that she has no way of knowing who would get the slots. Apparently only 3 slots will open? She also thinks a Clinical trial is risky, without data on humans, and thinks I should consider different chemo drugs than I had in 2018. Since I have KRAS G12 D which to my knowledge hasn't been overly responsive to chemo, I'm extremely hesitant. So, that's where things stand at this point. Take care everyone, Ro Link to comment Share on other sites More sharing options...
LexieCat Posted September 1, 2020 Share Posted September 1, 2020 Aw, Ro, I know you weren't expecting NED, but that's gotta be disappointing. I'm sorry. I know nothing to speak of about clinical trials, but I hope you're able to get in. Sending a hug. Link to comment Share on other sites More sharing options...
Steff Posted September 1, 2020 Share Posted September 1, 2020 Ro- I'm sorry to hear about the not-so-good news. I am keeping my fingers crossed that something effective is figured out for you. Take Care, Steff Link to comment Share on other sites More sharing options...
Rower Michelle Posted September 2, 2020 Share Posted September 2, 2020 Oh Ro, so sorry. I know this is what you expected but it still sucks. You’ve been waiting for such a long time now. At least you look and feel good so that’s something to focus on. Hang tight. Hugs. Link to comment Share on other sites More sharing options...
Sheryl E Posted September 2, 2020 Share Posted September 2, 2020 Roz, I’m sure they will get a good plan in order for you!! Hang in there and don’t lose hope. They will find something good that going to attack the area and get you to NED! Sheryl xoxo Link to comment Share on other sites More sharing options...
BridgetO Posted September 2, 2020 Share Posted September 2, 2020 Hi Ro, I'm sorry you didn't get better results. Cancer sucks. Hold on and don't lose hope. Bridget O Link to comment Share on other sites More sharing options...
Roz Posted September 2, 2020 Author Share Posted September 2, 2020 Thanks everyone for your helpful responses and support. I'll keep you posted on what happens next. For now, I wait until the end of September. Take care, Ro Link to comment Share on other sites More sharing options...
Sabacat Posted September 2, 2020 Share Posted September 2, 2020 Sorry that I'm getting here late - just returned from first chemo (4 hour drive away) last night. So very sorry to hear your news and keeping everything crossed that you get a spot in the trial if that's the way you choose to go. Has she told you which chemo drugs she would choose if you switch? I know "not overly responsive" doesn't sound great, but it does leave the door open that it *could* work in your case. Have you had multiple opinions? As Michelle said, you're still feeling well, which is a big plus. HUGS! Susan Link to comment Share on other sites More sharing options...
Susan Cornett Posted September 3, 2020 Share Posted September 3, 2020 Ro - Sorry that it wasn't better news. Thinking about you - Link to comment Share on other sites More sharing options...
Lin wilki Posted September 3, 2020 Share Posted September 3, 2020 Roz. You have a great attitude and I believe that will carry you through this. If you can’t get into clinical trial I would try the chemo at least to halt the growth Prayers for you and keep us posted Link to comment Share on other sites More sharing options...
Deb W Posted September 3, 2020 Share Posted September 3, 2020 Just reading this now, Roz I'm so sorry this treatment didn't work. There are many new drugs and maybe a combo that will work for you. Thinking of you and 🙏 Deb Link to comment Share on other sites More sharing options...
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