JoWell Posted September 10, 2020 Share Posted September 10, 2020 Hi everyone: I'm Josephine. My mom has stage IV lung cancer, adenocarcinoma, with MPE. Not confirmed yet (pending final cytology report and genetic testing). But with the MPE, and they found a stain matches adenocarcinoma in the initial cytology report, we know what we're dealing with. I was devastated and shocked (my mom never smoked, no cancer in her family). I cried for days, then I thought I had to be strong and be my mom's advocate. Then I found this forum, I'm glad I found you. Tomorrow is our first consultation with her oncologist. This is the appointment where we'll learn what's in the final cytology report and the results of her genetic testing. We live in Los Angeles, our city and our state is dealing with wild fires. The doctor has a family emergency, our appointment was changed from in-person to a video appointment. My mom and I are disappointed, we were hoping to meet with the doctor, assess our chemistry etc. But we understand the situation. I assume tomorrow she'll tell us the treatment plan etc. The appointment is an hour long. If you guys have any advice (what to ask, etc.) please let me know. My mom is with Kaiser. She's been using Kaiser for a good 20+ years. Kaiser has been convenient and effective (my dad had a bypass surgery and a hip replacement surgery there, both were successful), but when I ask around about Kaiser treating cancer, I get somewhat negative feedback. Reading their online resources, it seems they don't offer immunotherapy. Are any of you familiar with Kaiser and can give me advice there? Advice on anything. Open enrollment is coming up. Shall I try to switch and get my mom treated at Cedar Sinai or City of Hope? Is switching to a new medical provider isn't viable as my mom now has "preexisting" conditions. So many questions to ask. Appreciate any information you guys can offer. I'll be a regular here. Talk to you soon. Josephine Quote Link to comment Share on other sites More sharing options...
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