Karen_L Posted October 21, 2022 Share Posted October 21, 2022 I had my 3-month MRI this past Monday and saw the onc. radiologist today. There's nothing new to report-- YAY! The ring around the lesion they zapped is fading & breaking up. The little spots they are watching are so small they have a hard time finding them, but the head of the gamma knife program and my radiologist think they're probably just blood vessels. My pulse ox was 99! The conversation with her is always interesting. She says I've had a superb response to chemo rads and immunotherapy. But, I said, I had barely 25% of the protocol treatment for immunotherapy (Pacific Study.) She said they aren't terribly clear about how much immunotherapy it really takes to jumpstart the immune system. And, she also said she suspected the brain had already been seeded prior to any treatment. But, I said, it's my understanding that EGFR mutated lung cancer doesn't respond to immunotherapy. No, she said, according to Pacific Study treatment protocols, EGFR-positive patients had no difference in response than patients with non-EGFR mutated lung cancers. Which doesn't give you a complete picture because she didn't put her statement in context of total results, but it sounds nice. She also took a look at my most recent CT scans of the lungs The only thing to see is ongoing scarring from treatment and pneumonitis, and that may disappear or maybe it won't. Pretty amazing, right? I am feeling very, very grateful. Tom Galli, EMandM, Izzy and 6 others 9 Quote Link to comment Share on other sites More sharing options...
Pstar Posted October 21, 2022 Share Posted October 21, 2022 That is really awesome Karen. So happy for you. Karen_L, LouT and Justin1970 3 Quote Link to comment Share on other sites More sharing options...
Tom Galli Posted October 21, 2022 Share Posted October 21, 2022 Karen, Wow! This is superb news. Of course, you might know I am a big fan of precision radiation and am so happy your treatment blasted those troubling mets. I don't think any of us has a complete picture on immunotherapy treatment, especially duration of treatment. I've heard there is an emerging standard that suggests 2 years of therapy, then screening. Missing when discussing duration is the fact that immunotherapy works and many late stage lung cancer survivors are leading productive lives because of this treatment. My radiation scarring cleared up and yours will likely clear also. Stay the course. Tom Karen_L, LouT, JuneK and 1 other 4 Quote Link to comment Share on other sites More sharing options...
JuneK Posted October 21, 2022 Share Posted October 21, 2022 So happy to hear your awesome news, Karen! Looks like we both had a good week! Karen_L, LouT and Justin1970 3 Quote Link to comment Share on other sites More sharing options...
LouT Posted October 21, 2022 Share Posted October 21, 2022 Karen, This is such good news. I'm thrilled to see these results. Also, thanks for the information regarding immunotherapy. I have a lot to learn in that area and every bit helps. Enjoy the good news and celebrate as you see fit. Lou Justin1970 and Karen_L 2 Quote Link to comment Share on other sites More sharing options...
catlady91 Posted October 21, 2022 Share Posted October 21, 2022 Fantastic news!! Really happy for you 😊 Justin1970 and Karen_L 2 Quote Link to comment Share on other sites More sharing options...
Judy M2 Posted October 22, 2022 Share Posted October 22, 2022 Great news, Karen! Like Tom, my radiation scarring also cleared up, and I hope yours does too. Justin1970, Karen_L and LouT 3 Quote Link to comment Share on other sites More sharing options...
Scruboak Posted October 23, 2022 Share Posted October 23, 2022 Woohoo! 🥰 Karen_L, LouT and Justin1970 3 Quote Link to comment Share on other sites More sharing options...
EMandM Posted October 23, 2022 Share Posted October 23, 2022 Fabulous news! 🎉 LouT, Karen_L and Justin1970 3 Quote Link to comment Share on other sites More sharing options...
BridgetO Posted October 26, 2022 Share Posted October 26, 2022 Woo Hoo! I love to hear great news like this. Justin1970, Karen_L and LouT 3 Quote Link to comment Share on other sites More sharing options...
Justin1970 Posted November 18, 2022 Share Posted November 18, 2022 Hi Karen So sorry I've only just seen this post I don't know how to see what people put up I seem to have to always search, this is great news I'm so pleased Take care Justin x LouT, Karen_L and Izzy 3 Quote Link to comment Share on other sites More sharing options...
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