stand4hope Posted April 7, 2004 Share Posted April 7, 2004 Hello, I’ve been lurking for a couple of weeks and thought it was time to just jump in and say hello. My husband is a VERY private person, about his life and his illness, so I also didn’t want to join until he knew I was doing it. He said he didn’t care, but he doesn’t want me use our real names (for now anyway). A diary of his illness is below. At this point, he is coping very well and so am I. The first 2 wks were tough, tears for me and anger for him, but after it soaked in and we quit crying and shouting, we were running the race to win The only way we found this disease was because he was having a continual severe headache. His family doc sent him to an ENT to check his sinuses (he’s always had sinus problems). The ENT wanted him to have surgery for a deviated septum (that’s a crooked nose bone ) – I won’t repeat what he told that ENT. He then asked our family doc to order and MRI of his head – and that’s when it all started. As you can see below, they found 8 brain metastatic tumors (“critters in my head” is what he calls them) and went hunting for the primary tumor which was found in his left lung. The headache immediately went away after 24 hrs on Decadron and he felt great. He was the most healthy and physically strong man I know – he was in better shape than our 27-yr-old son. Almost never, never sick. In 36 yrs., he’s probably missed less than 10 days work. After 3 weeks on Taxotere, I thought the chemo was going to kill him instead of the cancer. The onc said because of his great health they really hit him hard w/chemo & rad at same time to try to knock this dead, but chemo (especially Taxotere – which he had severe allergic reaction on 3rd dose) and radiation at the same time was just too much and it wiped him out for two months. He was down in bed with a fever and fatigue almost 24/7. He did recover from that and is doing much better now. He’s on a 3-month treatment break right now (2 mos. left) and we are really enjoying spring. I thoroughly enjoy all of your posts and am most impressed with your positive “can-do” attitudes. You are a great inspiration. My faith in God and His Son keep that horrible thing called “fear” from taking over (it still gets in occasionally, but it never takes over), and for me, the words “All things work together for good for those who love God . . .” (Rom. 8:28 ) have got to be the most comforting words ever written. It doesn’t say that all of our loved ones will be healed but, to me, it does say “Don’t worry – be happy!!!” Love to all, P.S. I do have one complaint about this forum – where’s the chart that tells all of us dummies what all these abbreviations mean? I finally figured out PCI and BAC (but it took a week), and I already new NSCLC, SCLC, WBR, WBRT, COPD, rad, and some others, but I recently saw NED, and you got me on that one. I guess tx is treatment?? dx is diagnosed?? (If that’s so, I sure can’t figure out where you got the “x” from). I thought NED might be NEwly Diagnosed, but that didn’t make sense since everybody was celebrating this thing called NED. I even tried Never Ever Die, but that didn’t work either. Quote Link to comment Share on other sites More sharing options...
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.