Barb1260
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Posts posted by Barb1260
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I had radiation 4 years ago. Thanks I didn’t know this. As far as the reports, this is a fairly new law in the US, a few years, they have to be released as soon as available. I would rather have them before I get to the doctors office so I have my questions lined up. The few times at the beginning when I didn’t have the results and it was bad news I just went blank and couldn’t think of what to ask.
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Then I got my 6 month CT results-new 0.3cm ground glass nodule that wasn’t there on previous CT. What exactly does ground glass mean? That term has never been used before in the 4+ years I’ve been dealing with this. Seeing the oncologist Monday so I don’t have to worry too long but this is worrisome to me right now
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Kelvin. I never felt better or worse through treatment, it was always tired about 4 days after then for a few days. Then I would feel normal until the next infusion.
Still waiting on test results tomorrow, which I’m nervous about because I always get them 2 days after. It’s been a week and nothing in my inbox. -
Michelle-me either!
- Rower Michelle, Justin1970 and Opal
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Another CT tomorrow to see if all is still good. 2 1/2 years since last Imfinzi.
hey Jersey girls, great to see you both still going strong. We are a tough breed.
hugs and kisses 😘- Justin1970, Opal, Rower Michelle and 1 other
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I’m so sorry for your loss. She was a great inspiration with her words of wisdom. Hugs and kisses.
- Opal, Justin1970 and LouT
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I’m sending my love and best wishes.
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Happy New Year to all as well. I’ve just been living and working and was football Grammy for a while there, not the pros my grandson. Getting ready to start spring practice, which starts February here in the south. No news good or bad health wise. 3 years since diagnosis, almost 2 years finished with treatment. Now on the 6 month schedule for scans, finally. Still have my port, scared to tempt fate by taking it out. I don’t know how I’ll get over that fear. And I get to see all the great ladies at the doc’s office every 2 months for flushes. Michelle sorry about your mom.
Hugs and kisses to all!!
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Good news. Hope the link works!
- LouT, Sillycat1957 and RonH
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Taking the family out to dinner to celebrate Tom.
- Tom Galli, GaryG, Sillycat1957 and 2 others
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Michelle I’m doing the retail therapy happy dance today
- Sillycat1957, LouT and Tom Galli
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PET SCAN-impression - no hyper metabolic activity in neck , chest, abdomen or pelvis nor skeletal. What does this note mean-The region of pulmonary consolidation upper right lobe minimal SUV of 2.0. This is the location of the original tumor. So I guess it’s not dead? It’s confusing that it says both. It also doesn’t give a measurement
- LouT, Tom Galli, Sillycat1957 and 1 other
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Hey Roseann. I’ve had nodules mentioned on a scan, not on the next and back on the 3rd. Not sure how they pick and choose what’s mentioned. I think they should mention every little thing. Thanks for the vibes. Still waiting....
- LouT and Sillycat1957
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No results yet. The waiting is the hardest part..
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Ok so I’m freaking out. I fought for a PET scan and won, now it’s scanxiety for tomorrow and almost sorry for the win. This is 6 months after treatment was completed and I’m not ready for a bad result. The what if game is playing in my head.
- Tom Galli, LouT and Sillycat1957
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Roseann-I was told you stage the same or higher you can never go backwards but maybe all the docs do their own thing. Have a good night
- Tom Galli and Sillycat1957
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Was just trying to live my life……..
in MEMBER UPDATES
Posted
Hi Karen-that’s exactly what the oncologist told me today. Says I will always have “busy” lungs from the radiation. So we are just watching and doing another CT in 3 months. She said she is not worried about this at all. So if she’s not worried I’m not wasting my time being worried.