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Tann, I am so sorry for your latest news, but, please remain positive, things will look up.......Prayers coming your way

Thanks to all for their responses. I know I am worrying way more than I need too, But hey, we all know with this it is always something.....

What are some of the unusual symptoms of brain mets that some of you have experience? Thanks.....

Im so sorry that things aren;t well for you now, I will certainly keep you and yours in my prayers, I didn't know that a PET scan did not show brain mets, I am so surprised , I have never been told that. I have brain ct.s I guess that would show as well as a MRI? Good thing we have each other to learn from...... Prayers and Peace

So sorry . prayers and stregnth to you and yours....may your family find peace.

Saddened by this news, hopefully positive change can happen. Peace for your family, take care of each other.

Welcome, I am so impressed the you want to be a part of our group. In this fight there are" no outsiders", I feel your part is a blessing to most of us.. Thank you for your time and interst...

Joe, It is so nice to have someone that has clinical experience with this to help answer the question, and the story was AMAZING, and gives great HOPE to many... Thanks for posting..... Prayers for us all...

Prayers to you and your family...

Your father is an remarkable man,who has bravely fought, with an even more remarkable daughter by his side.... prayers to you and yours...

Back home from DC, after receiving the third of four vacines.... Still have shrinkage noted on CT scans. Still cautious with good news, always like it when its confirmed again on the preceding scans and tests.. Awful isn't it...thats what cancer does to us I guess... Will be going back in October for the last one, and then alot of tests for several week s later and again in November.. But. I OK with that, just praying that it all remains good news.. No new side effects, but this one did make me a little more tired than usual..... but that could be travel related too. thanks for all the well wishes.. Until next time, prayer and good wishes for us all..

Saddened by your loss.... peace to you and your family.... Prayers for us all.

Great news, Geoff, long overdue.... Prayers for us all...

Thanks, geoff, it is encouraging to see that list.>>>>> Jane, (I am also originally from the "Show me State") we have somewhat the same diagnosis, I have been relunctant to ask this question, because I so strongly believe in POSITVE thoughts, hope, and keeping ones chin up, but as I read all the other posts, surgery was always in the bio. of the long term survivors. Thanks to everyone who has posted their responses, I personally printed the survivors list, that Goeff linked us to, I plan on being on that list, also.. Prayers for us all......If there are others, post a reply and let us know....

I am also stage 111b and did so need that boast of encouragement, I will be coming up on my 18 mths since Dx. I am stable and very grateful.....but still have lymph nodes that have disease...but stable...Thanks for posting

I think I was probably at my lowest during my treatment too. And its justified. You will feel better, with all this down the road. I still lose it occasionally, but I only allow brief intreludes with despair. CANCER is waiting for weaknesses. You are doing fine, you will do better, although nothing will go back to what it was, whos to say it won't be even better... than it was... it is hard.. we all know it... don't be hard on yourself

Thank-you so much for all your help, I have copied many of your posts for my personal information. Thanks again for all your help.

Just a quick note to let you know how much I personally appreciate your posted data. I have printed so much information that you have posted .....and I want to THANK-YOU for the time you spend helping each of us....

Tina, Such great over due news, I am sure this will be the answer. Have a safe trip I will be thinking positive thoughts for you guys... Prayers for us all.....

I have a very difficult question to ask,..are there any survivors, NED members, who have not had surgery, only standard chemo, radiation and possibly clinical drugs.......Thanks....

Just a quick note, to let you know I am praying for you today... Its Monday and I just hope all is well

I also take VIOXX, and agree, whats next.... However, I thought it is in the aspirin, ibupropen grouping.. Maybe I am wrong here, but can that maybe be a replacement if you are worried? Taking say, ibupropen, instead. I do not take it everyday now, because it upsets my stomach sometimes, but I do take it off and on. Thanks for the heads up... I plan on asking since I heard it does help keep tumors from growing..

We, everyone of us on this board have had every emotions you are going through and understand - believe me.. First, fear is natural and expected, go to the DR. now... Only they can tell you what it is... I will be hopeful it is nothing at all to worry about. Let us know..

hello,.... and i am so sorry you are even at a place, that you have to pause with us here, I pray you are only, in pause, until better news comes... you are just too young. Please be positive and know I will be hopeful and praying for the very best news, for you..

Carleen, Hoping you both have a safe trip that results in the very best of news. Something brought you to the clinical trial, trust with all your being... that it can be the answer... Prayers for us, all....