Hi everyone,
I haven't given you an update on Mike in a while. I'm sorry, I somehow have a hard time talking about us, but I do want to share what is going on.
Mike has been on CPT-11 since October 10th. That was two treatments at 3 weeks apart. They were very hard on him. He was extremely fatigued and very nauseated. The first 3 weeks were rough and the last 3 have been rougher. He is having a lot of trouble with belching and stomach acid etc. His appetite just isn't returning this time. He is eating , but this "bubbly burps" or air coming up is really a problem with him. Anyhow, we had an appointment with the onc today and Mike told him "no more of this one, but I'm not giving up." The game plan now is to scan in two weeks and see if there were any results. A week after that, we will meet with the onc for the results. His plan is to put him on etopiside pills next. We are running out of options here. There are only a couple left and the etopiside is one of them. He said he can do pills or iv, but with the pills you can stop quicker if you can't tolerate it. If by chance the scans show the CPT-11 was working, we may opt to revisit that in a lower dose. So, summary, is 2 weeks til scans and results and new plan in 3. In the meantime, I'm hoping to get him eating better and regaining some strength. We would appreciate your prayers to help us along. I hope all of you know how much we care for you and we keep you in our prayers.
Love,
Sue