DeanCarl Posted April 28, 2005 Share Posted April 28, 2005 Lots of new folks (unfortunately) since last I posted. I haven't updated lately because there hasn't been anything to update ... until last week. I've been on O2 on a prn basis almost since the start of my dx. Realy haven't had to use it much at all. But Thursday around 2pm I suddenly started haveing a lot of trouble exhaling. I mean a LOT of trouble. Felt like I'd just finished a mile run and all I had done was walk to the bathroom and back. So I used my combi-vent inhaler and got on the O2 real quick. In a few moments I'd gotten my breath back. Took off the O2 and within a couple minutes was gasping for air again. The upshot of all that is I'm now on O2 24/7 and use combi-vent from a nebulizer every 6hrs. Oh well, the 15min I spend on the nebulizer just gives me that much more time to watch our silly birds who've decided to come back after all that rain. I FINALLY qualified for an In Home Supportive Services worker. She comes in once a week for about 7 hours. I also got a regular wheel chair that we can fold up and put in the back of her car so it looks like I'll be getting out a bit more. That will be a nice change of pace for me. End of my update. To Bet and cathyr: I read the news of your recent turn of events with much sadness. My hope for you both is that your experience with hospice will be as good as mine has been. Bet, Cathy, the path we've been given to walk was, of course, not one of our choosing. But walk it we will. And, by chance or design, we don't have to walk it alone. I've been on that path a little longer than either of you which in no way makes me any kind of expert on the subject. I've just had a little more time to stumble over the rocks and logs that seem to be strewn all over the place. And maybe, if you wish, I can point out a few of them and save you both a twisted ankle or bruised shin. Feel free, either of you, to PM me for my phone number if you think it might be of help. In the meantime remember to take things one day at a time and, if at all possible, to find a little joy in each day. Prayers for you both. Dean Quote Link to comment Share on other sites More sharing options...
SDianneB Posted April 28, 2005 Share Posted April 28, 2005 Wow. You made my day! Do you realize what an uplift it is just to see your name on a post? Then reading your marvelous words is an extra bonus on top of that. I'm so glad you are hanging in there. You are a real role model for the rest of us. Take care. Di Quote Link to comment Share on other sites More sharing options...
Cindy RN Posted April 28, 2005 Share Posted April 28, 2005 SO glad to see your update, even tho it means you have the o2 on all the time. At least it does help. I remember when you got your scooter. I would of thought you had a w/c. Oh well glad you got it and can get out again. I was hoping to go to Fl. this summer for some of the attractions. I checked into all the places and they have scooters to rent. I know I would need one to get around those places. I am glad to see your pic up here again. Stay in touch. Cindy Quote Link to comment Share on other sites More sharing options...
daggiesmom Posted April 28, 2005 Share Posted April 28, 2005 ((())) Good to hear from you! I was worried Joanie Quote Link to comment Share on other sites More sharing options...
Remembering Dave Posted April 28, 2005 Share Posted April 28, 2005 God Bless you, Dean. you are awesome. Keep on keepin' on. Love, Karen Quote Link to comment Share on other sites More sharing options...
Lisa O Posted April 28, 2005 Share Posted April 28, 2005 It's always great to hear from you Dean. Quote Link to comment Share on other sites More sharing options...
Patkid Posted April 28, 2005 Share Posted April 28, 2005 Hello!! Add our admiration and love to your wealth. Pat and Brian Quote Link to comment Share on other sites More sharing options...
BeckyCW Posted April 28, 2005 Share Posted April 28, 2005 Dean, I'm not able to be "here" much these days, but checked in for a minute this morning and it made my day to see your post. I have learned a lot about life from you. I'm sorry to hear about your breathing problems, and will keep you in my prayers, as always. BeckyCW Quote Link to comment Share on other sites More sharing options...
niececola Posted April 28, 2005 Share Posted April 28, 2005 Hi Dean, Always wonderful to see you posting... denise Quote Link to comment Share on other sites More sharing options...
Treebywater Posted April 28, 2005 Share Posted April 28, 2005 I'm glad you posted too, Dean. You have such a unique perspective. Quote Link to comment Share on other sites More sharing options...
Kasey Posted April 28, 2005 Share Posted April 28, 2005 I am relatively new, but not so new that I haven't seen many of your posts. My gosh - there are just so many heroes on this board it is unbelievable! You are awesome and an inspiration. May you continue to offer hope to those of us following behind you. Kasey Quote Link to comment Share on other sites More sharing options...
karen335 Posted April 28, 2005 Share Posted April 28, 2005 Dean, Thanks for posting, it's always nice to read your posts. Are you in the same place? It it so peaceful and quiet there. Lot's of plants and flowers... Sorry to read your on O2 - 24/7. Please keep us posted. God Bless and prayers, Karen Quote Link to comment Share on other sites More sharing options...
bbays Posted April 28, 2005 Share Posted April 28, 2005 So glad to hear from you. You are always such an inspiration. Barb Quote Link to comment Share on other sites More sharing options...
Addie Posted April 28, 2005 Share Posted April 28, 2005 Dean... Just makes me smile to "hear your voice" here! Glad you're still hanging in there...even if it means a little extra help with the breathing. Hugs to you and Gay.... Quote Link to comment Share on other sites More sharing options...
Don Wood Posted April 28, 2005 Share Posted April 28, 2005 Glad to see your post, Dean. Best personal regards. Don Quote Link to comment Share on other sites More sharing options...
TAnn Posted April 28, 2005 Share Posted April 28, 2005 Dean, Good to hear from you. I'm glad you are feeling better with the O2. You came here to give hope and encouragement to Bet and CathyR, but once again you have brightened the day for all of us. One day at a time...... TAnn Quote Link to comment Share on other sites More sharing options...
annjael Posted April 28, 2005 Share Posted April 28, 2005 Dean,,,so glad you posted. What an inspiration to all of us you are! I too have learned alot about life and challenges from you. Cheers to the o2. Peace, Annjael Quote Link to comment Share on other sites More sharing options...
J.C. Posted April 28, 2005 Share Posted April 28, 2005 Dean, I am sure you removed a lot of those rocks and logs that were on the path and made the trip much easier for those that may have to follow. Thank you. Always happy to see a post from you. God bless. J.C. Quote Link to comment Share on other sites More sharing options...
Andrea B. Posted April 28, 2005 Share Posted April 28, 2005 Great to see your post, Dean. And as usual you are an inspiration to so many. Blessings to you. Quote Link to comment Share on other sites More sharing options...
cathyr Posted April 29, 2005 Share Posted April 29, 2005 Gosh, How special can you make a person feel? Love you Dean Carl, CathyR Quote Link to comment Share on other sites More sharing options...
shineladysue Posted April 29, 2005 Share Posted April 29, 2005 Dean, Reading your posts is so inspirational. Your words are always a comfort. After I read your words, I feel better able to put things into perspective. May you continue to "find a little joy in each day" for a long time to come. God Bless you!!! Sue Quote Link to comment Share on other sites More sharing options...
Nancy B Posted April 29, 2005 Share Posted April 29, 2005 Dean Carl, so glad to see you post - I just love reading everything you write. You really should write a book. Take care and hope you can get out more with your wheel chair. Thinking of and praying for you and Gay always. Hugs, Nancy B Quote Link to comment Share on other sites More sharing options...
mayos Posted April 29, 2005 Share Posted April 29, 2005 Hello there Dean...It's great to hear your voice again. I'm sure missing you around here. Please keep thinking and writing and sharing and helping. Quote Link to comment Share on other sites More sharing options...
Maryanne Posted April 29, 2005 Share Posted April 29, 2005 Well hello Dean, Good to hear from you. So glad the O2 is helping you. Please take care. Maryanne Quote Link to comment Share on other sites More sharing options...
K and Kids Posted April 29, 2005 Share Posted April 29, 2005 Great to see your post Dean. I can't tell you what your words do to my soul ... my words will not express this well enough. God bless you and your wife and keep you. Hope you are able to get out with that new wheel chair and have some fun, Dean style. Lots of love to you. Quote Link to comment Share on other sites More sharing options...
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