Linda661 Posted June 21, 2006 Author Share Posted June 21, 2006 Oh, it's hard to stay away alright: yesterday I got innundated with calls from mom for a period of time begging and pleading with me to take her on a vacation (how I'd promised to pick her up then and go.....didn't happen)....she started to ask me where grandma was (um, grandma passed lots of years ago) and she figured oh, that's why I wasn't coming....on and on it went. All I could think to say to her was that she was too sick for me to take her anywhere -- she said what did I mean? All she had was a sore throat and a temperature of 100 today -- she doesn't remember having LC at this particular time. She doesn't remember her O2 either: she's been caught a couple of times over the last few days without it or having it on improperly -- plus, she's been tying her O2 cord in knots, dropping/cutting off her own litre flow at times. What hurt the worst is when, at one point, she said to me she was gonna' lose her will to live. She was calling me back every 5 minutes or so for a bit there and doesn't remember talking to me or when I was there last. Apparently I'm agitating her whether I am there or not right now! I did call the nursing home to let them know that if mom exhibits escalating out of control agitated behavior that seems to relate to me and they believe I can help by being there, to let me know and I will be there in a flash. While the confusion remains, the behaviors seem to come and go in bursts. In the meantime, I'm trying to continue with the rest of her affairs as usual: I have no clue how I am gonna' manage only going in 1-2 times a week with this (even though that's what I really need to actually get on top of everything I have to manage around here -- things are soooooo behind; organized chaos, but behind) It is really hard for me to know exactly what to do right now. I just feel like I am abandoning them by not jumping in reaction to this, yet there's nothing I can really do about it. I did talk to the hospice social worker as well and he seems to think I can reason with her on that stuff: I just don't see how. I have to wait a bit for hospice team to have enough experience with mom before they can really advise me well, I think -- having just signed on on Monday, it's gonna' take them a little bit to really get to know the history and the situation. What a mess. Linda Link to comment Share on other sites More sharing options...
Don M Posted June 22, 2006 Share Posted June 22, 2006 Linda, I am really sorry it is like this. If only your mom's confusion would subside. Sigh... you both have my prayers. Don M Link to comment Share on other sites More sharing options...
dadstimeon Posted June 25, 2006 Share Posted June 25, 2006 I'm very sorry to hear about your mom Linda. Prayers for the both of you. Rich Link to comment Share on other sites More sharing options...
carolhg Posted June 25, 2006 Share Posted June 25, 2006 Prayers for your mother and prayers for you also. It is obvious that you also are going through a very difficult time. Link to comment Share on other sites More sharing options...
Carleen Posted June 25, 2006 Share Posted June 25, 2006 Linda, I don't have much to add. I am so sorry to hear about your mom. Please know I am thinking of you and praying for your mom and for you. BIG HUG!!! Link to comment Share on other sites More sharing options...
kamataca Posted June 27, 2006 Share Posted June 27, 2006 Linda, I can't imagine how all of this is for you. Please remember to take care of yourself, and let others help you. Prayers for you! Kelly Link to comment Share on other sites More sharing options...
EastCoastLadi Posted June 27, 2006 Share Posted June 27, 2006 Linda, Letting you know I'm still thinking about you and your mom....sending my prayers Grace Link to comment Share on other sites More sharing options...
Eni123 Posted July 3, 2006 Share Posted July 3, 2006 Linda, I have seen this with my mother before and it's very difficult to take in. I know you probably feel scared, alone, helpless, and maybe even somewhat numb. Just know that you have all of our support. Do the best you can right now. Link to comment Share on other sites More sharing options...
Maryanne Posted July 3, 2006 Share Posted July 3, 2006 Hi Linda, So sorry I took so long to post to you. I missed your post for some reason. Please know that Iam saddened by the turn of events for your mom. This has to be so hard for you to see her like this with all the confusion she is going through. Please know that Iam thinking of you and hope that your mom will be at peace soon. She does not seem to be in pain so at least that is good. Maryanne Link to comment Share on other sites More sharing options...
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