Welthy Posted November 28, 2006 Author Share Posted November 28, 2006 Thanks so much from the bottom of my heart for all of your prayers, encouragement and support. I don't know what I'd do without these boards. Okay, so we saw the onc. today. Tony is slated to begin weekly Navelbine for 8 weeks & then scan again. The idea is to jump on this right away because he is not ready, due to pleural effusion, to get on the Alimta bandwagon. I saw the PET scans and, while they didn't look good, they certainly didn't look even a 1/10 of what he had when first diagnosed. Looks to be a countable amout of tumors/masses of about 16. Zometa will be given also for the bone things. I guess he is trying to stabilize things so Tony can have the pleurodesis done on both lungs. He did throw Tony a curve ball with the "you have to get a port to have Navelbine". Tony has steadfastly refused a port and calls it a four-letter word. (This, of course, is the same guy who wouldn't do pleurodesis either mind you...) So tomorrow is the consult and he'll get a pretty new port on Wednesday and begin chemo again Wed. or Thurs. Couple of things worry me a bit. No brain scan right now and no radiation for the bone mets. They don't hurt, so Doc says no radiation necessary. This means that the chemo will systemically treat everything. I guess that's the hope anyway. He says Tony has no symptoms of brain mets, but I argued to no avail with him about a scan right now. I guess I shouldn't borrow trouble. Well that's it for us now. Hoping that Navelbine will stave off the beast so we can move into pleurodesis land and get ready for whatever is slung at us next. Thanks for listening. Welthy Quote Link to comment Share on other sites More sharing options...
tkelley Posted November 28, 2006 Share Posted November 28, 2006 Prayers that the new treatment works. Quote Link to comment Share on other sites More sharing options...
dihen Posted November 28, 2006 Share Posted November 28, 2006 Thank you for the update, hope and prayers being sent you way that Navelbine will be the answer to get Tony to the next step! Quote Link to comment Share on other sites More sharing options...
marym Posted November 28, 2006 Share Posted November 28, 2006 Best wishes with the new course of treatment. I would raise the issue of a brain scan again in say 3 months or so. I've had 2 radiosurgeries and now they just discovered new mets. I have never shown any symptoms. Best of luck. Mary Quote Link to comment Share on other sites More sharing options...
enyaw061032 Posted November 28, 2006 Share Posted November 28, 2006 I am so sorry to hear about Tony's scans and the treatment not working. I think it's good that the onc wants to try another treatment, and pray it works! This savage beast must be Killed or at least put back in its cage where it belongs! My deep and abiding prayers are sent to you now. I know the agony and despair of these scans. Barb Quote Link to comment Share on other sites More sharing options...
Ry Posted November 28, 2006 Share Posted November 28, 2006 I hope the Navelbine gets things in check for Tony. He will be happy he has a port once it is done-- make sure you get a prescription for the cream to numb the access site. Quote Link to comment Share on other sites More sharing options...
ma's kid Posted November 28, 2006 Share Posted November 28, 2006 I so hope the new gameplan works, Welthy. Please know you and Tony are in my prayers..I know how difficult this is. Hugging you tight Libby Quote Link to comment Share on other sites More sharing options...
Andrea Posted November 28, 2006 Share Posted November 28, 2006 I hope the new treatment works and the port is not as bad as he expects. My mom ended up loving hers, it made access so much easier. Quote Link to comment Share on other sites More sharing options...
trish2418 Posted November 28, 2006 Share Posted November 28, 2006 Praying that the new treatment plan works well for Tony. Good luck to you guys. Trish Quote Link to comment Share on other sites More sharing options...
Don Wood Posted November 28, 2006 Share Posted November 28, 2006 Thanks for the update on Tony, Welthy. I think once Tony gets the port, he will like it. Lucie had hers for 3 years and it saved a lot of pain finding veins. Lucie had good results with Navelbine, so I hope Tony does also. Don Quote Link to comment Share on other sites More sharing options...
Nick C Posted November 29, 2006 Share Posted November 29, 2006 Hang in there. Praying good things for you. Hope the treatments hit every spot it needs to. Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted November 29, 2006 Share Posted November 29, 2006 Has Tony had blurred vision/double vision. I know your reponse is "No". My reply is "are you sure?" Then your response is... "oh yeah. There were those times when he was driving. Scared the dickens out of us!" Then I say, "Sounds like your doctor should hear about this." Then you say, "You're right, Cindi o'h. What would I do without you. I will tell the doctor about this. Also, I may mention the dizzy spells he has been having. It could be nothing, but we should ask the doctor." Cindi o'h Quote Link to comment Share on other sites More sharing options...
Maryanne Posted November 29, 2006 Share Posted November 29, 2006 Thank you for the update and that it does not seem as bad as you anticipated. Sending prayers for his next chemo to work wonders. Keep us posted and you know we are here to help you through this. I am so sorry for what you are both going through. Poor guy has really been through the ringer. Maryanne Quote Link to comment Share on other sites More sharing options...
Welthy Posted November 30, 2006 Author Share Posted November 30, 2006 EVERYONE, Thanks again -- I am soooo glad that I can come to these boards and get info without having to spend the time explaining the in's and out's. You have all been there, done that. (Cindi O'h -- you are just tooooo funny. The thought of saying something like that never even crossed my mind.) The Doc is planning to scan in eight weeks -- brain too. I think he is just trying to get the whole she-bang under some type of control before we travel down radiation road -- or maybe not. But to be honest -- I really don't know what the heck to think because this whole bone & maybe brain mets is out of my area of "expertise". (I'm not a real Doctor, I only play one at home.) We've never been out of the lung before. What exactly is done for brain mets and bone mets?? Anyone? By the way, Tony is sporting a new port tonight. We've named it "Mr. Four-letter Word". Welthy Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted November 30, 2006 Share Posted November 30, 2006 Prayers Wealthy. Quote Link to comment Share on other sites More sharing options...
carolhg Posted November 30, 2006 Share Posted November 30, 2006 Praying for better results with the upcoming chemo. Carol Quote Link to comment Share on other sites More sharing options...
Don Wood Posted November 30, 2006 Share Posted November 30, 2006 Four Letter Word? "RATS", right? Quote Link to comment Share on other sites More sharing options...
Welthy Posted November 30, 2006 Author Share Posted November 30, 2006 Don, You're so funny. Actually Tony always said the word "port" was a four-letter word he didn't want used around him, so we just gave the port itself the name "Mr. Four-letter Word." Welthy Quote Link to comment Share on other sites More sharing options...
Connie B Posted November 30, 2006 Share Posted November 30, 2006 I just have the need to offer tons of warm and gentle hugs and prayers that all will work with this new game plan. Tony's not out of options just yet, you still have a closet full to go through if needed. That's a GOOD THINGS! (((((((((((((TONY & WELTHY)))))))))))))) Quote Link to comment Share on other sites More sharing options...
sharonjo Posted November 30, 2006 Share Posted November 30, 2006 Welthy, Sounds like the docs have a good plan in place for Tony. I'm praying he'll get better results this time around. Hang in there and stay strong! God Bless, Sharon Quote Link to comment Share on other sites More sharing options...
Jyoung20 Posted November 30, 2006 Share Posted November 30, 2006 Praying for your family. I'm sorry to hear this. GOD BLESS! Jamie Quote Link to comment Share on other sites More sharing options...
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