Vesuri 0 Report post Posted October 5, 2007 Hi all Found this website with the help of Ernie Puckett and thought I'd join in... I'm actually from Finland but found this forum very positive and in good spirit! I'm 31 years old telecommunication engineer, non-smoker, doing mountainbiking, running, etc. and I've been diagnosed with non-small cell cancer and there are also some liver metastasis, so the starting point is quite serious. I just came from hospital today from 2nd biopsy because the 1st sample wasn't good enough for the precise classification, so I'll be waiting for that information next week and treatments start after that. I have very positive attitude, well of course the situation is quite new, but I'm very determined about fighting this disease and all the stories I've read here have really showed me the strength of human nature!!!! Seems that new treatments are being developed all the time for this cancer. -Jussi Share this post Link to post Share on other sites
Muriel 1 Report post Posted October 5, 2007 Welcome, Jussi. Sorry you have reason to be here, but glad that you found us. I think you'll find lots of support here. When you get a more complete diagnosis, post that information and your treatment plan in your profile. Do let us know what you learn next week. Muriel Share this post Link to post Share on other sites
Kasey 0 Report post Posted October 5, 2007 Welcome Jussi!! You have already met our Ernie??? Then you know how much of an ispiration he is to all of us. I'm glad you have found us in cyberspace so you can receive the support , information, and compassion from the many wonderful folks here. Get all you info gathered. Come and post it. And let us accompany you on this rollercoaster ride we here all know as lung cancer. I'm certain in no time flat, you will be meeting many of the young posters ~ 20's and 30's. Boy, that is pretty sad to actually say and type that. Just know that there are many surviving here, Jussi. So keep your hopes alive (and listen to Ernie) and spirits up. Kasey Share this post Link to post Share on other sites
Ry 0 Report post Posted October 5, 2007 Welcome Jussi~ I think you are our first member from Finland. I know the beginning of this journey is pretty terrifying but we'll help however we can. Rochelle Share this post Link to post Share on other sites
recce101 0 Report post Posted October 5, 2007 Hi, Jussi, and a warm welcome to the LCSC, although neither you nor I can be truly "glad" you're here. We have an increasing number of members with a personal history much like yours -- active, health-conscious men and women in their 20s and 30s who had never smoked and who suddenly found themselves diagnosed with advanced lung cancer. But, like most of them, your otherwise good health and positive attitude will serve you well in the months and years ahead. You mentioned Ernie, and I've got to toot my own horn just a little. I'm the one who introduced Ernie to the LCSC! He's been in this cancer thing somewhat longer than I have, and we met on another site. After a day or two I discovered the LCSC through Google, found it far superior to the other site, and talked him into coming on board. We both have aviation backgrounds, but I'm definitely not a marathon runner! Aloha, Ned Share this post Link to post Share on other sites
Jyoung20 0 Report post Posted October 5, 2007 Welcome Jussi!! You have found a place of hope. There are many survivors here. People thriving and living with lung cancer at every stage. Never give up!! God Bless You as you begin this journey!! Jamie Share this post Link to post Share on other sites
Donna G 234 Report post Posted October 5, 2007 Welcome Jussi. Let us know what plan of treatment they put in place for you. Donna G Share this post Link to post Share on other sites
wendyr 0 Report post Posted October 6, 2007 Welcome Jussi, let us know how we can help you wendyr Share this post Link to post Share on other sites
Nushka 0 Report post Posted October 6, 2007 Welcome Jussi, I think you will find much support here and a great deal of knowledge. I am sorry you had the need to find us but glad you did. There are so many wonderful treatments out there now and new ones coming on each week. Let us know how you are doing and what is going on. Nina Share this post Link to post Share on other sites
dadstimeon 3 Report post Posted October 6, 2007 Welcome Jussi-- Glad you found us. Rich Share this post Link to post Share on other sites
Vesuri 0 Report post Posted October 6, 2007 Wow.... I want to t h a n k y o u all for the replies! This is amazing... People I've never met, and I can feel the positive and supporting atmosphere! I wish a relaxing weekend to all of you! Lets keep in touch! -Jussi Share this post Link to post Share on other sites
Don M 0 Report post Posted October 6, 2007 Welcome Jussi Don M Share this post Link to post Share on other sites
trish2418 0 Report post Posted October 6, 2007 Welcome, Jussi. So sorry you had the need to find us. You'll find lots of knowledge and encouragement here. Keep us posted as treatment progresses. Trish Share this post Link to post Share on other sites
KatieB 266 Report post Posted October 6, 2007 Welcome Jussi! I'm so sorry for your diagnosis, but I'm glad you found us. Ernie is certainly awesome!! The members here are wonderful source of support and encouragement. You don't have to go thru this alone. Please keep us posted on you and your treatment plan. I hope it to be a complete success! Sending lots of positive thoughts your way! Share this post Link to post Share on other sites
ernrol 0 Report post Posted October 9, 2007 Jussi, I am glad to see that you were able to get on the site. I was out of town for the weekend and just got back. This is the best site for suport. Stay positive, Ernie Share this post Link to post Share on other sites
barbara5452 0 Report post Posted October 9, 2007 Welcome Jussi, don't forget to start your profile and keep it updated.. Share this post Link to post Share on other sites
Vesuri 0 Report post Posted October 10, 2007 Hi I updated the profile a bit, I hope it can be seen ok. That's about it so far. So now it's official. Non-small cell, adenocarcinoma type of tumor. I don't know anything about the size or rating etc. But the planned treatments are scheduled for next week, so I get more information then. I'm currently at hospital because they tried this "glueing" of the lung (pleural?) surfaces. This should prevent the fluid coming into the lung. I'm going home tomorrow I believe. I'm quite anxious to get the treatments started, so I can focus on crushing this disease. All the best! Jussi Share this post Link to post Share on other sites
Vesuri 0 Report post Posted October 14, 2007 Hi good people! Does anybody know if fever prevents starting chemotherapy? I've had 4 days of fever after the pleural treatment as I should have, since the body interprets the operation as a infection and fever goes up, but seems that it should have gone down already? Well, I call tomorrow to the lung clinic and see what they have to say. Another thing that came into mind is that, has anybody had weight loss since the diagnosis? I guess that goes with the territory as well? All the best! Jussi Share this post Link to post Share on other sites
Dollfinn 0 Report post Posted October 14, 2007 Jussi~ I'm so glad you found us, other sites are for quitters! Fever can be a side effect from your fluid removal, "glue". Dehydraton elevates the body temp. If infact the procedure (Gluing) is an invasive procedure, you will want your body to heal that, prior to chemo "usually".Ive been known to become a little unglued during the past few months, this is a great group of people that help me keep it together. 1st post Tx scan Wens. Mary Share this post Link to post Share on other sites
sharonjo 0 Report post Posted October 14, 2007 Hi Jussi, Welcome! I just wanted to tell you that at my diagnosis almost 2 years ago, I also had a large pleural effusion (drained 1.5 liters) and liver mets. I am currently on my third line of chemotherapy and my tumors are shrinking. I have been doing quite well and am feeling pretty darn good lately! Your positive attitude will serve you well on your cancer journey. We are here for you. God Bless, Sharon Share this post Link to post Share on other sites
fight 0 Report post Posted October 15, 2007 Jussi, Welcome! You will find so much support here. I'm sorry I don't know anything about the fever question you had but after diagnosis I lost 5lbs. right off the bat. I don't think it was from the cancer but from the sheer stess of everything that was going on at the time. I have since remained at the same weight for over a year. Try to eat as much as healthy as you can. I find that 6 small meals a day work the best. Take Care, Rachel Share this post Link to post Share on other sites
Vesuri 0 Report post Posted October 16, 2007 Hi good people! So, just finished first visit to the cancer clinic. They have very nice premises, everything new. The whole building has been open for just three weeks. Heard some interesting details; tumor in the right lung is about 6 cm x 6 cm. There are several about 3 cm mets in upper part of the liver. Area between lungs is clear. And yet I'm feeling the same as I've been for the last couple of years. Very weird disease..... We talked about treatment shortly (they call back to the clinic for this during this week) and proposed one clinical trial. It would include normal therapy, that would be gemcitabine (Gemzar?) + cisplatin (don't know the brand) and then they would give this Nexavar also. This trial also includes group who receive some placebo instead of Nexavar, so I guess it's 50% chance of getting the medicine. Quite a bit better probability than getting this disease in the first place .... I'm thinking of going for the trial. But I'll sleep on it and the doctor who's in charge of it, calls me tomorrow. All the best! -Jussi Share this post Link to post Share on other sites
barbara5452 0 Report post Posted October 17, 2007 Jussi, good attitude, stay positive. Also sounds like you are a healthy and that will help you also. Being fit means you have a strong immune system I believe you will do well with your treatments. Keep us updated. Share this post Link to post Share on other sites
ernrol 0 Report post Posted October 18, 2007 Jussi, Ask your doctor if you can receive Nexavar without doing the trial. Sometimes a drug that has not been approved for lung cancer yet, but has been approved for another type of cancer can be used if your doctor wants to. This way you know what you are getting. Stay positive, Ernie Share this post Link to post Share on other sites
Flo Bones 0 Report post Posted October 20, 2007 Welcome to the site Jussi . You'll have lots of support here. flo Share this post Link to post Share on other sites
