ts Posted December 10, 2010 Share Posted December 10, 2010 Yesterday's scan with contrast has turned up a new 6 cm something in my liver. The one from September 09 was 11 mm, biopsy said lc met, started Tarceva - it is still there, but smaller. It has been 6 months since my last scan and this new one was not on it. I wasn't expecting results till Tuesday but the doc called today. Will be scheduling an IR biopsy soon to see if they can id the sucker. I am really glad I travelled without a scan beforehand. So, send those healing thoughts and light. It will be a long week or two. Quote Link to comment Share on other sites More sharing options...
eric byrne Posted December 11, 2010 Share Posted December 11, 2010 Hi Stephanie, I am so dumbstruck by your unexpected post,please God,let this be something innocuous,and will have a simple explaination.Please let us know of any further information. Quote Link to comment Share on other sites More sharing options...
RandyW Posted December 11, 2010 Share Posted December 11, 2010 hoping and praying that it is nothing! Quote Link to comment Share on other sites More sharing options...
jaminkw Posted December 11, 2010 Share Posted December 11, 2010 Stephanie, hurling the brightest beam of healing thoughts and light your way. What a drag. I have a "it's something" too but they don't biopsy my "thickenings" like they do a nodule or a tumor. Wish they did. At least you get an answer one way or the other. I'm hoping for you it's the way that's no big deal. Keep us posted, o.k. Judy in KW Quote Link to comment Share on other sites More sharing options...
Joppette Posted December 11, 2010 Share Posted December 11, 2010 Prayers my friend. Healing prayers. Stay positive and know that you are in my heart and prayers. MI Judy Quote Link to comment Share on other sites More sharing options...
Libby Posted December 11, 2010 Share Posted December 11, 2010 Stephanie, You are in my thoughts and prayers. I am hoping they are going to tell you it is nothing. I have light shinning bright for you. Try and stay positive I know that is easier said then done. Keep us posted. Libby Quote Link to comment Share on other sites More sharing options...
Bud Baker Posted December 12, 2010 Share Posted December 12, 2010 Stephanie, certainly not the scan news we wanted. I'm sending positive thoughts your way, and hoping it's nothing. Quote Link to comment Share on other sites More sharing options...
Bruce u Posted December 12, 2010 Share Posted December 12, 2010 Sending positive thoughts and prayers from up north Stephanie. Take care. Quote Link to comment Share on other sites More sharing options...
fillise Posted December 12, 2010 Share Posted December 12, 2010 Stephanie, Ugh--not the news you wanted to hear I'm sure. I'm joining in the prayers that it is nothing. Please keep us updated. Till then, I'm sitting right here and waiting with you. Want to play some cards while we wait? Susan Quote Link to comment Share on other sites More sharing options...
shineladysue Posted December 12, 2010 Share Posted December 12, 2010 Stephanie, Jumping in here to add my prayers and light to the rest. So sorry you are having to go thru this. Hugs, Sue Quote Link to comment Share on other sites More sharing options...
ts Posted December 13, 2010 Author Share Posted December 13, 2010 January 6 for a biopsy - really? See the doc tomorrow. Quote Link to comment Share on other sites More sharing options...
Annette Posted December 13, 2010 Share Posted December 13, 2010 I'm joining everyone in prayers and good thoughts going your way. As I mentioned elsewhere - I am very good at worrying, so if you would like to let me do a little of your worrying - feel free to have a few good moments and I'll take on the worrying. Bottom line, the waiting sucks, but you have to like everyone here circling the band wagons to wait with you! {hug} Annette Quote Link to comment Share on other sites More sharing options...
jstdzy Posted December 14, 2010 Share Posted December 14, 2010 Prayers on the way Stephanie! Dana Quote Link to comment Share on other sites More sharing options...
ginnyde Posted December 14, 2010 Share Posted December 14, 2010 Stephanie, here's everything crossed for a big fat nothing. Quote Link to comment Share on other sites More sharing options...
ts Posted December 15, 2010 Author Share Posted December 15, 2010 Rescheduled for tomorrow! Results next week. Quote Link to comment Share on other sites More sharing options...
Kasey Posted December 15, 2010 Share Posted December 15, 2010 I'm on board here with everyone else for good results. I'll be staying positive for both of us. Hope to hear the big fat nothing post soon. Kasey Quote Link to comment Share on other sites More sharing options...
jaminkw Posted December 16, 2010 Share Posted December 16, 2010 You kicked butt Stephanie lol. You weren't having that Jan 6 bit. Good luck, am sending all manner of healing thoughts your way. Judy in KW Quote Link to comment Share on other sites More sharing options...
ts Posted December 22, 2010 Author Share Posted December 22, 2010 Sorry folks, the something is the same old stuff. (edit for appropriateness, sorry!) Markers indicate the same as my original tumor. I guess that's better than some new malignant thing, but really? Won't do anything right now. Doctor suggested Cisplatin plus Alimta plus, maybe, Avastin. Very aggressive, don't you think? After some discussion, I talked him down to carboplatin, alimta, and think about avastin - assuming I do anything soon. Options: a) do nothing and scan in 2 months to see how aggressive this is chemo - 3 rounds over 9 weeks, then scan - start in January. c) look for a clinical trial (I haven't seen any that I qualify for that seem terribly interesting) d) run away to a warm place for a couple of months a, b, and d are not mutually exclusive. Trade offs are I am feeling fine right now - do I create a potential side effect condition for a couple of months in hopes of knocking this down? Or do I wait and risk getting sick from the lc and have more trouble with the treatment later? In the meantime, I will continue to take Tarceva until I decide what I am doing. It's seems to be keeping the rest stable. I'll try to not think about it all the time, but will chat with the doc again next week. Quote Link to comment Share on other sites More sharing options...
Joppette Posted December 22, 2010 Share Posted December 22, 2010 Stephanie, I'm so sorry. I'm certainly not equipped to give you advice on this. So I will pray for clarity in making these decisions, and for you to keep feeling as good as you do now. Also sending you a big old cyber ((((((((((((((((((((((((HUG))))))))))))))))))))))))) Judy in MI Quote Link to comment Share on other sites More sharing options...
jaminkw Posted December 23, 2010 Share Posted December 23, 2010 Stephanie, I am so sorry. You do know I know how you feel. Been contemplating the same scenario in March. My progression (again) has already been noted and my time on Tarceva is limited. They were talking about Taxol as the other option so am assuming that's where we will go. Like you I don't know if I'm ready for the big guns again. Can't tell anyone else what to do but will share I've been thinking of asking for 3 mos off treatment before I start anything again. This is a double-edged sword because they are watching us so carefully. But where is being able to just feel decent again for a little while! Hang in. We're with you no matter what your decision. I know we can't know what we'll do until we are right there in the moment of decision. Judy in KW Quote Link to comment Share on other sites More sharing options...
Annette Posted December 23, 2010 Share Posted December 23, 2010 Stephanie - (and Judy in KW) - plain and simple Cancer Sucks - my hopes of course are that you will find comfort in your decision and that whatever you decide your days are easy - or just hard enough to rock the cancer again. All my thoughts, Annette Quote Link to comment Share on other sites More sharing options...
Libby Posted December 23, 2010 Share Posted December 23, 2010 Stephanie I am so sorry to here about your news. It is obviously a personal decision and you decide what is right for you. There is nothing wrong with wanting to feel good for a few months. My thoughts and prayers are with you. Cancer sucks, I hate it, I hate it I hate it. Libby Quote Link to comment Share on other sites More sharing options...
ts Posted December 31, 2010 Author Share Posted December 31, 2010 I said yes to the triplet. Still unsettled by the choice. Carbo/Alimta/Avastin. January 10. Need to start the B-12 and folic acid this Monday. Have stopped Tarceva and am strangely undisturbed by what that means between now and start of the new. Relieved to let my body have the time off, though I am on antibiotics once again, so no NYE cheer. (One of the antibiotics acts like antabuse! Gee thanks.) My turn to fear the side effects of the new to me drugs, but so many have said this is can be a fairly easy trio that I am hoping for nothing more than the dreaded dexamethasone effects. Tried to talk them out of that, but with my skin problems, a rash is not desired. So, no port. Will try to vein it at least for the first round. Judy in KW - I think I missed your post before - and now must ask - did you have a post Tarceva scan that I missed as well? Taxol? Ugh. Happy New Year - may there be peace and comfort for all. Quote Link to comment Share on other sites More sharing options...
Libby Posted December 31, 2010 Share Posted December 31, 2010 Stephanie I will pray that you have no side effects. The fear of the unknown is the worst fear, and hard to deal with at times. May you find comfort and many hugs... Quote Link to comment Share on other sites More sharing options...
carolhg Posted January 1, 2011 Share Posted January 1, 2011 Sending healing thoughts your way and saying prayers for you also. Carol Quote Link to comment Share on other sites More sharing options...
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