RAY A Posted February 9, 2004 Share Posted February 9, 2004 I put this post in the good news post but I figured I will put it here because it was results from my tests. HELLO my brothers and sisters. Ill keep this short. Last Tuesday I went in for what they call CTPET scan. It’s a brand new machine that takes a CT scan and then a PET scan. They tell me its more accurate because the CT scan part tells them what organ they are looking at with the PET scan. Now as many of you know, two week ago they found a blood clot and that is doing fine. this Friday was my visit to my onoc to talk about the cancer. As many of you guys know waiting is the worst part. The doc took my scans and came back in and said I DONT SEE ANY SIGNS OF CANCER ANYWHERE!!!! My wife asked does this mean he’s cancer free? He said that he couldn’t say that because there can always be cancer cells floating around but he would say I was in full remission because there is NED!!! HE said he is still waiting for the report from the radiology dept that took my scans. I guess that’s why I can’t get excited yet. So The doc and I discussed about how we are going to try to keep things the way they are, so he recommended Iressa as a maintenance drug (god Im scared to death) I know this question has been asked a lot but how are my brother and sisters doing that are on Iressa? Any advice or recommendations? Quote Link to comment Share on other sites More sharing options...
sharyn Posted February 9, 2004 Share Posted February 9, 2004 Ray - What phenomenal news!!! You must be thrilled!! I don't have any info on Iressa, but I wanted you to know how very happy I am for you and your family. God Bless. Sharon Quote Link to comment Share on other sites More sharing options...
mhutch1366 Posted February 9, 2004 Share Posted February 9, 2004 Wow! Great news! I imagine it's taking a while to sink in.... Congratulations! it couldn't happen to a nicer guy. Couldn't comment on the IRessa, but I'm glad to see this... XOXOX MaryAnn Quote Link to comment Share on other sites More sharing options...
RAY A Posted February 9, 2004 Author Share Posted February 9, 2004 YOUR RIGHT MARY ANN FOR SOME REASON I CANT GET EXCITED. Quote Link to comment Share on other sites More sharing options...
shelliemacs Posted February 9, 2004 Share Posted February 9, 2004 ray, i think this is fantastic!!! Quote Link to comment Share on other sites More sharing options...
Nancy O. Posted February 9, 2004 Share Posted February 9, 2004 Ray, way to go. Sound like really good news. I can't wait for the update on the radiologist report. God Bless. Quote Link to comment Share on other sites More sharing options...
Guest Karen C Posted February 9, 2004 Share Posted February 9, 2004 Ray, You know, when Dave got his first good test result, right after the chemo, we were thrilled but reserved. Now we are happy to get his good test results but still find it hard to get downright excited. I think we are afraid to "jinx" the good news! It's that what you are feeling? If you get all excited, the next time it will come back to haunt you with bad news? Just wondering, 'cause we have that same "just can't get excited" feeling. But all in the same - great news - yipee!! (I posted a better congrats in the Good News forum). you take care, Karen C. (David C's wife) Quote Link to comment Share on other sites More sharing options...
karen335 Posted February 10, 2004 Share Posted February 10, 2004 Ray, This is awsome news. It is hard to get excited, we just don't know what to expect. Just take the ball ans run with it. You are in my prayers... Blessings and pryaers for you and your family. Karen Quote Link to comment Share on other sites More sharing options...
Cindy RN Posted February 10, 2004 Share Posted February 10, 2004 I remember when I was told I was in remission the first time, it took some time to actually believe it. Congrats! You WILL get used to it. Love Cindy Quote Link to comment Share on other sites More sharing options...
bluebayou Posted February 10, 2004 Share Posted February 10, 2004 HELLO RAY... FANTASTIC NEWS!!!!!!!!!!!!!!!!!! lOVE TO YOU AND YOURS, FRANCINE Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted February 10, 2004 Share Posted February 10, 2004 Ray, This is the most WONDERFUL NEWS!!!!! Congratulations! Peg Quote Link to comment Share on other sites More sharing options...
DeanCarl Posted February 10, 2004 Share Posted February 10, 2004 Hey Ray ... how about we get excited FOR you? Actualy I understand completely. We get so much bad news with this disease we get to the point where we think any good news HAS to be followed by bad, right? But it doesn't have to be that way and here's a great big prayer going out that your good news just goes on ... and on ... and on! Dean Quote Link to comment Share on other sites More sharing options...
Tiny Posted February 10, 2004 Share Posted February 10, 2004 Ray A., That is ABSOLUTELY THE VERY BEST NEWS! I really don't have adequate words to let you know how thrilled I am for you. Keep it up, brother ! (Sorry I don't have infor about Iressa for you...but others will, I'm sure). Quote Link to comment Share on other sites More sharing options...
Lisa O Posted February 11, 2004 Share Posted February 11, 2004 I am so happy to hear your news!!! I have been on Iressa since 10/02 with very few problems. I do have rashes, broken nails and dry skin. There is some occasional GI upset but nothing major. I have been stable on it for over a year. I wish you the very best on it....HAPPY NED!!!!!!!!!!!!!!!!!!! Quote Link to comment Share on other sites More sharing options...
RAY A Posted February 11, 2004 Author Share Posted February 11, 2004 Thanks Lisa. How long did it take before side effects started? Quote Link to comment Share on other sites More sharing options...
Snowflake Posted February 11, 2004 Share Posted February 11, 2004 Ray, I'm not Lisa...but when I took Iressa, the side effects began the next day. Great weight loss plan (diarrhea), but ya couldn't get a date with the "rash" (unless a martian approached you who was homesick....). Hey, if it WORKS, who cares, right? Wishing you all the best, Becky Quote Link to comment Share on other sites More sharing options...
TBone Posted February 12, 2004 Share Posted February 12, 2004 HI Ray, That is great news and I just ran outside and did a couple of back flips for you.Don't worry about any bad news to follow for the time being.Celebrate.I hope and pray that you stay this way forever.TBone Quote Link to comment Share on other sites More sharing options...
Andrea B. Posted February 12, 2004 Share Posted February 12, 2004 Ray, What great great news!!!!!!! I am so happy for you and your family. My mom has been on Iressa for over a month, she goes in next week for a CT scan to check the success. So far she seems to be remaining stable. Blessings to you. Quote Link to comment Share on other sites More sharing options...
Lisa O Posted February 13, 2004 Share Posted February 13, 2004 It took a couple weeks for the full side affects to kick in.... the rash got worse before it got better. It still goes through peaks and valleys. Quote Link to comment Share on other sites More sharing options...
bobmc Posted February 14, 2004 Share Posted February 14, 2004 Hey Ray, Thats absolutely wonderful news and you certainly fought hard to get where you are. May the beast never come back to ya! Go out and celebrate with that wonderful family of yours. Can't help with th Iressa, but you are on a roll, I'd go for it!! God bless and stay well! Bobmc- NSCLC- stageIIB- left pneumonectomy- 5/2/01 MRI's taken 12/18/03 - 2 brain mets found- named em Frick & Frack PET taken 1/5 - hot spot in mediastinum May be cancer?? "Absolutely insist on enjoying life today!" Quote Link to comment Share on other sites More sharing options...
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