Lin wilki Posted January 22, 2020 Share Posted January 22, 2020 Scans after 2 rounds of chemo. Alimta and Carboplatin. Stable. So one more double chemo. Another scan. If stable. Maintenance with just Alimta for???? until progression. Then targeted chemo for my HER 2 amplification. My oncologist had lunch with a HER2 specialist at MD Anderson. That made me feel confident that she’s always looking for the next option. I’ll probably need them! But taking the time right now to be relieved Link to comment Share on other sites More sharing options...
Rower Michelle Posted January 22, 2020 Share Posted January 22, 2020 Hooray for STABLE! YES! I’m sure that’s much better news than the kick in the pants update you had. Here’s an interesting observation from “mutant land”: in the ALK population (similar to HER-2) the longest living survivors (ten plus years) were never NED but stable. Yes that was not a typo, over ten years of survivorship. So now you are an official tub thumper, you may get knocked down but you got up again! So happy for you! Will keep the prayers going. Carry on. Michelle Link to comment Share on other sites More sharing options...
Lin wilki Posted January 22, 2020 Author Share Posted January 22, 2020 Yep. I’ll take stable any day over progression!!!! Link to comment Share on other sites More sharing options...
Susan Cornett Posted January 22, 2020 Share Posted January 22, 2020 Great news! Link to comment Share on other sites More sharing options...
Tom Galli Posted January 22, 2020 Share Posted January 22, 2020 Stable beats progression every time. Wonderful! Stay the course. Tom Link to comment Share on other sites More sharing options...
BridgetO Posted January 22, 2020 Share Posted January 22, 2020 So glad to hear your treatment is working! Link to comment Share on other sites More sharing options...
DFK Posted January 22, 2020 Share Posted January 22, 2020 Lin, I am ecstatic for you. Enjoy and relish in your well deserved GREAT news. Take Care, DFK Link to comment Share on other sites More sharing options...
Steff Posted January 22, 2020 Share Posted January 22, 2020 Your 1 word - stable - made my day! Great work Lin! Link to comment Share on other sites More sharing options...
St Michael Posted January 22, 2020 Share Posted January 22, 2020 Congrats. Great news. Link to comment Share on other sites More sharing options...
LouT Posted January 24, 2020 Share Posted January 24, 2020 Lin, My first set of scans were defined as "stable" and frankly the term confused me as it didn't tell me if I was NED or not, but after hearing the explanation on it I've learned that it is so much better than the alternative. Congratulations. Lou Link to comment Share on other sites More sharing options...
Lin wilki Posted January 24, 2020 Author Share Posted January 24, 2020 Thanks. I was told some people never get NED but stay stable for years. I’ll take it Link to comment Share on other sites More sharing options...
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