OhioKat Posted May 4, 2004 Share Posted May 4, 2004 Got the results of last weeks CT scan yesterday. It was a chest/abodomen/pelvic scan and it looked clean!!! My gallbladder is imbedded in my liver evidently but the NP didn't seem too concerned about it at this time. I will be having 2 more rounds of chemo though, 3 infusions each. I was a little disappointed to hear that. I'm not sure how much more thinning my hair can take & still look alright. I'll also be having a CT of the brain because of some symptoms I've been having, like the blind spot (also have a consult with a opthamologist) and other things. She said it could be just chemo brain but they want to be sure, and since I haven't had a brain scan since my inital diagnosis, I'm kind of happy they are doing one. So it was pretty much good news, although the jury is still out on the brain thing. I'm pretty sure I still have one, but we'll know for sure on Monday. Quote Link to comment Share on other sites More sharing options...
Donna G Posted May 4, 2004 Share Posted May 4, 2004 So far great news. Praying that the eye problem is chemo, and temporary but am glad to hear that they are checking it out. Keep us posted. Donna G Quote Link to comment Share on other sites More sharing options...
betplace Posted May 4, 2004 Share Posted May 4, 2004 Wow clear scans! Hugs and a Happy Dance going out to ya! Glad they are checking it all out! Blessings Betty Quote Link to comment Share on other sites More sharing options...
BJ Posted May 4, 2004 Share Posted May 4, 2004 Congratulations!!!! Clean scans are a wonderful thing! BJ Quote Link to comment Share on other sites More sharing options...
MayFrog Posted May 4, 2004 Share Posted May 4, 2004 Awesome news on the clear scans!! Here's hoping everything else checks out A-OK!! Mary Quote Link to comment Share on other sites More sharing options...
Don Wood Posted May 4, 2004 Share Posted May 4, 2004 Great to hear the good news. Here's hoping for an "empty head". Don Quote Link to comment Share on other sites More sharing options...
SharKats Posted May 4, 2004 Share Posted May 4, 2004 That's wonderful!! Keeping all paws crossed that the brain scan will also be clear. Thinking and sending positive thoughts your way........ Quote Link to comment Share on other sites More sharing options...
gerbil runner Posted May 4, 2004 Share Posted May 4, 2004 Clean scan? Great! Hope they find you "empty-headed" as well . Quote Link to comment Share on other sites More sharing options...
S. Jane Posted May 4, 2004 Share Posted May 4, 2004 Great news about the clean scans! Hoping and praying for the brain scan to be clear. Jane Quote Link to comment Share on other sites More sharing options...
MO_Sugar Posted May 4, 2004 Share Posted May 4, 2004 Wonderful news! Prayers going out for a clean brain scan also!! God Bless, MO Quote Link to comment Share on other sites More sharing options...
mhutch1366 Posted May 4, 2004 Share Posted May 4, 2004 Hey Kat-- That sounds like pretty good news to me! And they'll give you the insurance of two extra chemo rounds and a brain scan too? Covering all the bases, which I think is good. And hair... is overrated. it grows back. First time in 25 years I had the nerve to have a short haircut, and it was GREAT. I just don't have the nerve to keep it cut short once it starts to grow..... Again, couldn't happer to a nicer gal! XOXOX MaryAnn Quote Link to comment Share on other sites More sharing options...
ginnyde Posted May 4, 2004 Share Posted May 4, 2004 Kat, I love good news, keep sending some my way. Ginny Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted May 4, 2004 Share Posted May 4, 2004 Good for you!!!! Glad to hear your great news! I'll bet your symptoms are just a little gift from all the chemo...hope things check out a-ok! Quote Link to comment Share on other sites More sharing options...
hollyridge Posted May 6, 2004 Share Posted May 6, 2004 Good for you. I will still keep you in my prayers Quote Link to comment Share on other sites More sharing options...
berisa Posted May 6, 2004 Share Posted May 6, 2004 OhioKat, you are doing so great. You are very inspiring. Please stay positive and enjoy~~~ Quote Link to comment Share on other sites More sharing options...
karen335 Posted May 6, 2004 Share Posted May 6, 2004 Ohio, I am so happy to read your tests are good and praying for a clean brain scan for you. Always in my prayers. Blessings, Karen Quote Link to comment Share on other sites More sharing options...
OhioKat Posted May 8, 2004 Author Share Posted May 8, 2004 Saw the opthamologist this week. He said based on my doing well on the visual field test he's almost 100% sure that there will be no tumors showing up on Monday's CT Scan. He also said that my flashing light/blind spot is actually a disassociated migraine, which is basically a migraine without the pain. I'd never heard of that before but since being told about them by him I'm hearing a lot of people who either A) have them themselves or know someone who does. I guess if I have to have a migraine then a painless one is the way to go. Started up the chemo again Friday. 1 down 5 to go. (((hugs))) Thank you all for all the support Kat Quote Link to comment Share on other sites More sharing options...
S. Jane Posted May 9, 2004 Share Posted May 9, 2004 Kat, Here's hoping the opthamologist is right! I get the flashing light/aura no pain migrane. All I do is stop what I'm doing, lay down (maybe brew a cup of tea) and relax until it stops. Don't know what triggers it (though I've been told certain foods can) but I'm able to deal with it since I know it isn't a big deal. Hope the chemo goes well for you. Jane Quote Link to comment Share on other sites More sharing options...
Guest bean_si (Not Active) Posted May 9, 2004 Share Posted May 9, 2004 Kat, in the spring of 2002 and again in 2003, I had the same symptoms. I had brain CTs both time not to mention the one after my LC dx. They all came out clean. I was told I most likely had atypical migraines. I think that the possibility of this type increases after age 50. Quote Link to comment Share on other sites More sharing options...
dave s Posted May 9, 2004 Share Posted May 9, 2004 Kat, 9 months PRIOR to my NSCLC diagnosis I started having transient blind spots. They started in the center of my field of vision and gradually changed shape to a "boomerang" like shape and then slowly drifted out of my field of vision. Total duration always 30 to 45 minutes. I saw opthamologists and neurologists who ran many tests but found nothing. I still have them occasionally but just ignore them. They pale by comparison to the other collateral damage I have accrued aloing the way. My guess is they were and are somehow the result of some component of blood chemistry which is out of whack. As I said I've never found a cause (after Brain CTs, MRIs, TEEs. EEGs and even a brain angiogram). At this point I have bigger fish to fry... If youir symptoms are similar perhaps yours too will defy diagnosis. Just a thought. Best Wishes, Dave S Quote Link to comment Share on other sites More sharing options...
hobored Posted May 9, 2004 Share Posted May 9, 2004 so happy to hear all is clear...that chemo does so many strange things...I would not be surprised to find eye problem is chemo related. Quote Link to comment Share on other sites More sharing options...
Cindy RN Posted May 10, 2004 Share Posted May 10, 2004 Glad to hear the god news!! As for the eye thing! I get this blind spot in the middle of the vision in my L eye. It then becomes a coma shaped 'thing' in the far L peripherial view. No pain, it last about 30 min. I have gotten them since 1991. More here lately then usual. I was told by an eye Dr in the ER they are optical migraines, sometimes they come with the headache. THANK goodness I have never had that part. Good to hear others have experienced this. Cindy Quote Link to comment Share on other sites More sharing options...
IIIp0 Posted May 10, 2004 Share Posted May 10, 2004 Oh Please be clean, Please be clean~: That will be my prayer for YOU and for my own hubby for tomorrow! I'll start praying first thing in the morning and go through the day since I don't know what time your test is~ [smile].... Good Luck and congratulations on the clean screens! Oh What a Wonderful feeling that must be~~~ Beth =============== husband diag 12/3 w/SCLC, Stage 4 mets to liver, lungs, bones 13 carbo/taxol, neuropathy, platelets low three weeks, fourth started CPT-11~ platelets really low..... Brain scan tomorrow too~ Quote Link to comment Share on other sites More sharing options...
Elaine Posted May 11, 2004 Share Posted May 11, 2004 Kat I will pray you are empty-headed. Glad the other scans looked good. Haven't a clue what embedded gall bladder is, but if he doesn't care, who does--lol. I think of you often. Thanks for letting us know how you are. Sorry more chemo is headed your way, and I hope you keep your hair. Love Elaine Quote Link to comment Share on other sites More sharing options...
OhioKat Posted May 14, 2004 Author Share Posted May 14, 2004 Brain scan came back negative.. my fears are confirmed.. my children have sucked all my brains & intelligence out of my head. 2nd chemo today 4 to go They decided to stop the Cisplatin because of the increase is pain/tingling in my lower extremeties. That really only means missing one dose though, since I only have one more upcoming chemo that would have included the cisplat. Thanks for all the prayers & kind thoughts. I'm sure it played a part Quote Link to comment Share on other sites More sharing options...
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