mjb Posted October 8, 2004 Share Posted October 8, 2004 Thought I would start a new topic in hopes Margaret will let us know how their results were. Ours are disappointing. Most of the tumors in the brain have decreased but the largest one has increased and has swelling. That's the MRI. The Petscan shows cancer in lung is gone (good!) but they think it has shown up in the left adrenal gland. Oncologist recommends another round of chemo with different drugs but told us to go home and think about it. Meantime, he's having the radiation oncologist call us to discuss the brain tumor. Doesn't sound like a good candidate for gamma surgery and more radiation would fry his brain. I'm pretty well cried out and we're not giving up! Will spend more time studying diet and trials and find out what are options are. Thanks so much for the response on my previous post - it helped me make it until today. Margaret - Let us know how yours went. I said a prayer for y'all as we headed to the doctor's office. MJB Quote Link to comment Share on other sites More sharing options...
Connie B Posted October 8, 2004 Share Posted October 8, 2004 Dear MJB, I am so sorry to hear this news. (((MJB)))) It's back to the drawing board! You have the right attitude! Your both still in my thoughts and prayers. How I hate this disease! I'm not alone on that one!! Quote Link to comment Share on other sites More sharing options...
Fay A. Posted October 8, 2004 Share Posted October 8, 2004 Oh, MJB, I wish the news had been better. I know you haven't given up. I'll be praying hard that they can come up with a plan to address the brain and adrenal tumors. We just have to hang in there. Quote Link to comment Share on other sites More sharing options...
stand4hope Posted October 8, 2004 Share Posted October 8, 2004 MJB, I am also sorry to hear this news. Keep your chin up and keep the faith! Did the onc talk about gamma knife to the brain mets? Love, Peggy Quote Link to comment Share on other sites More sharing options...
Don Wood Posted October 8, 2004 Share Posted October 8, 2004 Sorry it is not better news. Hope you can find a treatment that does work. Don Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted October 8, 2004 Share Posted October 8, 2004 Hi MJ So sorry about the results of your tests. I really like the sound of that tenacity coming through loud and clear... keep it up! Say, my dad was at Bishop for a brain tumor. Such wonderful doctors, nurses, staff and facilities...is that where you folks go? Cindi o'h Quote Link to comment Share on other sites More sharing options...
Nushka Posted October 8, 2004 Share Posted October 8, 2004 MJB, So sorry to hear about the brain and adrenal tumors. I only wish you my best and hope that the next try will be successful. You sound determined and that is the best attitude you can have. Stay positive. Nina Quote Link to comment Share on other sites More sharing options...
Addie Posted October 8, 2004 Share Posted October 8, 2004 MJB... I'm so sorry the news wasn't totally good...but I too, like that you aren't giving up. You've got to work thru the bad part of the news and deal with those feelings though....and then shore yourself up to continue fighting with as much positivity as you can muster. I'll be keeping positive thoughts that you have more options than it seems like at the moment....and please know we're here when you need to vent or rant. Hang in there...... Quote Link to comment Share on other sites More sharing options...
draiocht_bean_si Posted October 8, 2004 Share Posted October 8, 2004 MJB Very sorry to hear results. Would you consider alternatives in conjunction with conventional? Would you mind taking a look at my post in Alternative Meds? http://lchelp.com/community/viewtopic.php?t=10469 John Robbins (Diet for a New American and on movie Supersize Me) was kind enough to talk to me on macrobiotics and felt it was fine but heartily suggested adding raw, organic veggies and fruit (a modicum) Prayers and healing thoughts for you. Cat Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted October 8, 2004 Share Posted October 8, 2004 Hi, MJ, I was thinking of you today, too, and oh so much hoping for the best. I am sorry for your troubles. There is still time, study up, something may click. I will always watch for your posts now. I am about to compose our results - sort of stable, a bit on the negative, it will be online shortly. Big hug for you, Margaret Quote Link to comment Share on other sites More sharing options...
mjb Posted October 9, 2004 Author Share Posted October 9, 2004 Thank you all. I'm allowing myself to be depressed for the rest of the day. But not tomorrow. CAT - Actually, I have already looked at your post and have mentioned the diet to Scott (we won't discuss his reaction:). Thanks. MJB Quote Link to comment Share on other sites More sharing options...
paddy Posted October 9, 2004 Share Posted October 9, 2004 Sorry to hear this news MJB. I hopeand pray with all my heart that things will go better for you soon. Love. Paddy Quote Link to comment Share on other sites More sharing options...
Elaine Posted October 10, 2004 Share Posted October 10, 2004 MJB Sorry the news wasn't what you hoped. Ray A who is a member of the board recently had a met to one of his adrenals. He had the adrenal gland surgically removed. I don't know exactly what the criteria is for this but you might research it further. love and fortitude elaine I just noticed that your husband has small cell. Ray has NSCLC and that might make a diference. Quote Link to comment Share on other sites More sharing options...
Tiny Posted October 10, 2004 Share Posted October 10, 2004 MJB I'm always amazed at the fortitude and courage that is evidenced on this site in the face of disillusioning news. Hang in there, keep looking, reading, and asking, and I'll be saying prayers that things perk up for you soon. Quote Link to comment Share on other sites More sharing options...
mjb Posted October 10, 2004 Author Share Posted October 10, 2004 Elaine - I appreciate the suggestion. It wouldn't have occurred to me, but the doctor did mention that. His position was that if the cancer were no place else, that's what he'd recommend. But since it is elsewhere, the brain, he wouldn't recommend it. Waiting to talk to radiation oncologist. MJB Quote Link to comment Share on other sites More sharing options...
Kaffie Posted October 10, 2004 Share Posted October 10, 2004 I am lost for words at this news. Just know I'm thinking of you and praying for something positive from the radition oncologist. Kathy Quote Link to comment Share on other sites More sharing options...
MayFrog Posted October 12, 2004 Share Posted October 12, 2004 Keep up your fighting spirit....we're thinking of you, and hope you get a good response from the radiation onc Mary Quote Link to comment Share on other sites More sharing options...
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