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EastCoastLadi

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Everything posted by EastCoastLadi

  1. Don't feel that way NB! You're going to come across many people who just don't understand. Don't worry about the job --- sounds like you're a very good employee, you got that to stand by. But just in case, keep a small record of when you need to leave early, or use time. For you and your peace of mind. Listen, dealing w/ all of this is so overwhelming! to hell w/ the boss if he doesn't understand! Also, don't be a mrytr (sp) to your job! If you have vac. or personal time and you need it, take it! Just remember you got more people behind you!!!! Take the time for you! Grace
  2. Way to go Gail!!!!! Grace
  3. (((Tina))), I just wanted to let you know you're doing a wonderful thing in Charlie's memory. We're here for you... Grace
  4. Randy, I just read that, it's too sad, and unfortunately people just won't realize the heartache and tradegy that lung cancer causes... Grace
  5. (((Shelly))), How do I know your pain! I often wonder why? How much more. I'm there in your shoes as well. You know what, today I'm taking my daughter to the dentist office, this woman is on the cell phone talking loudly about the problems with her contractor working on her house!....I wanted to go over to her and tell her to shut the **** up!....then this other mother hears her and says shes' having the same problem too. Oh how to have those problems!!!! I wanted to go over to them and say, well my husband has terminal cancer and you see these 2 girls, your "problems" are pathetic! I wished mine were as trite as yours! I too can't take any more pain, every little thing ticks me off, I'm tired, I can't stand BS, I'm on my 19th nervous breakdown! ....and god help the person who gets in the way of my 29th... Shelly, I could say I will pray for you,,,,,,,, but I think we know how we feel about that now a days!! just know, I'm here for you and do understand!!! Grace
  6. Andrea, Just letting you know I'm thinking about you.....you just take it easy! Grace
  7. Darrell, Just letting you know I'm thinking about you too! I totally understand the tremendous amount that you are going thru!!!! Grace
  8. EastCoastLadi

    Crying day

    Kim, It was my dads' birthday too yesterday, he would of been 66. I remember waking up and just sitting on my sofa and telling my husband, todays' my dads' birthday. I know the sadness, he died at 64, its' still too young. And now having heard that Shirley's dad died yesterday too.....well I'd like to think, he made it to their party yesterday..... You take care... Grace
  9. Hello, I'm asking because a couple of weeks ago my husbands' radiologist decided to add some markers to his weekly blood work. The thing is that my husband was on oral etoposide for about 18 days and stopped temorarily because of his IMRT and rad to lung and liver, also onc. and rad. are debating about giving him temodar. Well, there there has been a sharp decrease in the marker that follows the amount of cancer cells ( at least that is what I believe), my husband count on this marker started at 107 and last time it was 4 ( normal range is 3 - 9) so something is happening. I guess my questions are, has anyone else dealt with tumor experienced. We're off to see his onc. this morning to talk more ( even through he isn't all that big on markers, but he is pleased with the numbers). What does this mean? Also my husband is continuing w/ the rad today and ongoing, and will have an MRI of his brain tomorrow, and I'm betting the onc. will schedule a Chest CT scan too as well. I really appreciate any and all info you may all have... Thank you, Grace
  10. EastCoastLadi

    Single

    (((Don))), It makes me sad to hear of your sadness, we're here for you.. Grace
  11. First of all I am so sorry you have to go thru this! Your mom is frightened and of course feels all alone even w/ you and her bf there. My first suggestion would be is to talk to the social worker at the cancer center/hospital she has been treated at. They can help you make all the arrangements or at least point you in the right direction. I know when my dad came home to hospice, he wanted to be home, he didn't want to die either and felt being at home would make him better, unfortunately it didn't. But my dads' hosp. soc worker got us all the info. and the bed and medicine and the hospice nurses, social workers, home health aides were set up in a matter of a couple of days. Also we had a pharmacy that would deliver by orders from dr. and nurses any medications, syringes, bandgages, creams whatever he needed it would be delivered. Also, are you her health care proxy, because if she is getting to the point where she is unable to make up her mind, you or whomever is the hcp will have to do it, and please if you don't have one. DO IT NOW!, even if your mom is in denial, just tell her you hope not to need it, but just in case, if she had a "moment" ( to put it lightly) that you would help her make her decision, and let her know or talk to her about what her decisions would be....ie. to fight on, more meds....ect... Your mom doesn't hate you, remember you always hurt the one you love......she loves you..she doesn't want to hurt you....and pushing you away is her way of doing so. Please I'm praying for you and your mom.....please keep in touch. Grace
  12. congrats and thank u for all your help!!!! Grace
  13. beat it; you may want to take a look at this site, there are some interesting articles about nutrition. Grace http://www.truthquest2.com/cancerindex.htm
  14. I hate seeing anyone I love in such agonizing pain, my dad was like that with his cancer, when he changed hospitals I told him to trust his new drs. and that they would eventually control his pain, they did. The hardest part is that it can be a trial and error process. but when they find the right solution, I know your dads' pain will be under control.... Grace
  15. EastCoastLadi

    Lost Member

    Kasey, Thank you for letting us know....it's just too sad, too young and her young children, all I ask is why? Grace
  16. Hi Tracey, I have been in your shoes and still continue. I unfortunately know way too much about SCLC, but I won't give up finding out more.....especially to help the fight my husband has gone thru. I'm here if you have any questions or problems you may encounter. Grace
  17. Dar, I'm so sorry about your mom, it takes so much out of everyone. I hope you will take a moment to read my profile and see what my husband has been and is going thru. I won't lie, treatment of SCLC takes so much out of the person going thru treatments. Your mom is still fairly young, and that is a positive for her. Attitude is important as well, she's with you and her grandchildren and although you may not realize it and there will be times, but that is some of the best therapy around..... Lastly, welcome, it is a mixed greeting, sadness for the need to be here, happy that you are here... Grace
  18. I would talk to the drs. more about different types of radiation - cyberknife, gammaknife, IMRT, there are other radiological options. I know that one of their concerns is the tumor location in relation to vital organs....but I think it is worth talking more to the drs. Grace
  19. (((Shellie))), I very sorry about your sister, it's way too much, unfortunately I understand.... hoping for the best for you sister.... Grace
  20. Nick, I am so very sorry about your mom, my prayers go out to you and your family... Grace
  21. Bobby, Once again, I'm sorry that your sister is going thru all of this. Unfortunately SS Disability takes about 6 months to get, but it is retroactive. I would suggest in the meantime for her ( and you and whomever else is helping her) the following: Talk to the social worker at the hospital/cancer center she is getting treatment for. He/She hopefully will be able to direct you in some places where she lives to get some help/assistance.. I was thinking also, if she can qualify for welfare, food stamps and other assistance. It would be very simple for her to get that documentation. But I would strongly suggest that you or someone else who is helping her to put together all the documents that she would need. Of course, definitely have her apply to SS for disability My other question would be, what was her work situation? You said she can't work any longer, does she have any time she can cash out on, also is there any long term disability?, Since I don't know your sisters' exact situation I can't give you any further info. Please definitely look thru out this site, there have been many postings of websites that can help her out. Grace
  22. I saw this mag. at the hospital today, it is very good and just checked out the website....you can check out past issues on line and also get a free subscription... Grace http://www.curetoday.com/
  23. Bobby, I know how you feel, please check out my profile to read about my husband.....he's a fighter....does this stink!, YES! ( I could of used a better word ). I'm still having a very difficult time with all of this too, it's now been over a year. But I'm still fighting for my husband to stay alive. I don't care if people don't like my attitude sometimes, heck even my husband thinks so too! Because if I stop, then it will be too late. Grace
  24. I found this website to be full of information... http://www.truthquest2.com/cancerindex.htm Grace
  25. Steven, As you personally know a great dr. can make all the difference in your life. My husbands' oncologist is awesome!! Grace
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