Patkid Posted March 22, 2005 Share Posted March 22, 2005 You guys, I want to raise some things with you..........please read and share your feelings or reactions. I am leaving room for the possibility that I am in the throws of denial or that I am emotional to the point of irrationality........but I still want to ask this and I have come to feel safely enough in this group to take this risk. Is it possible that Brian was mis - diagnosed? Points: He is/was not sickly He was working 10 hour shifts at night He had no pain The naggy cough he had was attributed to Monopril - a med he was on for 4 years. He had / has not lost any weight. He had 2 instances of breathing "funny" in the last 6 months, but both times were after exertion and lifting and he describes them as more like he was "out of his breathing rythm" than experiencing shortness of breath. He was able and still can walk for 20 uninterrupted minutes on the treadmill at 3 miles per hour. Last fall we took many "laps" around the walking path with no sign of fatigue from Bri. PCP and ONC both said that Brian's "presentation" did not match the lung x-ray, CT Scan, PET SCAN. Onc said that he was "PUZZLED"; that the best diagnosis he could come up w/ was poorly differentiated LC. He said that the "stains" they did on the biopsied matter were inconsistent in many ways with the microscopic findings. He said that the tumor had some characteristics of sclc but that only showed on the staining that was done. He repeated that he was puzzled. Brian and I could see the Liver tumor on the CT Scan and on the PET Scan. It seemed at least as large as the Lung tumor (lung tumor is in upper left lung.........inoperable due to size (5cm) and proximity to arteries, heart and "nerves that control breathing"), but the liver was never biopsied. ONC told us not to have Brian work Onc told us to begin paper work for SS disability Onc did not discuss stage or prognosis Onc said Cisplatin and VP16 for 2 rounds/Scan and either continue or change chemo drugs Brian tolerated chemo well. After he got Protonix for heart burn and Lasix for bloating he came right around and ate well and only felt fatigued and lost his hair as symptoms of the chemo. I repeat: Brian is NOT SICKLY Brian states that he does not have the sense that he is really really sick. Is a biopsy difinitive??? If the biopsy says LC does that mean LC? They got a really good amount of matter in the ct assisted needle aspiration biopsy..............Onc left no room to think that he was unsure of LUNG CANCER --- Just what kind. Brian really likes the ONC because he did not show any sign of treating Bri as "hopeless" He seemed very eager to get going and "go after" the cancer. Brian loves the cancer center (OSF ST ANTHONY center for Cancer Care in Rockford IL.) and the fact that it is a short drive from our home. He connected with the ONC right away. I just can not believe that he has cancer. ........Thank you for taking the time to read this. I look forward to your input. Quote Link to comment Share on other sites More sharing options...
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