mayos Posted June 14, 2005 Share Posted June 14, 2005 I don't believe I've asked for help yet here...I've just hung around....learning...supporting wherever I could. But last Friday I went for a catscan of my brain and the local hospital kept me and didn't want to let me go. I've been told I have a 6 cm tumor attached to my frontal and parietal lobes. The swelling around the tumor was likely causing my facial symptoms....something similar to a very mild bells palsey. Since all my other body scans have been clear of cancer...my docs are shocked I have this single large brain tumor. The size of it knocks me out of the gamma knife...and I'm still in the dark when the neurosurgeon will operate. I'm scheduled to see one tomorrow in Cleveland Ohio. I'm wondering if I'll get to come home tomorrow at all. Has anyone here ever heard of NSCLC traveling straight to the brain without any stops in between??? What about such a large single tumor??? Is this unusual...or am I just trying to get out of the mess I'm in??? So sorry I'm not here tonight to offer something of myself other than fear and a deep, deep hatred for cancer. Quote Link to comment Share on other sites More sharing options...
MilliBr1 Posted June 14, 2005 Share Posted June 14, 2005 Hello from a fellow Ohioian! I just wanted to let you know you are in my thoughts and prayers. Millie Quote Link to comment Share on other sites More sharing options...
SBeth Posted June 14, 2005 Share Posted June 14, 2005 Hello Mayos and Millie, Chiming in from way down here in Southernmost Ohio, Cincinnati. Mayos...my husbands lung cancer travelled straight up to his brain with no stops in between. I'm so sorry that you are going thru this and the gamma knife is not an option. I'm hopeful that your surgeon will have a plan in place and be able to surgically remove that nasty tumor. From my experience with Bill's surgery, it sounds much scarier than it was. He was actually alert, awake and placing a midnight snack order within an hour of his emergency craniectomy last year...and home from the hospital 5 days later. We'll be saying extra prayers for you and hope you report back with some good news. Hang on and let us know what we can do for you Mayos! Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted June 14, 2005 Share Posted June 14, 2005 Yes it can go anywhere I was told.Usually up rather than down but still anywhere. It seems to me most of the people on here with brain mets have had good results with all the different procedures available. Wishing you the very best. Quote Link to comment Share on other sites More sharing options...
Doughnut Posted June 14, 2005 Share Posted June 14, 2005 I'm so sorry about your bad news. It seems to have come out of the blue. However, take heart from SBeth's post and I'm sure there'll be more to come. Dee Quote Link to comment Share on other sites More sharing options...
Justakid Posted June 14, 2005 Share Posted June 14, 2005 I'm so sorry, your in my thoughts! Quote Link to comment Share on other sites More sharing options...
Ry Posted June 14, 2005 Share Posted June 14, 2005 I think we will all join you in the hatred for cancer club. I am so sorry this has happened. I hope it will be removed safely. Quote Link to comment Share on other sites More sharing options...
Eileen Posted June 14, 2005 Share Posted June 14, 2005 I am so sorry for your bad news. Hopefully after your meeting with the surgeon, you will have a good plan in place to remove that nasty tumor regards, Quote Link to comment Share on other sites More sharing options...
Addie Posted June 14, 2005 Share Posted June 14, 2005 Mayos....hope the neuro doc comes up with a good plan to rid you of this tumor asap! Don't you worry about what you can be here to offer right now...you just show up and hopefully, you'll find what you need to get thru YOUR next steps! Sending all good thoughts your way for a successful resolution. Let us know what the neurosurgeon has to say. Quote Link to comment Share on other sites More sharing options...
bunny Posted June 14, 2005 Share Posted June 14, 2005 my mom's doc at MSK told us that the brain is the first place they look for metastic [sic] NCSLC (hey look at me, with the lingo). good luck with it, we're thinking of you. xoxo bunny Quote Link to comment Share on other sites More sharing options...
Elaine Posted June 14, 2005 Share Posted June 14, 2005 Mayos, I am so, so sorry. I hate that cancer can do whatever it darn well pleases, seemingly whenever it pleases. I will keep you forefront in my thoughts today. love and fortitude elaine Quote Link to comment Share on other sites More sharing options...
Connie B Posted June 14, 2005 Share Posted June 14, 2005 I'm just sending hugs my dear! (((((((((((MAYOS))))))))))))) Kind of think you need some!! I'm still going to hope this can be removed and all will be A O KAY! Quote Link to comment Share on other sites More sharing options...
Fay A. Posted June 15, 2005 Share Posted June 15, 2005 I just read this.... Thinking of you and hoping that the docs have a good plan in place very soon. Quote Link to comment Share on other sites More sharing options...
bbays Posted June 15, 2005 Share Posted June 15, 2005 I am so sorry. Keep the faith. God bless you. Barb Quote Link to comment Share on other sites More sharing options...
Maryanne Posted June 15, 2005 Share Posted June 15, 2005 I am so sorry to hear your news. You were doing so well. This must have really knocked you through a loop. Da-n that pissses me off. YOu must be so scared. My heart goes out to you. I feel you will be just fine. Keep a positive addititude... Prayers sent. Maryanne Quote Link to comment Share on other sites More sharing options...
Patkid Posted June 15, 2005 Share Posted June 15, 2005 Prayers for a brilliant doc to know just what to do to get you back together w/ NED> Love, Pat and Bri Quote Link to comment Share on other sites More sharing options...
Haylee_38 Posted June 15, 2005 Share Posted June 15, 2005 From another Ohioian sending my prayers for the best. My thoughts are with you. Haylee Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted June 22, 2005 Share Posted June 22, 2005 mayos... I just stumbled across your post. Honey, I hope by now that bugger is in the waste basket and someone stepped on it real, real hard!!! You okay? I will send a pm.. Cindi o'h Quote Link to comment Share on other sites More sharing options...
daggiesmom Posted June 22, 2005 Share Posted June 22, 2005 I hope they quickly resolve the tumor issue for you. I'll keep you in my prayers. Joanie ((())) Quote Link to comment Share on other sites More sharing options...
mayos Posted June 23, 2005 Author Share Posted June 23, 2005 Thanks so much for the all the support and caring I feel. This group is a dream come true for many of us. My tumor is out and I'm able to move and think...I'm lucky to be alive. My doc said I'd have been gone within 2 wks. It was the same adeno as my LC...so I'm looking at WBR and Tegretol I think. I appreciate your thoughts with all my heart. Thank you so much...Till we talk again.......... Quote Link to comment Share on other sites More sharing options...
stand4hope Posted June 23, 2005 Share Posted June 23, 2005 Dear Mayos, I thought I had responded to this post, too. I remember reading it. I'm sorry I'm late. Yes, NSCLC does generally go straight to the brain if it gets in the bloodstream, however, that is really, really fast if it wasn't there in March, especially for it to be so big. Of course, you wouldn't have even known about it if they haven't done scans of the brain. Anyway, I sure am glad they got it out and that you are feeling better. That was quite a scare! Please keep us posted how you're doing. Love, Peggy Quote Link to comment Share on other sites More sharing options...
bunny Posted June 23, 2005 Share Posted June 23, 2005 mayos, that's such great news, that it's out. hope the good news continues for you! Quote Link to comment Share on other sites More sharing options...
Elaine Posted June 23, 2005 Share Posted June 23, 2005 Mayos. Thank you for letting us know; I'd been so worried. Hoping treatment is kind to you. love and fortitude elaine Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted July 9, 2005 Share Posted July 9, 2005 Hi Mayos! I have been looking for an update from you on how everything is going for you! I have a couple of pm's in my outbox to you....one since back in May. Check your mailbox, okay? Hoping and praying that the radiation is doing exactly what it is supposed to and that the Tegratol is keeping everything calm. Cindi o'h Quote Link to comment Share on other sites More sharing options...
Maryanne Posted July 9, 2005 Share Posted July 9, 2005 Wow Mayo, Its out and you were posting already. That is such great news. You must be estastic. Now for the other treatments. You will come through that just fine. Just keep that positive additute up. So happy for your good news!!! Maryanne Quote Link to comment Share on other sites More sharing options...
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