jlynn2jo Posted January 17, 2006 Share Posted January 17, 2006 Hi. I'm new to using these types of support so any feedback is welcome. I'm 48 years old and have been fighting nslc for 5 years now. Shortly before my 43rd bday, masses were detected on an ex-ray. I had a double lobectomy, followed by 6 wks., of chemo. For 2 years all seemed well, then it returned in lymphnodes in my neck, and again 2 more years later. This time it was only 1 year. The last 2 times I had radiation with chemo, this time just chemo.I've had 12 treatments so far, then a week break as had a touch of pnemonia. This week, Weds., will be my #13, and have 4 more after for sure. Also scheduled for my 2nd CT to see how treatments are going. This will be my second since started and the 1st showed that treatments were working. It has really been a long scarey 5 years, and yet at times I do know I'm blessed for having made it this long. It's just that after this much it's very hard not to question my faith, my doctors, and yet I will never give up the fight. Mainly what I'm looking for now is other people who are also fighting this horrible cancer. Sincerely, jlynn Quote Link to comment Share on other sites More sharing options...
Ry Posted January 17, 2006 Share Posted January 17, 2006 Welcome. I am glad you found us. This is a great place for information and support. You have been through a lot-- I hope the chemo is successful. Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted January 17, 2006 Share Posted January 17, 2006 Welcome--Glad you found us, stay with us, lots offered here. Quote Link to comment Share on other sites More sharing options...
Kasey Posted January 17, 2006 Share Posted January 17, 2006 A very warm welcome to you jlynn. You are at the right place if you are looking for folks who are fighting this disease like crazy. You have had quite a time of it these past 5 years, and I want to congratulate you on fighting and surviving. Perhaps by filling in a Profile - what you find under all our names - we may be able to help you better and support you as well. Glad to 'meet' you. Kasey Quote Link to comment Share on other sites More sharing options...
Don Wood Posted January 17, 2006 Share Posted January 17, 2006 Welcome, and congratulations on your five years. Don Quote Link to comment Share on other sites More sharing options...
joanie55 Posted January 17, 2006 Share Posted January 17, 2006 Just want to welcome you and offer any help I can be in your fight. Joan Quote Link to comment Share on other sites More sharing options...
Donna G Posted January 17, 2006 Share Posted January 17, 2006 Several here have started their battle with this beast at very young ages. Welcome. I hope you have friends and family also that are there for you during this fight. Many of us here know what the battle is like first hand. Hope we can help. Donna G Quote Link to comment Share on other sites More sharing options...
Fay A. Posted January 17, 2006 Share Posted January 17, 2006 Jlynn, I know how hard it is to keep on trying to find the joy when you keep on being hit with the cancer. Try not to assign blame. This is a disease, not a punishment. Try to focus on the Science of Cancer Medicine. Doing so is what allows me to look at what is happening to me, and what is available to treat the disease without falling too far down a black hole. Come here often. Wishing you well, Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted January 17, 2006 Share Posted January 17, 2006 Hi jlynn.. There is a lot of support and information about all aspects of lc and survivorship available here. I can tell that you are a fighter! You have a lot to offer the rest of us who are struggling with this beast! I hope that we can be of help to you too! Welcome! Cindi o'h Quote Link to comment Share on other sites More sharing options...
Don M Posted January 17, 2006 Share Posted January 17, 2006 Hi jlynn: I would like to welcome you too. I hope your next ct scan shows even more good reults and that you can continue to have many more anniveraries. You are a veteran at fighting this disease. I am sure you have as much to offer us as we have to offer you. Don M Quote Link to comment Share on other sites More sharing options...
Miami Janet Posted January 17, 2006 Share Posted January 17, 2006 Hi Jlynn, You sound like a real fighter. Hope you find what you need here..Janet Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted January 17, 2006 Share Posted January 17, 2006 Jlynn,welcome to our support family.Sorry you had this poopy disease come back on you again.I know what that is like. Wishing you good outcome from your latest treatments. Quote Link to comment Share on other sites More sharing options...
bethluvswill13 Posted January 17, 2006 Share Posted January 17, 2006 Sorry no information, but I'll be praying whatever treatment you decide will be the right one. Hugs,Beth Quote Link to comment Share on other sites More sharing options...
Donna Posted January 17, 2006 Share Posted January 17, 2006 jlynn..Keep up the fight..All I can offer is my support and lots of prayers.. God Bless You.. Donna Quote Link to comment Share on other sites More sharing options...
jang Posted January 17, 2006 Share Posted January 17, 2006 Welcome jlynn...you have found the right place. Quote Link to comment Share on other sites More sharing options...
Maryanne Posted January 18, 2006 Share Posted January 18, 2006 Jlynn You certainly have had your share but I absolutely, love your attitude. Never give up!! You will get through this, I know it. We are always here to help you through this. Please keep us informed of your progress. Maryanne Quote Link to comment Share on other sites More sharing options...
bunny Posted January 18, 2006 Share Posted January 18, 2006 welcome. you will get tons of support and input from other survivors here. 5 years is amazing, good for you! I am the daughter of a 5+ year LC survivor, and although she had a wicked recurrance recently, she's still kickin'. that's what makes her a survivor, in my eyes. glad you found us, though I hate what you're going through. xoxo amie Quote Link to comment Share on other sites More sharing options...
J.C. Posted January 18, 2006 Share Posted January 18, 2006 Hello Jlynn, Welcome. Jackie Quote Link to comment Share on other sites More sharing options...
jlynn2jo Posted January 26, 2006 Author Share Posted January 26, 2006 Hi. First of all I'd like to thank everyone for welcoming me. I'm still not real sure how to use the message boards, in fact I lost my first letter somehow. But I plan to look around some more for hints and ideas. I also plan to work on my profile within the next few days. I have an update since my CT scan last week. The radiologist said the lymphnodes haven't shrunk anymore, but are stable. I know this is good and yet can't help but be a little down the first couple days. A few days of reading, thinking, and the smiles of my grandkids, put me back in my fighting attitude. Any way, my oncologist felt I probablly built up an immunity to the IV drugs, so decided to start me on Tarceva and see how that works. If not, we'll try another IV chemo drug later on. I started yesterday with 150 mgs. I'm keeping a daily log so I forget nothing for my next appt. Has anyone had good results with this drug? I'm always a bit nervous about starting a new drug, and of course the statistics are always scarey. I wish all of you fighting this the best. We must all keep fighting it. For all of you who have lost someone, my heart goes out to you. Take care. jlynn2jo Quote Link to comment Share on other sites More sharing options...
Ry Posted January 26, 2006 Share Posted January 26, 2006 My husband had excellent results with tarceva for a long time. I hope it does the trick for you. Quote Link to comment Share on other sites More sharing options...
bethluvswill13 Posted January 27, 2006 Share Posted January 27, 2006 Jlynn-Welcome! you come to the right place for support and answers. Hugs,Beth Quote Link to comment Share on other sites More sharing options...
Nancy B Posted January 27, 2006 Share Posted January 27, 2006 Jlynn, welcome and let us know what we can do to help you. Hugs, Nancy B Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted January 27, 2006 Share Posted January 27, 2006 jlynn, around here stable is a good word. A very good word. Try to wrap your head around it somemore. It means that the cancer isn't going anywhere!!! That is a very good thing! Lots have done well on Tarceva for a very long time. Sometimes they say that their doses are adjusted according to their side effects if they have some that cannot be tolerated. Others have no side effects. Mostly I hear complaints about skin rashes (bad ones) with the Tarceva. Lots of my pals here are still around because of it and love it. Hope it is good to you. If not, there are lots more in the little black bag. We are pretty lucky to have choices in 2006. Cindi o'h Quote Link to comment Share on other sites More sharing options...
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