Connie B Posted November 19, 2007 Share Posted November 19, 2007 Here is Maggi's Message: I have reposted it, because she had added it to someone elses post and I didn't want it to be over looked. This is Maggi's first time posting. Please welcome Maggi and her husband to LCSC. Thank you! ******************************************** maggi Joined: 19 Nov 2007 Posts: 1 Posted: Mon Nov 19, 2007 11:32 am Post subject: hello...my husband Ben has NSCLC (dx 8/06)treated with chemo/radiation..however,despite a clean PET in July, he's now showing evidence of possible mets and recurrence on the most recent scan. he's been very strong in his faith that he will 'beat this' but, the latest info is worrisome, to say the least. the oncologist suggested we wait 3-6 months and get another 'more conclusive' scan...that's impossible so we're seeing the radiation oncologist today and hopefully she'll have some suggestions, if not answers..my fear is that if it has come back, it's very aggressive and may not be able to be controlled with chemo...my fear for him is that his faith will be destroyed and that's been a big part of his arsenal. it's nice to have a place to vent. Maggi *************************************************** Quote Link to comment Share on other sites More sharing options...
Ry Posted November 19, 2007 Share Posted November 19, 2007 Welcome Maggi- I hope you find this post. I am glad you did not wait 3-6 months as suggested. You need to stay on top of things and be aggressive. I am glad you found us, let us know how the appointment goes. Rochelle Quote Link to comment Share on other sites More sharing options...
sharyn Posted November 19, 2007 Share Posted November 19, 2007 Welcome Maggi - I am sure you will find much love, support and information from the group here. Quote Link to comment Share on other sites More sharing options...
lorbethm Posted November 19, 2007 Share Posted November 19, 2007 Welcome, Maggi. I will be praying for your husband. I think you are wise to get a 2nd opinion immediately. Warm welcome! Lorie Quote Link to comment Share on other sites More sharing options...
Muriel Posted November 19, 2007 Share Posted November 19, 2007 Hello Maggi and welcome.I'm really glad that you didn't wait to get a second opinion. Let us know what the radiation Onc. recommends. Glad you found us. Muriel Quote Link to comment Share on other sites More sharing options...
trish2418 Posted November 19, 2007 Share Posted November 19, 2007 Welcome, Maggi. I'm sending prayers that treatment goes well for Ben. Trish Quote Link to comment Share on other sites More sharing options...
carolhg Posted November 19, 2007 Share Posted November 19, 2007 Welcome Maggi, I am very happy to hear that you got a second opinion right away. We must be assertive when it comes to our own and our loved ones health care. I will be praying for you and your husband that the radiation treatment is successful. Carol Quote Link to comment Share on other sites More sharing options...
Guest maggi Posted November 19, 2007 Share Posted November 19, 2007 thanks to all of you for the warm welcome and the interest. we saw the rad/onc today and she said it was within the area txd with radiation and could be scarring but not inflammation from radiation which was completed last November...since we've recently been in Italy with all the diesel fumes and smoke she thought it could possibly be an inflammatory reaction to the ambient irritants, especially since the scan was less than 2 weeks after we came home..in any event, she said it was too small to bx but that we shouldn't wait longer than 3 months for another scan..she also said that PETs are extremely sensitive and sometimes can pick up things that aren't really important....so, we'll remain positive and focused during the wait...I appreciate the support. blessings and light to all, and a happy Thanksgiving Quote Link to comment Share on other sites More sharing options...
fillise Posted November 20, 2007 Share Posted November 20, 2007 Glad to hear that you got some positive news from the Doc. Be assured that you can always vent here. Here's hoping you won't need to! Susan Quote Link to comment Share on other sites More sharing options...
recce101 Posted November 20, 2007 Share Posted November 20, 2007 Hi, Maggi, welcome! I like the radiation onc's answer. A little bit of explanation really helps, doesn't it? And thanks to Connie B for her eagle eye! Aloha, Ned Quote Link to comment Share on other sites More sharing options...
babylove91297 Posted November 20, 2007 Share Posted November 20, 2007 Hi Maggie, You have found a great site for hope. There are many survival stories here, when I need a strong dose of hope, I just start reading. You and your husband will be in my prayers. Bobbie Quote Link to comment Share on other sites More sharing options...
Guest maggi Posted November 20, 2007 Share Posted November 20, 2007 again, thanks to all of you for responding and the good thoughts..yes, a little explanation/information goes a long way..his next PET will be 1/28 and I'm hoping for good news. Ned, I lived in Kailua for awhile while working in Honolulu, which island are you on? blessings and light Maggi Quote Link to comment Share on other sites More sharing options...
bunny Posted November 20, 2007 Share Posted November 20, 2007 welcome, Maggi and husband. just to give you some hope, my mom's NSCLC came back after a couple years' worth of clear scans and she is now cancer-free again. it was definitely scarier to have it come back, versus the 1st time (which was scary enough, lord knows!) hang in there, and keep us posted. Quote Link to comment Share on other sites More sharing options...
recce101 Posted November 20, 2007 Share Posted November 20, 2007 "maggi" Ned, I lived in Kailua for awhile while working in Honolulu, which island are you on? Maggi, sending you a PM (Private Message). Click "My Mail" at the top. Aloha, Ned Quote Link to comment Share on other sites More sharing options...
MsC1210 Posted November 21, 2007 Share Posted November 21, 2007 Welcome to the boards Maggi and Ben Let us know how we can help... Christine Quote Link to comment Share on other sites More sharing options...
Guest maggi Posted November 21, 2007 Share Posted November 21, 2007 thank you, Christine..I'm sorry for your loss. how can I add the info about Ben to my posts? I appreciate the info and the support Quote Link to comment Share on other sites More sharing options...
MsC1210 Posted November 21, 2007 Share Posted November 21, 2007 Maggi Thank you.. You can fill in your profile by clicking on "My Profile" at the top of the page. Let me know if you need any help Warmly Christine Quote Link to comment Share on other sites More sharing options...
Don M Posted November 25, 2007 Share Posted November 25, 2007 Welcome Maggi Don M Quote Link to comment Share on other sites More sharing options...
barbara5452 Posted November 26, 2007 Share Posted November 26, 2007 Welcome Maggie and Ben, prayers your way.... Quote Link to comment Share on other sites More sharing options...
Maryanne Posted November 27, 2007 Share Posted November 27, 2007 Just wanted to welcome you to our family. It looks like your Onochologist may be on the right track. Hang strong, I know how you feel. Keep a positive attitude as that is half the battle. I pray all works out for Ben. Maryanne Quote Link to comment Share on other sites More sharing options...
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