Ellen D Posted January 2, 2021 Share Posted January 2, 2021 Hi, my name is Ellen. My dad (77) was diagnosed with stage IIIC NSCLC in September after being taken to the hospital for a-fib. Less than a week later he had a stroke (thankfully, he’s almost fully recovered from that other than some weakness on his left side). Once he was deemed “stable” he started radiation. The radiation seemed to really do a number on him - he became incredibly weak, developed pneumonia and blood clots in his lung and ended up back in the hospital. It got to the point where the doctors said their hands were tied - to treat any one thing would negatively impact something else. So my dad opted to go home on hospice care (because he was too sick to be released otherwise). We were very clear with hospice that our goal was to give the radiation a chance to work and for my dad to get stronger so he could start radiation. That plan seemed to work. 3 weeks later he went off hospice (yay!) and met with the oncologist. They did scans which showed no change and decided to start him on Keytruda (4 rounds - 1 every three weeks) to allow him to gain a little more strength before doing chemo. He had his first infusion 3 weeks ago (he next one is scheduled foe this coming Tuesday). He seems more much more tired and weak again. I’m assuming this is normal? His chief issue now, though, is extreme back/hip pain. He’s always had pain there but it’s excruciating at times now. They even had to call the paramedics earlier this week to help him get up and out of his chair. I encouraged them to call the oncologist because I read joint/hip pain is a possible side effect of Keytruda. The oncologist called in a pain killer for him which seemed to be working at first but now he’s in a lot of pain again when he coughs, which is frequently. I know this is a long post - but I guess my question is has anyone else had such a rough go and is now living comfortably - with a good quality of life? It hurts so much to see him struggle and suffer and I just want to know if there’s hope that this will all pay off for him? Given his struggles with treatment, I’m worried about chemo. I also feel like I’m living each day waiting for the other shoe to drop. I can’t even imagine how it is for my dad and bonus mom. Thank you for taking the time to read this. I look forward to any responses/advice. Ellen Tom Galli 1 Quote Link to comment Share on other sites More sharing options...
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