-Cheryl- Posted May 24, 2004 Share Posted May 24, 2004 I was going to post this in the "Activism" section but admittingly, I do not visit that forum often. As I glance at the forum, I also see very few hits and replies. I recently attended the 1st Annual National Cancer Survivor Seminar sponsored by "Cure Magazine" held in Dallas, Texas. My take on the whole thing was a little different. For instance..., I think the title of the seminar should have been, The 1st Annual National Cancer Survivor(Lung Cancer not included) Seminar. Yes, the lady that runs the mag is a breast cancer survivor and a lot was discussed about that. Cheryl and I kept waiting to hear about the progress in Lung Cancer. Well we waited and waited for naught. LC was touched on very breifly in the main meeting and we thought we would get more in he "breakdown" sessions... one was on LC and was being presented by the main speaker...Dr. Chandra Belani. This guy is from somehere in the Middle East and I was noticing his demeanor before the meeting. The tailor made suit and the "Rolex" caught my attention first off. His cocky swagger caught the eyes of most of the ladies. Yes, I was interested in what he had to say and was looking forward to the session. I mean, as confident as the guy appeared, he must have some great things to say about L.C. This doctor is an Onclogist at some hospital in Pittsburg and maybe some have heard of him...I certainly had not. At any rate, we attended the 2pm meeting where e saw a video on smoking to start things off. The stigma continues and right off the bat, I was not impressed. Then this arrogant SOB went into a 20 minute lightening round discussion on LC and touching on very little. All we heard were percentages... it seems these doctors intentionally try to deflate you so you won't have any hope. They don't want you asking the questions because they can't answer them and again, I got the sense he was just trying to hurry up and get the meeting over. In some of his answers to the attendees, he was actually rude and recommended Phase one trials. I kept raising my hand but was never called upon. My question was simple... how can you go to work knowing you are not going to accomplish what your whole career is about, and also get a big fat check to boot? Who in the hell do you think you are walking around this place like you are God. What is it that you are so proud about? You have done, and offer nothing to your patients but doom and gloom. Don't you realize the patient knows thats a possibility? We payed to come here to hear the knew things with LC not the old news...Wake up for the week... this guy barely even knew about GVAX and obviously didn't discuss it. He did recommend getting on the internet and search for information! Wow, this guy taught me so much and I certainly got my $100 worth! What this guy needs is his *ss kicked for looking down on his patients and not demanding answers from drug companies and researchers. If i was a mechanic and you brought your car into me and I say I cant fix it then I am not going to stay in business long, especially if you paid me, I was arrogant about it and I did not fix it. I am tired of being blown off by these jerks and treated like we are a pain. If they think we are a pain, then we ought to give them a real reason to think we are a pain. I hope all 1100 of the members on the board read this about Belani and tell 1100 more people about him. I will be sending this to him for him to observe. I want him to know that he is not welcome around my house. Got any more asses for Drs. out there?... Let us all know who they are so we can spread the word... there is no sense in future patients having to go thru what others have had to. While we are at it, Shame on Cure Magazine for leaving out LC. You certainly took $50 a pop from these survivors so you could pay your damn doctors who attended but offered us nothing. Call, write or scream, but give them hell. We are a large volume of people that could make a lot of noise if we wanted to. Somebody did it with breast cancer and look at the results. We can either be nice about it all or we can raise hell. If this offends anybody then I suggest you "get over it! Please dont ask what I am doing about it, I am already a step ahead of you...What are you doing? -Jack- P.S. On the way home from the Seminar, Cheryl was brought to tears from diappointment...That pisses me off! Quote Link to comment Share on other sites More sharing options...
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