Cindy RN

Glad they were able to do surgery. Sounds good! I am guessing it is nsclc?? Keep your chin up. Treatment is not that bad PLUS every treatment means you are KILLING off any lingering cancer cells!! Good luck God Bless, Cindy

Isn't it crazy! My kids and I have always stood out under the awning on the back porrch to 'watch' the weather. Last night tho when the sirens went off I took some things to the basement (pugs included) THEN went out back. The hail was pea size but it continued for more than 5 min.! I would love to go on one of those week long storm chaser trips! My luck, there would severe storms right here at home and none in Oklahoma! Cindy

I thought I would check in with those in the midwest. I am in southeastern IL and we have been hit hard this weekend. Tonight was the worst. We had a tornado go over the north part of town, it took down several blocks of old really big trees, took the roof off the high school gym We had water in the basement. This is the second time in 9 yrs this has happened. Both times have been this yr! From what I have heard nobody was hurt tho. How about the rest of you?? Cindy

I looked back and he posted March 29th saying he was having trouble concentrating and typing. BUT no idea he was that bad. I am shocked. I am so sorry for you and his family and friends. Cindy

Saw this in the sclc forum. Still hard to believe.

Nope-Never heard that one. I went swimming-just had to be careful of the sun. Cindy

I just can not believe this. I loved his stories. He was a jewel and I will miss him. Cindy

Here's to nothing but good results!!! I have never had brain radiation, is something they can do for multiple tumors?? Cindy

Nancy I am so sorry, I have been in your shoes. My mom died July 1994 of nsclc. She went into a coma on Sat morn and died the following Tues. For pain, I gave her injections of morphine. I have taken care of patients at home before they died. When they were in pain we used an IV pump with morphine. The patient just pushes a button when needed and the machine gave a set amount every hour. It worked well. Hospice can do this at home or in a Hospice unit. My prayers are with you. Cindy

Thanks Katie-You can post-just don't talk! Hope you are better soon-Cindy

Have you had a second opinion?? After 5 years of this--everyone I talk with and everything I have read says 2 chemos such as Cisplatin or Carboplatin are added to another chemo drug-such as VP-16, Camptosar and I think there are a few others. You might want to check into this. Ask her Dr why only the one. Glad she is starting tho. Cindy

Tell your dad that I too second the others here. I had 9 months of chemo in 2001 and 6 months in 2003. Yes I was more tired, bald and had a few off days. BUT!!! I would do it again in a second. There are meds now for the nausea that you take BEFORE it hits so you don't get sick. Encourage him to talk with the Dr about these. Good luck Cindy

I looked to see what it costs to fly to Texas, they show 3 airports. Which is closest? Dallas Ft Worth? or Dallas, or Dallas Love?? From St Louis to Dallas Ft Worth it is 103.00 non stop-not to bad That is thru Travelocity, June - August. Anyone make a decision on dates and where yet??

Congrats!! Marriage is wonderful-as long as it is to the right person!!

Some of the symptoms you are talking about sound like??depression?? The forgetfulness-mood swings?? I think an MRI sounds like a good idea to rule out mets BUT you may want to think about the depression. I was on an anti-depressant the first few yrs. I have not had any for the last 3 yrs., tho if I could afford them again it would probably help. As for the working, look at the financial aspects and whether you can do it. I know that is hard, I went back to work teaching 2 evenings a week. I gave notice and this is my last semester, I just have to believe God will take care of the situation when I do not have the extra income. What about SS Disability?? Cindy

Rick-Thanks so much. You are the best!

ALL RIGHT!!!!!!!!!!!!!!!!

Beth-You are home-glad to hear that the trip had some good times. Cindy

Blessings come from all over. we just have to look-Cindy

Glad there were so many ideas for you. You might want to post some in the SCLC forum. There are so many who have had really good response to chemo that have had sclc extensive, (me too) Hope we can help more-Cindy

WOW!! You really do post alot!! So glad you are here. Cindy

Well I can only say if you want a relationship with your mom, accept her as she is. I am one of those who smoked for yrs. I quit the week I was diagnosed. I started again 2 yrs later -quit for awhile-started again-quit-started------- I wish it was as easy for me as some here makes it sound Your mom is under a lot of pressure, she is the only one to do this. If she is made to feel less than human, she will avoid being around those people. Katie hit it right on the head. Re-read her post. Love, Cindy P.S. I went thru this in the early 90's with my mom-she hid her smoking after the diagnosis because she felt guilty. It took away time we could of spent with her. She came out of the closet after we told her we knew and it was OK. If you want to quit you will, if not, we still want to be with you.

Donna-Glad to see you post-I am so sorry these days must be so hard. Prayers for peace for you. Love Cindy

You still have that crazy humor!! Love it First-Call some of the clubs around you-Legion, Elks, Moose-they have med equip that you can borrow-usually just a deposit is required. Second-there are home health agencies-not hospice-that you may be eligable for, usually ins pays for it. You could have a nurse come in to do blood draws, even a CNA to help with other things around the house you can not do. Ask the Dr about the Home Health. I did that for a yr or 2 before I stated back in the ER. Love Cindy