My best friend since I was in the 8th grade
had the guts to ask me if I still smoke when
I told her I had cancer It made me feel
awful that she of all people would say that.
I hate it that people think I should be over it
by now. I'm early stage, the 16th of this month will be two years since my surgery but since I am
NED, even my family seems to feel I should be beyond
this by now, or more likely they are tired of hearing about it..
Because I belong to this support group I have been told that I am dwelling on it and am actually going to "will" it back into my body. I should have moved on by now and when I am due for scans, no one seems to give it a 2nd thought but me. They don't want to have to worry about me any more.
I think most people still have this naive notion that once NED, always NED.
Like Debi, I wanted to recover at my own home, but didn't get the courtesy. Instead of anyone staying here, I had to go to them. I think that was wrong, I was the sick one, I was the one who needed the comfort of my own bed.
I don't even want to think of what is going to happen in 18 months when I have to TRY to get my own medical insurance. Right now I am on Cobra so I am still covered, but what insurance company will take me with a history of lung cancer and arthritis? I have to wear a pain patch for the arthritis which is very expensive. I shudder to think of my premiums IF I am able to find coverage. I don't qualify for Social Security.
I'm single, what if I want to get married some day, who in their right mind would want someone with a history of lung cancer? HA! I'd think twice before taking on someone like me.
I hate living every day of my life asking myself all of these questions, they are all valid and in addition to them and many many more, I worry every day that this stuff will come back...
I'm tired of being tired, I'm tired of being SOB, I'm tired of the look in people's eyes if I happen to mention this disease because THEY are tired of my mentioning it. I'm just plain tired of this disease.
I am not working right now but chemo did something to my body, I know that when I go back to work, which needs to be soon, I will not have the strength to work full time. I'll be lucky to manage part time.
Oh Sheesh, I could vent a books worth
kathy