tnmynatt Posted June 8, 2005 Share Posted June 8, 2005 Need your prayers in the coming days. Charlie started having pain in his back around T8 at the end of radiation treatments. The rad. oncologist ordered a bone scan to check it out. We are praying that it is radiation damage and not something else. Your prayers would be greatly appreciated. His scan is Monday, June 13th. Just a little nervous. Praying for you all. Take care. Quote Link to comment Share on other sites More sharing options...
Kasey Posted June 8, 2005 Share Posted June 8, 2005 Tina, Here's hoping for only radiation effects! Prayers are started up already. Lots of them by Monday. I am wishing you so much luck with the scan. In my thoughts and many special prayers being said. Kasey Quote Link to comment Share on other sites More sharing options...
SBeth Posted June 8, 2005 Share Posted June 8, 2005 You've got them Tina. Prayers for Charlie and you both. Quote Link to comment Share on other sites More sharing options...
Patkid Posted June 8, 2005 Share Posted June 8, 2005 Many prayers and lots of loving concern and support. Blessings, Brat Quote Link to comment Share on other sites More sharing options...
karen335 Posted June 8, 2005 Share Posted June 8, 2005 Tina, Always in my prayers. I will say a special prayer today for clean bone scans. Done, special prayer sent and more this evening. Let it be just arthur. Please keep us posted. Hugs, Karen Quote Link to comment Share on other sites More sharing options...
J.C. Posted June 8, 2005 Share Posted June 8, 2005 Prayers are there. J.C. Quote Link to comment Share on other sites More sharing options...
DebsSky Posted June 8, 2005 Share Posted June 8, 2005 Prayers coming... Deb Quote Link to comment Share on other sites More sharing options...
Don Wood Posted June 8, 2005 Share Posted June 8, 2005 Prayers comin'. Quote Link to comment Share on other sites More sharing options...
Haylee_38 Posted June 8, 2005 Share Posted June 8, 2005 Prayers on the way. Quote Link to comment Share on other sites More sharing options...
Wendy Posted June 9, 2005 Share Posted June 9, 2005 Hang in there! Prayers being sent. Wendy Quote Link to comment Share on other sites More sharing options...
janetg Posted June 9, 2005 Share Posted June 9, 2005 Prayers are on the way for a clean scan on Monday. Janet Quote Link to comment Share on other sites More sharing options...
karenl Posted June 9, 2005 Share Posted June 9, 2005 Tina Positive thoughts coming your way... Karen Quote Link to comment Share on other sites More sharing options...
stand4hope Posted June 28, 2005 Share Posted June 28, 2005 Hey Tina, I just picked this up on your profile: 6/13/05 - bone scan showed 2 suspicious areas (spine & head). 06/20/05 MRI & CT are CLEAN! False alarm! Thank you God! I ditto that "Thank you God!" That's WONDERFUL NEWS! How is Charlie feeling? Love, Peggy Quote Link to comment Share on other sites More sharing options...
tnmynatt Posted June 28, 2005 Author Share Posted June 28, 2005 Peggy, Check my profile now. The P word. Very disappointing results from his chest CT done on Friday. Nothing seems to work. We will be waiting until July 8th to start something new. I talked to Beth about Avastin via PM. I don't understand how she is able to get it. It isn't approved. Beth: are you on a clinical trial? Anybody have any ideas of a new treatment? The doctor is talking about Etoposide as a backup to Avastin. HELP! Take care. Praying for us all. Quote Link to comment Share on other sites More sharing options...
stand4hope Posted June 28, 2005 Share Posted June 28, 2005 Well, crap! I'm so sorry to hear that, Tina. Don's onc told us before he started the Alimta that there was something else we could do if the Alimta didn't work, and he said "Add Avistan." He said it was "off-label". He said it hasn't been approved for lc, but I didn't think to ask anymore questions about actually getting it administered. We go for Alimta and Zometa again on Friday - I'll ask the onc about that. As always, I'm praying for you guys! Love, Peggy Quote Link to comment Share on other sites More sharing options...
tnmynatt Posted June 28, 2005 Author Share Posted June 28, 2005 Peggy, Thanks for being here for me! I don't know what I would do without everyone's support here. Anything you could find out about Avastin would be greatly appreciated. What a rollercoaster we are all on. I prefer the ups to the downs! The downs really suck! Praying for us all. Take care. Love, Tina Quote Link to comment Share on other sites More sharing options...
Amy P Posted June 28, 2005 Share Posted June 28, 2005 Tina - So sorry to hear about Charlie's progression. I hope you can get the approval to get the avastin - until then, I will keep you and your family in my prayers although I wish I could help more - you were such a big help when I thought Mom had a PE and was absolutely panicked. Know that I am thinking of you! Much Love, Amy Quote Link to comment Share on other sites More sharing options...
Don Wood Posted June 28, 2005 Share Posted June 28, 2005 I also thought of Alimta. Lucie has not tried it yet, but it is on the list. Quote Link to comment Share on other sites More sharing options...
Bill Posted June 28, 2005 Share Posted June 28, 2005 Tina : IMO when trying to secure authorization for a non-formulary or ' unapproved ' drug ask your med onc to submit an ( urgent ) request to the insurance carrier briefly stating in a convincing argument why Charlie needs Avastin NOW and, if applicable, why ( less expensive ) alternative drug(s) that haven't been tried should be bypassed. It doesn't look like Charlie is currently on Tarceva but if he is it could actually help the approval process since Tarceva / Avastin is already a recognized therapeutic combination and your med onc can submit clinical data to back it up. RE: Avastin, I think that the drug has good potential. The only drawback is the potential danger to those patients with a propensity to bleeding episodes. In this case, bleeding in the lungs. Such patients need to be closely monitored and tested. Alimta is another drug worth considering. RE: spinal tumors, I urge you to get an opinion from an interventional radiologist before pursuing any specific tx for that. JMO. Good luck. Quote Link to comment Share on other sites More sharing options...
Nushka Posted June 28, 2005 Share Posted June 28, 2005 Tina, This sucks. I am sorry to hear about these latest troubles. Keeping you in my prayers. Nina Quote Link to comment Share on other sites More sharing options...
Kel M Posted June 28, 2005 Share Posted June 28, 2005 So sorry to read that your Charlie's cancer has progressed. I am praying that the new treatment plan will be successful. Stay strong. Kel Quote Link to comment Share on other sites More sharing options...
Eileen Posted June 28, 2005 Share Posted June 28, 2005 Tina---I am sorry to hear the bad news---I hope you come up with a new course of treatment that works wonders. Regards, Quote Link to comment Share on other sites More sharing options...
Patkid Posted June 28, 2005 Share Posted June 28, 2005 Tina, Hugs for you and Charlie. It is awful. We hate it. Hang on to us as we cling to you. Love Pat and Brian Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted June 28, 2005 Share Posted June 28, 2005 Tina, prayers for the best. Rich Quote Link to comment Share on other sites More sharing options...
MilliBr1 Posted June 28, 2005 Share Posted June 28, 2005 Continued prayers for both of you. Quote Link to comment Share on other sites More sharing options...
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