SDianneB Posted August 23, 2005 Share Posted August 23, 2005 Had a scan last Friday, after 4 cycles of the oral Topotecan. Looking good! Resolution of the smaller spots on my liver, and the one that started out as the largest is but a mere shadow of its former self. Today, I start cycle #5 of oral Topo, hoping it keeps doing its thing. The Oncologist is amazed at her "tough ol' bird" patient, as am I. Blood counts holding up, and fatigue is about the only side effect I'm having so far (knock on wood). She says we'll do 2 more cycles for a total of 6, then rescan and see what things look like and go from there. This was a huge relief, obviously. I was concerned when it started showing up in other places, but knowing that the Topo is working helps a great deal. Di Quote Link to comment Share on other sites More sharing options...
Don Wood Posted August 23, 2005 Share Posted August 23, 2005 Happy, happy news! Don Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted August 23, 2005 Share Posted August 23, 2005 So glad for you! Quote Link to comment Share on other sites More sharing options...
nikkala Posted August 23, 2005 Share Posted August 23, 2005 GREAT NEWS!! Keep up the good work. Quote Link to comment Share on other sites More sharing options...
bunny Posted August 23, 2005 Share Posted August 23, 2005 this is such great news, Di!! I'm so happy. xoxo amie Quote Link to comment Share on other sites More sharing options...
Patkid Posted August 23, 2005 Share Posted August 23, 2005 YAY Quote Link to comment Share on other sites More sharing options...
ginnyde Posted August 23, 2005 Share Posted August 23, 2005 Terrific news Dianne, keep it going. Quote Link to comment Share on other sites More sharing options...
tnmynatt Posted August 23, 2005 Share Posted August 23, 2005 GREAT NEWS! So happy for you. Keep the fight going. Take care. Quote Link to comment Share on other sites More sharing options...
Ry Posted August 24, 2005 Share Posted August 24, 2005 Hey that's great. Since you got a clean bill of health get your butt on the Fay Mobile and hitch a ride (tickets available in the hall pass forum). It's about to pass by your area any time now to get Tina and Teacake. Quote Link to comment Share on other sites More sharing options...
Kaffie Posted August 24, 2005 Share Posted August 24, 2005 You've put up a hard fight, I'm so happy to read your good news. Kathy Quote Link to comment Share on other sites More sharing options...
daggiesmom Posted August 24, 2005 Share Posted August 24, 2005 Great News!!!!!!! Enjoy and be HAPPY!!!!! Joanie Quote Link to comment Share on other sites More sharing options...
Maryanne Posted August 24, 2005 Share Posted August 24, 2005 Hi Diane, Soooo glad to hear your good news!!! Keep it comming Maryanne Quote Link to comment Share on other sites More sharing options...
Kasey Posted August 24, 2005 Share Posted August 24, 2005 I am reading this post just as I am about to turn off the computer for the night. Gosh, it makes my day! Prayers for continued success, Di. Kasey Quote Link to comment Share on other sites More sharing options...
shineladysue Posted August 24, 2005 Share Posted August 24, 2005 Wonderful news Di. So, very happy for you. Sue Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted August 24, 2005 Share Posted August 24, 2005 great news Di... so glad to hear. Cindi o'h Quote Link to comment Share on other sites More sharing options...
Addie Posted August 24, 2005 Share Posted August 24, 2005 As you well know, dearie...I'm so pleased that the oral Topo is taking such good care of you...and that you continue to feel well. Such a little experimental project, you are! Granted, you're a few cycles behind me and taking it orally as opposed to infused....but let me know if/when you start noticing any itchy neuropathy in your extremities...will you? My left foot (why does that sound like a movie? ) is giving me FITS. Itches to where I want to stick my foot in a paper cutter and lob it off. Left side and sole of left foot and the ankle. Itches all the time. Benadryl helps and benadryl cream....but not 100% Quote Link to comment Share on other sites More sharing options...
gail p-m Posted August 24, 2005 Share Posted August 24, 2005 Dianne-- So happy your Topetcan (sp?) seems to be working for you and with few side effects too. Will be crossing fingers for more good news from you in the near future. gail p-m Quote Link to comment Share on other sites More sharing options...
jang Posted August 24, 2005 Share Posted August 24, 2005 Great news Di! I hope it continues to work for you. Quote Link to comment Share on other sites More sharing options...
SBeth Posted August 24, 2005 Share Posted August 24, 2005 I'm thrilled for you Di! The end of August is going to be filled with good news! Quote Link to comment Share on other sites More sharing options...
SDianneB Posted August 24, 2005 Author Share Posted August 24, 2005 Thanks, you guys. This comes on the heels of getting my mother settled in the assisted living place where she now has no time for her kids - ha! She will be 92 on Saturday, has made lots of friends there - more than she's had in 30 years, as she was working full time then. She even plays Bingo! This woman is NOT the Bingo type, but she loves it -- won 75 cents the other day! So that is really GOOD news for the family, and I was of course glad to contribute my own good news. Ry - isn't that going to get me in to really big trouble joining that caravan? If not, I ain't goin'! Addie - no itchies as of yet. I had the worst itching when going through the gallbladder stuff. One of the nurses at the first ERCP told me that was one of the symptoms -- she could see on my back where I'd been scratching. It started on my forearms and feet - like the worst athlete's foot you could imagine, except different. The bile that was supposed to be going in and out of the ducts, vessels, liver, gallbladder, etc., wasn't going through the right channels, so was basically "floating around" my system! Ick. Once I got the stent placed, it was all better, and hasn't come back. For any of the rest of you who have had or may get Topotecan, it's great stuff as far as I'm concerned! The study I'm in is just to compare the oral/coated capsule form with the IV. It seems to be working well on me! I get at total of 25 mg. over a 5 day period; 5 mg. worth of pills each day, then 2 weeks off, another 5 day cycle of 25 mg., 2 weeks off, then a scan to check progress. Oh, how I do treasure these good days, and wish for the very same for all of you. Di Quote Link to comment Share on other sites More sharing options...
Ann Posted August 24, 2005 Share Posted August 24, 2005 So great to hear this news!!! You're absolutely right! Keeping one step ahead is a very good thing. Hey...that could be a hop ahead...a jump ahead...it really doesn't matter, as long as you're keeping ahead!! So glad to read this news. Hope the Topetecan continues to do its thing for you! Quote Link to comment Share on other sites More sharing options...
Leslie221 Posted August 24, 2005 Share Posted August 24, 2005 WOOOHOOO!!! GREAT NEWS!!!! But, what do you mean "tough ol' bird?" You're only two years older than I am! We're only "tough middle-aged birds!" So, from one TMAB to another..your news is really TWEET! Leslie Quote Link to comment Share on other sites More sharing options...
mamasbabygirl Posted August 24, 2005 Share Posted August 24, 2005 Di, That is awesome news and you certainly deserve it! Smile... Quote Link to comment Share on other sites More sharing options...
Kaffie Posted August 25, 2005 Share Posted August 25, 2005 Dianne, This has been such a long hard haul for you, I'm sooo glad for the good news Kathy Quote Link to comment Share on other sites More sharing options...
Calintay Posted August 26, 2005 Share Posted August 26, 2005 Glad to hear it is working Quote Link to comment Share on other sites More sharing options...
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