tnmynatt Posted December 19, 2005 Share Posted December 19, 2005 Things have been crazy and I haven't had time to update (or read for that matter). We had our church drama this weekend and the choir members were angels. We had 4 services. It was wonderful and so much fun! Anyway, we did get Charlie's results on Friday morning. We were concerned because he started having back pain on Monday night. The back pain turned out to be 2 small bone fractures from the coughing he has been doing. The Innohep for thinning his blood is hard on the bones. No cancer though! The scans showed that all the tumors had shrunk some more and there is nothing new. Hallelujah! Now the sad news--Charlie's Aunt Sarah lost her battle with Multiple Myeloma this morning. She deteriorated rapidly--seemed like the neurological damage that everyone has been talking about with WBR, but she didn't have any radiation. I really think it could have been side effects of the chemo. Very sad...she was such an active person until four months ago. I really don't know how to finish this update. I just feel soooo exhausted. Merry Christmas! Quote Link to comment Share on other sites More sharing options...
carolhg Posted December 19, 2005 Share Posted December 19, 2005 Please know that you and your dad are certainly cared about and I am so sorry for your loss. I pray that God be with you. Quote Link to comment Share on other sites More sharing options...
Don Wood Posted December 19, 2005 Share Posted December 19, 2005 So glad that Charlie's results are so good. Enjoy the holidays. Don Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted December 19, 2005 Share Posted December 19, 2005 Tina-- Glad to hear that about Charlie. Enjoy the holiday season. Rich Quote Link to comment Share on other sites More sharing options...
Nushka Posted December 19, 2005 Share Posted December 19, 2005 So glad Charlie got good news. I hope his pain is under control no matter what causes it. Happy holidays. Nina Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted December 19, 2005 Share Posted December 19, 2005 thanks for the update, Tina. Join in with the gang for some holiday eggnog at the pub... (sorry about Charlie's aunt..darnit) Cindi o'h Quote Link to comment Share on other sites More sharing options...
ginnyde Posted December 19, 2005 Share Posted December 19, 2005 Tina, this is really good news for Charlie, that is a very nice Christmas present. Did he get something to help with his back pain? I am sorry about Charlie's Aunt Sarah. Quote Link to comment Share on other sites More sharing options...
Jyoung20 Posted December 19, 2005 Share Posted December 19, 2005 Tina, Take a breath. That's wonderful news about the scans. I am so sorry about Charlie's Aunt Sarah. You and your family are in my prayers. GOD BLESS!! Jamie Quote Link to comment Share on other sites More sharing options...
gail p-m Posted December 19, 2005 Share Posted December 19, 2005 So very glad to hear about Charlie's good scans but very sorry to hear about his Aunt Sarah. gail p-m Quote Link to comment Share on other sites More sharing options...
Ann Posted December 19, 2005 Share Posted December 19, 2005 Tina...I know how difficult this bittersweet news can be. I am so very relieved to hear that Charlie is continuing to progress and the test results were good. I am also very sorry to hear about the loss of his aunt. I know you just want to kick up your heels about Charlie yet are heartbroken about your aunt. Just try and remember to celebrate life right now...the continuing of Charlie's life and the beginning of a new life in heaven for his aunt. Quote Link to comment Share on other sites More sharing options...
MilliBr1 Posted December 19, 2005 Share Posted December 19, 2005 Happy to hear about Charlie. Sorry to hear about his Aunt. Quote Link to comment Share on other sites More sharing options...
Carleen Posted December 19, 2005 Share Posted December 19, 2005 Boy, what a strange bunch of mixed emotions you must be feeling. I am so happy to hear Charlie is doing so well. I wish that you could take that happy news and just celebrate and be joyous, but it seems it is tempered by the sadness of the loss of your aunt Sarah. My deepest sympathies on that loss. I am sure that now Charlie has another ally in heaven, watching over him, supporting him and working on his cure. Quote Link to comment Share on other sites More sharing options...
Fay A. Posted December 19, 2005 Share Posted December 19, 2005 My sympathies on the loss of your Aunt. But I am so happy that there is good news re Charlie's cancer. Have the docs discussed anything to help stablize the bones so Charlie doesn't fracture them when he coughs? Quote Link to comment Share on other sites More sharing options...
mamasbabygirl Posted December 19, 2005 Share Posted December 19, 2005 Way to go Charlie-what a guy!! Quote Link to comment Share on other sites More sharing options...
J.C. Posted December 20, 2005 Share Posted December 20, 2005 My sympathioes for your aunt. Glad for Charlie, hope for fast healing for the broken bones. Prayers going your way for a happy and painless season Hugs J.C. Quote Link to comment Share on other sites More sharing options...
tnmynatt Posted December 20, 2005 Author Share Posted December 20, 2005 Thanks for all the wonderful and caring replies. Fay: Unfortunately, Charlie has to stay on Innohep to keep from clotting. He clots right through Coumadin. The Innohep weakens your bones. He has been on Zometa every 3 weeks since the last compression fracture back in the summer. The dr. originally wanted to switch him to another drug as soon as the FDA approved it. Turned out there were too many side effects with the new drug, too. It was not approved by the FDA and the application was withdrawn. It's like being between a rock and a hard place as they say. If he has any more breaks, the dr. may try the Coumadin again...hopefully, that won't be necessary. Hope you are improving, Fay. Take care all. Quote Link to comment Share on other sites More sharing options...
shineladysue Posted December 20, 2005 Share Posted December 20, 2005 Tina, It is really good news about Charlie. Do hope they control his pain. I'm so sorry to hear about his aunt. I had already sent most of this in PM. My continued prayers to you and yours through the holiday season. Love, Sue Quote Link to comment Share on other sites More sharing options...
Leslie221 Posted December 20, 2005 Share Posted December 20, 2005 No cancer though! The scans showed that all the tumors had shrunk some more and there is nothing new. WOOOOHOOOOO!!!! Merry Christmas, you two! Leslie Quote Link to comment Share on other sites More sharing options...
Maryanne Posted December 20, 2005 Share Posted December 20, 2005 Hi Tina, Great news about Charlie, I was wondering how he was doing and was going to post, but you beat me to it. So glad for the news. Sorry for the news about his aunt. Please send my condolences to him. Have a great Christmas, you should celebrate his good fortune. Peace Maryanne Quote Link to comment Share on other sites More sharing options...
ma's kid Posted December 21, 2005 Share Posted December 21, 2005 Happy Dancin' about Charlie's results! Woooo hooooo! Sorry to hear of Charlie's aunts passing. God bless you both. Libby Quote Link to comment Share on other sites More sharing options...
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