Sam'swifeShirley Posted August 25, 2003 Share Posted August 25, 2003 Hi guys, I don't think I've posted an update in a while. I swore that I would not post on the "good news" forum again but I think this is good news. To remind you, after improving steadily thru April and May, except for my radiation pneumonitis and 24/7 oxygen requirement, I was optimistic. Then my oncologist found a right supraclavicular node that turned out to be metastatic large cell neuroendocrine cancer from who knows where. I was treated for LS-SCLC with six cycles of cisplatin-CPT11 and chest radiation from May-November of 2002. Had the node excised on June 20, 03 and started chemo again, carboplatin and taxotere. I've had three cycles at three-week intervals with pretty nasty side effects including the fact that my radiation pneumonitis has apparently been reactivated. My cough was almost gone and has come back with a vengeance and my pulse ox is getting worse. I also convinced myself that the node in my neck is growing back. The PET/CT showed NO CANCER. There was activity in both lungs consistent with radiation pneumonitis (no surprise). I'm not sure what's next, radiation to the right supraclavicular area, more and maybe different chemo, maybe both. Might have to increase the steroids (arrrrgh). There's hope guys, hang with me. Sam Quote Link to comment Share on other sites More sharing options...
-Cheryl- Posted August 25, 2003 Share Posted August 25, 2003 Sam, Sounds like the arduous treatment paid off! Good for you Sam. Cheryl Quote Link to comment Share on other sites More sharing options...
Donna G Posted August 25, 2003 Share Posted August 25, 2003 Sorry about the radiation pneumonitis but the rest of the post sounded great especially the part about NO CANCER Keep that news coming!! Quote Link to comment Share on other sites More sharing options...
David A Posted August 25, 2003 Share Posted August 25, 2003 Sounds like good news to me, always thinking and praying for you Sam. Quote Link to comment Share on other sites More sharing options...
Remembering Dave Posted August 25, 2003 Share Posted August 25, 2003 Sam, I think I'm addicted to this Board now, ha! I've been wondering how you're doing. I'm so glad to hear the cancer seems to be gone, but darn sorry the radiation pneumonitis is still sticking around. Question: how long can that darn radiation pneumonia last, anyway? My Dave has it now, at least they think (no one can seem to say FOR SURE that the mass on his CT scan and x ray is pneumonia and not another tumor, but all the docs are pretty sure that it is). He is feeling better after a big round of antibiotics but the mass is still there (after a follow up x ray after the antibiotics). I'm just wondering - until his lung scans are CLEAN I will be uneasy. Take care, and it was great to hear from you. God Bless us all, for sure! Karen C. Quote Link to comment Share on other sites More sharing options...
lynn Posted August 25, 2003 Share Posted August 25, 2003 Sam, Excellent CT & PET results!! Hope you start feeling better soon Lynn Quote Link to comment Share on other sites More sharing options...
ginnyd Posted August 25, 2003 Share Posted August 25, 2003 Sam, This is great news. BTW, I would hang by my big toe for you guy. Quote Link to comment Share on other sites More sharing options...
Jenny G. Posted August 25, 2003 Share Posted August 25, 2003 Wow! That sounds like fantastic news to me. I'm so happy for you. I'll be curious to hear what they do next, keep us posted. I had to go to Emory for my PET scan, but now we are getting our very own top of the line PET/CT this week. Keep fighting, it seems to be working and the longer we hang in there, the more options we have. Jenny Quote Link to comment Share on other sites More sharing options...
Don Wood Posted August 26, 2003 Share Posted August 26, 2003 Great news, Sam! Celebrate! Don Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted August 26, 2003 Share Posted August 26, 2003 I am so happy to read this news tonight. God bless you, Peg Quote Link to comment Share on other sites More sharing options...
Fay A. Posted August 26, 2003 Share Posted August 26, 2003 Sam, I think this is good news, too. And I'm glad to hear it! I'm hanging with you, Chemo Sabe... Fay A. Quote Link to comment Share on other sites More sharing options...
LindaMRG Posted August 26, 2003 Share Posted August 26, 2003 NO CANCER?????? HURRAY!!!!!!!!!!!!!!!!!!!! This is wonderful news! Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted August 26, 2003 Share Posted August 26, 2003 Sam That is the best news! So happy for you. Bess B Quote Link to comment Share on other sites More sharing options...
Gina D. Posted August 26, 2003 Share Posted August 26, 2003 Sam, thats great! I am happy to hear all this! Keep it up now! Gina D. Quote Link to comment Share on other sites More sharing options...
Debi Posted August 26, 2003 Share Posted August 26, 2003 Sam, What magical words...no cancer! You have my best wishes...keep fighting the fight!!! Debi 47 years old Stage 1A-nsclc Surgery June 16th, upper, mid lobe removed Quote Link to comment Share on other sites More sharing options...
Marie Posted August 26, 2003 Share Posted August 26, 2003 Great news Sam. There is always hope. I'm hanging with you. Thanks for making my day with your wonderful news. Quote Link to comment Share on other sites More sharing options...
Eileen Posted August 26, 2003 Share Posted August 26, 2003 Oh Sam what great news for you and your family-- -I am so happy for you Eileen nscl stage 1A lobectomy 6/00 Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted August 26, 2003 Share Posted August 26, 2003 Sam Just hearing the words...NO CANCER..... sounds like music. Great news. Sorry about the pneumonitis. I sure can relate. Just hope you don't have to go on steroids. The Prednisone Queen Quote Link to comment Share on other sites More sharing options...
Tiny Posted August 26, 2003 Share Posted August 26, 2003 Sam, Just read your note after having been off the Board for a few days. The news is FANTASTIC!!! For sure we are hanging in there with you and prayers continue for ongoing improvement!!! Sam, Sam, He's our man. If Sam can do it, Then we ALL can! Love and Hugs, Quote Link to comment Share on other sites More sharing options...
SandyS Posted August 27, 2003 Share Posted August 27, 2003 Sam - Sounds good! Just gotta get past this radiation pneumonitis and the problems you had previously with the steriods.............but remember, these are all just side effects! You've been the monster, now you just have to clean up his mess! Hugs and prayers, Sandy Quote Link to comment Share on other sites More sharing options...
Tracy Posted August 28, 2003 Share Posted August 28, 2003 Thanks for sharing such wonderful news...no cancer..wow...I can only hope for the same for all my friends here on this site, and of course for my daddy. Thanks for warming my heart. Tracy Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.