Jackie UK Posted April 29, 2006 Share Posted April 29, 2006 Hello Just wanted to say hi!and thank you for this great site. I have been lurking since February when my dad was diagnosed with NSCLC IIIb and today i thought it was time to lurk no more. I live in the UK with my husband and our 8 yr old son. My dad is doing ok at the moment. He was reluctant to have any treatment at first but the doctors said that he may as well have radiotherapy as it would help him. His only side effect was some scabs on his back and a sore throat which he could deal with. He is eating well and still as active as he used to be so i hope that will continue. My dad is from Ireland and my family are hoping we can take him home for a short break sometime in June before he gets too sick. I am so pleased i have found you guys as i have read so many of your posts and they have really helped me understand what is happening to my dad. take care Jackie Quote Link to comment Share on other sites More sharing options...
Ry Posted April 29, 2006 Share Posted April 29, 2006 Welcome Jackie- I am glad you quit lurking and joined in. I hope your dad's upcoming apt. goes well. Let us know. Rochelle Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted April 29, 2006 Share Posted April 29, 2006 Jackie,welcome to our support family.There are many knowing and caring people.Just about anything that comes up,someone here has been there and done that and can help. Quote Link to comment Share on other sites More sharing options...
Linda661 Posted April 29, 2006 Share Posted April 29, 2006 Jackie: Welcome to the site -- glad you found us. Great to hear that your dad is doing ok. Please keep us posted. Linda Quote Link to comment Share on other sites More sharing options...
SLT Posted April 29, 2006 Share Posted April 29, 2006 Welcome Jackie. Sorry about your Dad, but glad to hear he's doing okay. You will receive great support here. My dad is also older and opted for palliative treatment only...and that was 2 years ago! Take care, Sherri Quote Link to comment Share on other sites More sharing options...
Kasey Posted April 29, 2006 Share Posted April 29, 2006 Welcome Jackie! I remember taking that very scary step from lurker to participant! Hopefully expressing yourself here will be beneficial to you AND to Dad as well. I am interested if there is any more tx planned for him. Let us know how things progress. Kasey Quote Link to comment Share on other sites More sharing options...
Don M Posted April 29, 2006 Share Posted April 29, 2006 Hi Jackie Don M Quote Link to comment Share on other sites More sharing options...
elnodel Posted April 29, 2006 Share Posted April 29, 2006 Welcome, Jackie. There is so much here to learn, as we all have learned as we progress from lurker to participant. By posting my questions and observations, I learned more than I would ever have learned otherwise...and that, in turn, helped when it came to talking to doctors and deciding what to do and what not to do. I know you'll find the same thing true and hope that what you glean from here will help you help your dad make decisions about further treatment. Ellen Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted April 29, 2006 Share Posted April 29, 2006 Welcome Jackie--Glad you found us. Rich Quote Link to comment Share on other sites More sharing options...
Maryanne Posted April 29, 2006 Share Posted April 29, 2006 Welcome Jacki! We love when our lurkers comes out of the shadows. Now we can give you support when you need it. I know how scared you must be but I am so glad that he took treatment. Just spend all the time you can with him. Its a shame they could not find this earlier when he was having problems back in 05'. I pray they could find something that could put him in remission. Take care of yourself and keep us posted. Maryanne Quote Link to comment Share on other sites More sharing options...
Don Wood Posted April 29, 2006 Share Posted April 29, 2006 Welcome, Jackie! Glad you came out of the lurkings and are posting. Sounds like your dad is doing very well, and I hope it continues to be good news. Keep us posted. Don Quote Link to comment Share on other sites More sharing options...
michelepal Posted April 29, 2006 Share Posted April 29, 2006 Welcome Jackie, Sorry about your Dad DX. Praying for your Family.. (((HUGS))) LOve,Michele Quote Link to comment Share on other sites More sharing options...
trish2418 Posted April 30, 2006 Share Posted April 30, 2006 Welcome, Jackie. Wishing nothing but good news for your dad. Trish Quote Link to comment Share on other sites More sharing options...
j ross Posted April 30, 2006 Share Posted April 30, 2006 Hi From a fellow Brit. Wherabouts do you live? My husband was also diagnosed with 3b two years ago. Jennie Quote Link to comment Share on other sites More sharing options...
francesbean Posted April 30, 2006 Share Posted April 30, 2006 Hello and welcome to the boards,Jackie. Quote Link to comment Share on other sites More sharing options...
Jackie UK Posted April 30, 2006 Author Share Posted April 30, 2006 Thanks for the great welcome everyone Hi jennie...I'm in Stevenage Herts but originally from Wiltshire. When my dad was first diagnosed i completely fell apart. I couldn't eat or sleep and cried constantly.I felt better once i had seen my dad but i still get very tearful when i think about what the future holds for my family. I did a lot of research and found lots of info for my mum to read but my mum is reluctant to find out too much info as it scares her. Take care jackie Quote Link to comment Share on other sites More sharing options...
Carleen Posted April 30, 2006 Share Posted April 30, 2006 Welcome Jackie, Glad you found us and have come out of the shadows. I understand how difficult this is for you and for your mom. Does she have access to a computer? Or can you print her off some posts from here. I understand her not wanting information, because what you usually find on the internet is pretty negative and gloomy. But, we have some inpirational and amazing stories of survivors here and people beating the odds. As the wife of a LC patient I know all too well the fears she is having especially with only receiving pallative care. The daily anxiety of what tomorrow will hold can be overwhelming. But it is so wonderful and such a testiment to your dad's will power, and the grace of God that he is doing so well. I pray that he continue to feel healthy strong and peaceful. I pray that whatever treatment your father receives for pain control has the amazing side effect of also shrinking and curing his cancer. Quote Link to comment Share on other sites More sharing options...
j ross Posted April 30, 2006 Share Posted April 30, 2006 Jackie You live quite near me (I live in Harpenden nr. St. Albans.) Is your dad being treated at the Lister? Pleade pm me. Jennie Quote Link to comment Share on other sites More sharing options...
Kaffie Posted May 1, 2006 Share Posted May 1, 2006 Welcome Jackie, I'm sorry your family has to deal with this stuff. As has been said there are many long term survivors here and many who are considered cured. Your mother is wise not to get too involved in the statistics she reads on line. Bring her here, she will get lots of positive support and information Kathy Quote Link to comment Share on other sites More sharing options...
Donna G Posted May 1, 2006 Share Posted May 1, 2006 First may I say welcome. Where your Dad had back and shoulder pain, makes me think he could have a Pancoast tumor. That is what I had and a few others at this site. A Dr. Pancoast described the syndrome when a tumor is in the apex of the lung ( way up high) and it pressed against nerves in that area. Where in the lung is his tumor? Donna Quote Link to comment Share on other sites More sharing options...
Jackie UK Posted May 1, 2006 Author Share Posted May 1, 2006 Hi Donna! My dads tumour is in the apex of his left lung so you could be right. The doctors said the tumour is too near a large vein to do any surgery. Jackie Quote Link to comment Share on other sites More sharing options...
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