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linzy

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Hi,

I'm Linzy, i'm 51 I live in a town called Evesham in the UK.

i'm here because a couple of weeks ago I was in hospital after having a couple of seizures at home and feeling pretty awful, had a CT Scan and was diagnsed as having pneumonia..in my right lung they also discovered a growth at the back of my left lung....I was contacted today by the specialist who told me I would be having a Biopsy very soon....I joined here because I dont feel I can talk to my family yet, I dont want to upset them ...I have a daughter 26yrs old and a son 27yrs old a grandson nearly 3 and another due in december....I just want to cry..i'm just so scared

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Linzy,

Welcome to the site. There are many things that can show up on a CT scan that are not cancer. You will know more after the biopsy. What ever it is it is treatable. Don’t sit around and think the worst. If you explain to your family everything about your test and what you are doing, I am sure they would rather know so they can give you the support that you need at this time. I had my wife and daughter with me when I went to the doctor for my first report. They have been part of my team ever since. If it is nothing then they will be able to share the good news. If it turns out to be something then they will be there for the support that you need. I would talk to your family and not wait. You need them now and I am sure that they want to help. Keep us posted.

Stay positive, :)

Ernie

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Linzy,

Many people have come here in similar circumstances and did not have cancer. The growth can be many things. I know you are terrified...I know it's hard but try talk to your family. Please keep us posted on the test results.

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Hello Linzy and welcome to the place none of us want to be. I sure know exactly how your feeling as far as being scared. I sure wish there were something I could say to you to ease this fear your having to go through.

Waiting sometimes is the worst, but we are here if and when you need an ear or just want to cry and vent.

Prayers coming your way.

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Oh my!...I didnt expect a responce like this...thank you all so much for careing n taking the time to reply, it means so much to me, even more so after reading what youve all been through and still going through..your all so amazing..

I still havent heard when my biopsy will be..probably this week sometime, I just want to get it over and done with...I found my discharge summary from the hospital the other day, ive been trying to understand it, can you help me decipher it?..it goes somthing like this

Primary Diagnosis...Right middle lobe pneumonia

Secondary Diagnosis..Atypical lung mass

Diagnosis notes..

CT head-NAD

CT abdo/thorax-3.2cm oval soft tissue mass situated posteriorly in the left lower lobe.

What does CT head-NAD mean ? does anyone know?

Thank you so much

Love Linda x

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Please try not to "what if". As a daughter, I know how hard it was for my mom to tell me but I have supported her from that moment on. She was actually relieved after she told me. No matter what you can support each other! That is what family is all about.

Try and stay positive

I am sending prayers your way,

Dana

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Well, if the NAD was NED I would say it's "no evidence of disease".

That being said...I know it's terribly hard and you're getting tired of hearing it already :wink: but try to keep the "what ifs" under control. Nothing says "cancer" right now...

As an adult child I can say that Mom letting us help her from the very beginning and sharing what she was going through (including being terrified) helped us to deal with what came later. You might want to give your kids a call and just tell them what's going on so it's not such a shock that you're going through all of this. They could be a HUGE support to you!

Many prayers that the biopsy will be negative for cancer!!! And...welcome!

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Hi, Linda, welcome from the "other" Ned.

I asked my friend Sam Google, and he said in this context NAD probably means "no abnormality detected." So on your CT scan, your head apparently looked okay, or "clear" as some would say.

Just for fun I looked up NED in TheFreeDictionary, and for that it listed "no evidence of disease" as Missy said, but also "nuclear event detector" and "non educated delinquent." Maybe I shouldn't have looked it up...:roll:

Aloha,

Ned

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Thank you dscherer for your prayers and advice, i'm taking it all in and you to Missy, thank you, I'm lucky really as when all this happened I had just moved in with my daughter n her husband after selling my house, used to live 140 miles away, i'm now waiting to move into a rented house which is just across the road from my daughter and just around the corner from my son, they are a fabulous support for me always have been, but I think they find it hard to talk about in depth right now, but they do let me ramble on. :roll:

Ned your post made me smile, I think i'm in the "none educated delinquent" catergory :) never even thought of googling it...doh!...but I do like the sound of "no abnormality detected"...i'll hold that thought...thank you

Love

Linda

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Welcome Linzy. I am sorry you needed to find us, but I am glad you did...as you will get many questions answered along the way. First and foremost, don't let your imagination run away with you just yet. Take this one step at a time, be positive, and no that no matter what it is, you CAN beat it...as there are people here who have.

Stay strong and know we are here for you!

Jen

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Thank you Jen n Mike, you folks are amazing.

Well ive finally got my biopsy through, this Friday at 11.30am, my daughter asked me why I sounded so excited about having this biopsy....I told her, it meant I could stop speculating and finally know what I have to deal with, doesnt make me any less nervous tho :roll: ..any tips on how to keep calm n relaxed?

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Hi Linzy,

"Calm and relaxed" has never been my strong suit with all of this, but I had the help of a therapist and some medication during the worst of all of this, which, for me was during diagnosis and surgery time and for about 6 months after that.

Others have read Bernie Seigel's books and found a lot of comfort there.

Being on this message board and knowing other survivors has helped me tremendously.

Let us know what we can do.

Cindy

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Hi Friends,

Well I had my biopsy on Friday wasnt a pleasant experience in fact if someone told me I had to have it again I dont think I would!....nothing prepared me for that..think i'm a bit of a chicken :cry: ..but its over with now, and i'm feeling good, just have to wait for the results, I dont know how long that will be.

It wasnt all bad tho, there was this fabulous nurse looking after us, she made us laugh so much we almost forgot what we were there for...she was just great :)

Love to all

Linda xxx

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  • 2 weeks later...

I dont even know what to write....sat here looking at the screen and still cant believe what ive been told...it feels so unreal

Had a letter yesterday morning to go into hospital to see consultant/doctor for the results of my lung biopsy, he told me...its cancer and its inoperable cos its spread to to my middle lymph things..probably why ive had a little trouble swallowing down food, he said theres nothing can be done except for some chemo wich wont cure it only supposedly make me feel a little better, but wont give me anymore time, so with or without treatment (chemo)he gave me at the most 12 months :cry:

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Hi Linzy,

I'm sorry I'm late to this thread but felt compelled to respond because of your well-justified disparity. I don't know if I'll be able to type this up before someone else beats me to the "get a second opinion"!

What kind of LC do you have? Are the lymph nodes involved confined to the same area of the chest as the primary? If so, you may still be in an operable stage after chemo and radiation.

Sounds like your doctor isn't being very proactive. Ask for the pathology report, post it to our very own Dr. West at Onctalk.com and see what he says. Wipe that 12 months out of your head. I've learned so much about lung cancer, with the limited information you have given us I would still venture to guess, you are probably very treatable, possibly curable!

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