recce101 Posted March 6, 2011 Share Posted March 6, 2011 I never thought I'd be writing this, but I am. Tuesday night I had some troubling symtoms which, when added to some other concerns I've had the past month, convinced me to go to the most fully equipped ER on this part of the island. Spent 6 hours there Wednesday, had an MRI that was clearly positive for brain mets, saw my medical onc Thursday morning, radiation onc that afternoon, and started WBR the same day. Did the second WBR session Friday, and there will be 8 more over the next week and a half. Still feeling pretty good. If you really want details, I started a thread at GRACE with a rather long post — at this point there are 33 messages in the thread spread across 3 pages: http://cancergrace.org/forums/index.php ... l#msg64692 Aloha for now, Ned Link to comment Share on other sites More sharing options...
RandyW Posted March 6, 2011 Share Posted March 6, 2011 I hope and pray that WBR kills those @#$^%!* deader than than can imagine NED!!! Link to comment Share on other sites More sharing options...
cat127 Posted March 6, 2011 Share Posted March 6, 2011 I'm sorry to read this NED but can't help think that those brain mets don't know who they are fighting with! Hoping like Randy that the WBR kills any cancer cells deader than dead. Link to comment Share on other sites More sharing options...
Andrea Posted March 6, 2011 Share Posted March 6, 2011 Oh man. Sending hugs and love and fighting vibes!! May the WBR zap everything! Link to comment Share on other sites More sharing options...
Snowflake Posted March 6, 2011 Share Posted March 6, 2011 Well, crap, Ned! Glad you are so Johnny-on-the-spot and have your head right in the toaster to get rid of those pesky critters. My thoughts are with you, one step at a time. Link to comment Share on other sites More sharing options...
lilyjohn Posted March 6, 2011 Share Posted March 6, 2011 I just want to add my prayers to all the rest. Praying for a quick recovery and for your name and your condition to be the same again soon, NED Link to comment Share on other sites More sharing options...
Flyman35 Posted March 6, 2011 Share Posted March 6, 2011 Well suck a duck!! Praying those suckers get blasted to smithereens Ned. Denise Link to comment Share on other sites More sharing options...
carolhg Posted March 6, 2011 Share Posted March 6, 2011 Oh Ned I am so sorry that this has happened to you. It like that you got busy right away to get rid of them. Please know that I am sending positive healing thoughts your way and am praying for you. Carol Link to comment Share on other sites More sharing options...
eric byrne Posted March 6, 2011 Share Posted March 6, 2011 Hi Ned, I am so sorry to hear of your results,I dont know what WBR is,but I am praying for you that it is totally effective in wiping out the mets.Please keep us up to date. Link to comment Share on other sites More sharing options...
ginnyde Posted March 6, 2011 Share Posted March 6, 2011 Ned, I am so sorry about this new development but very glad to see that your docs have an agressive plan in place. So I will cross all things and pray hard for success. Link to comment Share on other sites More sharing options...
Annette Posted March 6, 2011 Share Posted March 6, 2011 Horrible thing to read first thing in the morning - but quick action and solid fight plan in place will make things work out - stay solid NED - show us how to fight!!! Annette Link to comment Share on other sites More sharing options...
recce101 Posted March 6, 2011 Author Share Posted March 6, 2011 I really appreciate all the positive thoughts and good wishes, and I'll be sure to keep you updated on any side effects from the WBR (that's whole brain radiation, Eric) as well as what benefits I get later. Much Aloha, Ned Link to comment Share on other sites More sharing options...
Muriel Posted March 7, 2011 Share Posted March 7, 2011 Ned, I am so sorry about this scary turn of events. I'll be praying and sending positive thoughts about the WBR. Muriel Link to comment Share on other sites More sharing options...
JB Posted March 7, 2011 Share Posted March 7, 2011 Sorry to hear this Ned. I should have your story memorized, but I don't. Is this your first run at WBR? Col had a bunch of rounds after her tumor removal. She handled it very well, and we haven't had any issues in the brain since then. Which tells me it worked very well for her. I'm praying you get the same results. Link to comment Share on other sites More sharing options...
Cathyanne Posted March 7, 2011 Share Posted March 7, 2011 Add me to the list of well-wishers! Ned and I were going to meet for lunch yesterday, but had to take a raincheck due to those darn mets. I believe he's getting his radiation treatment at the same facility as my dad got his, and they're excellent. He's in great hands, folks! Ned - you are truly an angel, asking how my dad was and offering your help even as you're going through this. My prayers and blessings are with you. -Cathy Link to comment Share on other sites More sharing options...
Bruce u Posted March 7, 2011 Share Posted March 7, 2011 Ned sorry to hear those results were not better but those mets do not stand a chance in this battle. Take care. Link to comment Share on other sites More sharing options...
Bud Baker Posted March 7, 2011 Share Posted March 7, 2011 Dangit, sorry to read this, Ned. Here's hoping the WBR does great for you. Link to comment Share on other sites More sharing options...
shineladysue Posted March 7, 2011 Share Posted March 7, 2011 (((Ned))), just want you to know that I will be sending lots of prayers and cyber hugs your way. Hugs, Sue Link to comment Share on other sites More sharing options...
Joppette Posted March 8, 2011 Share Posted March 8, 2011 Dang, just found this. WBR kill those mets. Kill 'em, smash 'em. I wish you the best! WBR can be very effective. I'm going to go to Cancergrace to read more. I have a friend dealing with this right now. MI Judy Link to comment Share on other sites More sharing options...
chloesmom Posted March 8, 2011 Share Posted March 8, 2011 Ned, Hate to hear this, but I'm sending all my positive thoughts your way. I am happy that your treatment is going well and I'm confident it will do it's job! Cindy Link to comment Share on other sites More sharing options...
jaminkw Posted March 12, 2011 Share Posted March 12, 2011 Found this Ned. At least I didn't "miss it", it was during my cruise when I was out of contact. Damn, I'm so sorry this is happening to you but you are tough and getting thru it. I have to turn it around in 2 days to get to Orlando and my scans so it will be awhile but I'll catch up with your story on cancergrace. Judy in KW Link to comment Share on other sites More sharing options...
Janet B Posted March 13, 2011 Share Posted March 13, 2011 I hate this news Ned - but I KNOW you can beat those stupid mets!! You are in my prayers - always - Janet Link to comment Share on other sites More sharing options...
dianew Posted March 14, 2011 Share Posted March 14, 2011 Don't know how I missed this -- as someone previously said, those mets just don't know who they are messing with! Positive thoughts and prayers for all the best results. Diane Link to comment Share on other sites More sharing options...
Betts Posted March 24, 2011 Share Posted March 24, 2011 Positive thoughts for you Ned! You are a true hero and have been such an inspiration. I know you can beat this. Link to comment Share on other sites More sharing options...
eric byrne Posted March 25, 2011 Share Posted March 25, 2011 Hi Ned, I just want you to know you havent left my thoughts,I havent heard from you recently, how you are doing?sorry it has to take a post with a gap of 10 days to ask the question all of us here want to know,what is your latest status?.I do feel a little ashamed that in the hurly burly of my own life,I took my eye, off the ball,being too busy to ask myself" How are you doing Ned"Cyber friendships,may be to some ,shallow and meaningless,but not to me,your welcome to me,more than a year ago,remains special to me.JudyKw and Bud also remain in my mind,thank you friend,your words of welcome remain with me,and I can only pray you are responding well to WBR,and can still be my friend for years to come. Link to comment Share on other sites More sharing options...
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