kimblanchard Posted March 13, 2004 Share Posted March 13, 2004 Hi friends, Thought I would give you an update on my dear Bill. Bill needs me for everything right now as movement causes him pain - getting dressed, reaching for things, getting medicine, etc....but I am glad to do it and grateful he is still with me. He is feeling very nauseated and is only drinking Ensure 3 times a day. We don't know if he caught a bug or what. Bill "fired" his oncologist he has been with for over a year. The oncologist who saw him in the hospital agreed to take on his case. Unfortunately Bill had to wait almost two hours to see the doctor Wednesday ( he was running so far behind.) We were in a panic because the oxygen tank was running low - we told a nurse and she got us a new tank and told us to always use their oxygen while we wait. Our new doctor showed us the actual scans on the screen so that we could see the tumors that have grown since December. It was frightening to look at but we wanted to see. The doctor suggested one more chemotherapy combination of drugs for Bill to consider, CPT11 and Temodar. The research nurse is checking to see if insurance will cover it since one of the drugs is experimental when used for lung cancer - it's a brain cancer drug. They did a clinical trial with the combo but Bill doesn't qualify since he has had so much chemo. So we will see what happens. In the meantime, Bill has some new areas of pain so the doctor doubled his Oxycontin prescription and ordered xrays in the afternoon after a bone treatment infusion. Well, it was a long day for Bill and he was feeling pretty poorly anyhow - and he threw up while getting the xray. I got him home and put him right to bed. Can't explain why his arms are hurting so badly since there are no bone mets there. Someone mentioned muscle pain before due to cancer - can't remember the specifics. Anyone remember? Anyhow, I pray that the insurance comes through and that Bill can feel better enough to begin this treatment. Temodar is taken orally by pill for two weeks and the CPT11 is given on days 8 and 15 and then another cycle before scanning at 6 weeks. It is unbelievable how much treatment my beloved has received. This is a nightmare. Sorry so long and thanks for reading all of this. Blessings to each and every one of you, Peg Quote Link to comment Share on other sites More sharing options...
MO_Sugar Posted March 13, 2004 Share Posted March 13, 2004 (((((Peg))))), Gentle hugs to you and Bill. Sounds like things may improve with the new Doctor! I am praying for you all. God Bless, MO Quote Link to comment Share on other sites More sharing options...
Don Wood Posted March 13, 2004 Share Posted March 13, 2004 Peg, thanks for the update on Bill. Lucie and I were wondering. I am glad to hear you all have moved on to another onc -- very wise. I will keep you in my prayers. Don Quote Link to comment Share on other sites More sharing options...
gail Posted March 13, 2004 Share Posted March 13, 2004 Thank yo so much for keeping us updated. You know we are standing right beside you and supporting you through this ordeal. Many prayers your way. gail Quote Link to comment Share on other sites More sharing options...
DeanCarl Posted March 13, 2004 Share Posted March 13, 2004 Peg, That was me about muscle weakness and pain due to the cancer itself rather than chemo or radiaiton. I have never had chemo or radiation and still experience muscle pain and weakness so I asked my doctor about it. He explained to me, after doing his own research, that in SOME cases the cancer produces some kind of hormone that attacks the muscles. In my case it's the muscles in my legs that got hit the hardest with some minor affect in the arms. The unfortunate thing is there isn't much that can be done about it other than treat the cancer itself. So here's a BIG prayer going out that the insurance covers Bill's new treatment and that it does the job! Dean Quote Link to comment Share on other sites More sharing options...
Elaine Posted March 13, 2004 Share Posted March 13, 2004 Peg You and your family are in my thoughts and wishes for all things good. Elaine Quote Link to comment Share on other sites More sharing options...
Fay A. Posted March 13, 2004 Share Posted March 13, 2004 Peg, I am very glad that you were able to find someone else to treat Bill. Quote Link to comment Share on other sites More sharing options...
Guest Posted March 13, 2004 Share Posted March 13, 2004 Prayers and hugs going out to both of you right now. Wishing you all the best. Gloria Quote Link to comment Share on other sites More sharing options...
Joe B Posted March 13, 2004 Share Posted March 13, 2004 Peg, My sincere prayers are being said for Bill & you. Take care.... Joe Quote Link to comment Share on other sites More sharing options...
Guest Posted March 13, 2004 Share Posted March 13, 2004 Dear Peg, I am glad there is some hope back in your life. The new onc. sounds like a God send. Hope Bill is feeling better and that the pain meds are helping. As others have said, know that in spirit we are all here beside you. Love, Ginny Quote Link to comment Share on other sites More sharing options...
cathy Posted March 13, 2004 Share Posted March 13, 2004 Oh Peg, You and Bill are in my prayers. Hopefully the new plan will do the trick and kill all those nasty cells. Also hoping Bill gets some relief from his pain and nausea... Quote Link to comment Share on other sites More sharing options...
sharyn Posted March 13, 2004 Share Posted March 13, 2004 I pray that things take a turn for the better for you and Bill. Love, Sharon Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted March 14, 2004 Author Share Posted March 14, 2004 Peg, I’m so sorry to hear of the tribulation Bill and you are facing. It is fortunate that you have found a new Oncologist to help you. Keep the pain medication level up so that Bill can rest and gain strength. I hope the new drugs will improve things fast. Dan Quote Link to comment Share on other sites More sharing options...
Ry Posted March 14, 2004 Share Posted March 14, 2004 I am glad you have found a new doctor you both feel comfortable with. It sounds like he is going to work for you and do his best. Thinking of you both. Rochelle Quote Link to comment Share on other sites More sharing options...
Guest Posted March 14, 2004 Share Posted March 14, 2004 ((((Peg))))) I am glad you have a new DR. that is giving you the hope and new treatments. I pray that he will start feeling better with the pain meds. I think of you often. Love Cindy (I know it says guest but it is CindyRN) Quote Link to comment Share on other sites More sharing options...
cathyr Posted March 14, 2004 Share Posted March 14, 2004 Peg, My heart aches for you and Bill. My prayers are with you both. Thank you for keeping us informed as to Bill's progress. We are family here and we send you strength and hope. CathyR Quote Link to comment Share on other sites More sharing options...
Candy Posted March 15, 2004 Share Posted March 15, 2004 Peg, I hope your new doctor is wonderful! I am sending prayers with everyone else's. Hugh experienced arm pain when he took decadron. Quote Link to comment Share on other sites More sharing options...
-Cheryl- Posted March 15, 2004 Share Posted March 15, 2004 Prayers from Dallas, Peg... and keeping you in our thoughts. Cheryl and Jack Quote Link to comment Share on other sites More sharing options...
TheresaKB Posted March 15, 2004 Share Posted March 15, 2004 Peg, Prayers going for you and Bill Theresa Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted March 15, 2004 Share Posted March 15, 2004 Prayers are on the way from this paret of the country also,Hope that the insurance comes thru for you and Bill. Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted March 15, 2004 Share Posted March 15, 2004 Prayers are on the way from this paret of the country also,Hope that the insurance comes thru for you and Bill. Quote Link to comment Share on other sites More sharing options...
J.C. Posted March 15, 2004 Share Posted March 15, 2004 Prayers going, Peg. Hoping the new treatment do wonder, after the insurance cover it. J.C. Quote Link to comment Share on other sites More sharing options...
norme Posted March 15, 2004 Share Posted March 15, 2004 Peg, don't forget with more pain meds you also need to give him more meds for constipation. He sure is one tough guy. I wish I could give him a big hug....you and daughter too. God Bless.... Quote Link to comment Share on other sites More sharing options...
Guest Posted March 16, 2004 Share Posted March 16, 2004 Dearest Peg, Thanks so much for the update on Bill. I am so sorry you both have to go through so much. I continue to pray that the new chemo brings success and that Bill gets some relief from all his pain. Hugs to you. I wish so dearly I could make it all better. Quote Link to comment Share on other sites More sharing options...
Andrea B. Posted March 16, 2004 Share Posted March 16, 2004 The last post was from me. Forgot to log in after all the changes to the site! Quote Link to comment Share on other sites More sharing options...
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