TAnn Posted May 6, 2004 Share Posted May 6, 2004 Hi everyone, I got the results of my latest CT scan from my onc. yesterday. Unfortunately, my tumor has grown. The good news is that the tumor started out at 2.9cm, then it shrank to 1.8cm and now it has grown to 2.2cm. So, it is still smaller than when first diagnosed. The bad news is that I also have some small nodules in the OTHER lung that have grown. They are very small, 1 to 2 ml have grown to 3 to 4 ml. This all represents progression and therefore I have been taken off the clinical trial ZD-6474. It was a double blind trial, and we do not know if I was even getting the drug. My thinking is that I was not. I never had any side effects and now the tumor has grown. We decided to try Iressa. I had my first dose today. My dr. says that it seems to work best for non-smoking women with adenocarcinoma, which is me. So, hopefully this will work, with not too many awful side effects. Also, I am still having excruciating pain from the Denver Catheter put in 4 weeks ago. The pulmonologist says this is very uncommon and I have an appointment on Monday to have the tube removed. We are not getting much fluid at all when draining, so I will be glad to get it out. I only hope they can figure out what has been causing so much pain. TAnn Quote Link to comment Share on other sites More sharing options...
Ry Posted May 6, 2004 Share Posted May 6, 2004 I am sorry to hear your clinical trial did not help the progression of the cancer. I hope the Iressa does the trick for you. When the stuff works, it works. Good luck with it. Rochelle Quote Link to comment Share on other sites More sharing options...
Don Wood Posted May 6, 2004 Share Posted May 6, 2004 TAnn, thanks for your update. Sorry the trial thing is over, but hoping Iressa will be the ticket for you. Hang in there. Don Quote Link to comment Share on other sites More sharing options...
J.C. Posted May 6, 2004 Share Posted May 6, 2004 Here is hoping the Iressa works. J.C. Quote Link to comment Share on other sites More sharing options...
mhutch1366 Posted May 6, 2004 Share Posted May 6, 2004 TAnn, Now you know you're getting strong chemo, here's hoping those lil ole tumors dry up and blow away.... Chin up, kid. Still smaller than when you were diagnosed. When the Iressa scores, it scores.... Prayers, always. XOXOX MaryAnn Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted May 6, 2004 Share Posted May 6, 2004 Good luck on the Iressa and for getting the drain out. At least you will know for sure what you are getting now. Hope it works great for you. Margaret in Iowa Quote Link to comment Share on other sites More sharing options...
MO_Sugar Posted May 6, 2004 Share Posted May 6, 2004 TAnn, Sorry the study did not work for you. I think you are right that you may not have been getting the drug to start with. I pray the Iressa does it's thing for you! You are in my prayers! God Bless, MO Quote Link to comment Share on other sites More sharing options...
sharyn Posted May 6, 2004 Share Posted May 6, 2004 TAnn - Here's hoping the Iressa kicks butt!!! I agree that you were probably not getting the drug in the trial. I have a good feeling this Iressa is going to work for you!!! Sending up prayers. Love, Sharon Quote Link to comment Share on other sites More sharing options...
Margaret Posted May 6, 2004 Share Posted May 6, 2004 TAnn, I was on the Iressa/ZD6474 double blind clinical trial for nine months and took two pills (undetermined as to which drug was being used, but definitely one of the two). I was switched to the other drug when one stopped holding me stable. I hope Iressa will be effective for you...when it works, it really works. Blessings, Margaret Quote Link to comment Share on other sites More sharing options...
David A Posted May 7, 2004 Share Posted May 7, 2004 TAnn, wishing you the very best. Quote Link to comment Share on other sites More sharing options...
Melinda Posted May 7, 2004 Share Posted May 7, 2004 TAnn, Joining in on the chorus of "May Iressa Knock Your Cancer's Socks Off!" I am glad that your doctor wasted no time in getting you on it! I also hope they can relieve your pain from the catheter. Please keep us posted--you are in our thoughts. Melinda Quote Link to comment Share on other sites More sharing options...
TBone Posted May 7, 2004 Share Posted May 7, 2004 Hi TAnn, I know you are disappointed in the trial and in the progression and I am sorry that it didn't work for you.Look on the bright side.You are still in better shape than you were.You still have some shrinkage from what was originally there.I am praying that Iressa does the trick for you.Sounds like you are a just the type that it will help.Keep your chin up and try not to fret too much on the other not working or whether or not you actually had it.I can see where that would only bring you down.Let us know about Iressa.I have a feeling it will do wonders for you.Praying for us all.TBone Quote Link to comment Share on other sites More sharing options...
gerbil runner Posted May 7, 2004 Share Posted May 7, 2004 TAnn, keep your chin up. Prayers going out that Iressa knocks out the tumors. Quote Link to comment Share on other sites More sharing options...
berisa Posted May 7, 2004 Share Posted May 7, 2004 TAnn, hang in there. You still have options. Iressa does work on some buddies here. It is not a totally bad news as you find the progression at very early stage. Hope Iressa works well on you. Quote Link to comment Share on other sites More sharing options...
-Cheryl- Posted May 7, 2004 Share Posted May 7, 2004 TAnn, The catheter has been so painful. I admire your strength! Prayers are offered that Iressa does the trick! Cheryl Quote Link to comment Share on other sites More sharing options...
jamie Posted May 7, 2004 Share Posted May 7, 2004 TAnn, Sorry to hear about your "little" stebacks, but your still better than before, Im sure that this has been a bumpy road for you. Keep thinking positive, and Im sure Iressa will help. My dad has not had it, but it seems to be working for alot of people here. The best of luck to you... things will start to turn up.... Jamie Quote Link to comment Share on other sites More sharing options...
Nushka Posted May 8, 2004 Share Posted May 8, 2004 Hoping that the Iressa is the drug for you. Sorry that you are having so much pain from the catheter...maybe that will stop when it is removed. Thinking about you. Nina Quote Link to comment Share on other sites More sharing options...
Elaine Posted May 8, 2004 Share Posted May 8, 2004 TANN, Sorry I haven't written sooner. Just couldn't find the emotional strenght to post, don't know why. I am so glad you are getting that catheter out. Not as glad as you probably are, though. Iressa seems to be a perfect match for you so I am praying it does its wonders for you. Elaine Quote Link to comment Share on other sites More sharing options...
Pamela Posted May 8, 2004 Share Posted May 8, 2004 TAnn, My prayers are with you as you start Iressa. Pam Quote Link to comment Share on other sites More sharing options...
Lisa O Posted May 9, 2004 Share Posted May 9, 2004 TAnn, I pray the Iressa is your answer. Keep us posted. Quote Link to comment Share on other sites More sharing options...
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