Bob's wife Jo just called me and said she needed to talk. She goes to a small prayer service on Sat. mornings at her church, and one of the ladies who attends walked to her car with her afterwards ad asked how Bob was doing. When she told her about the new mets showng up on his PET, the woman told her when it goes to the bone it is pretty much a hopeless situation! Poor Jo, she was really stressed. This person had in the last couple of years lost her husband to cancer that metastisized to the bone, so Jo understood why she was saying this, and said she is not a mean spirited person at all. What she asked me is, according to the research I have done and the communication I have here, did I think the lady was telling her the truth. I said NO it is never a "hopeless case". But then we did talk about that I think Bob's GP is in denial since he is a close friend, and I think he is not moving fast enough. Bob has had the symptoms as you all know of these mets for at least 2 to 3 months, and the doc kept looking at all sorts of other things, like maybe it was an infection or edema, ect ect. Well now finally he is admitting it is mets, but still Bob is seeing a urologist and a radiologist and an oncologist in the next "couple of weeks." He did see one oncologist who is going out of town for 8 weeks so now he is referred to another one and wont see him till after he sees the urologist in Detroit and the radiologist next week. I told her I really felt we were losing valuable time and that while i surely thought Bob could get into remission possibly, that time is of the essence. The bone met on his spine could cause lots of trouble and the aortic lymph seems like it could too. Also he has prostate as another primary, a small spot on his right lung, and a pubic bone met. All pretty small for now, but all showing up since his Feb. PET. New hot spots, I mean that showed up in August and werent there in Feb. So all in all I was able to say some stuff that I felt needed to be said, and she was very open and in agreement about their GP being in denial because of his personal relationship with them. She said "well what can we do now" and I said well first of all we can lean on the new docs heavily to get going on treatment and of course we will pray. She thanked me for being in the fight with them and my hubby too, and said we are all they have for support. I said, nope, you have the prayers and thoughts of lcsc too.
I am going to read her some posts that will encourage her. Told her of lots of stage IV people who are still having quality of life. Bob is going to be restaged also.
Thanks for listening to this, any advice would of course be welcome.
Love and Prayers for you all!!