At my initial meeting with the oncologist, I didn't know what end was up and had no idea anything about cancer even though it had claimed two brothers' lives.
I knew my cancer was advanced. I asked about trials. The doctor left the room briefly and said that a nurse was going to look up current trials to see if there was something there for me. He checked back and said there was one with thiladomide and something else. At the next appointment he said that he decided that the current therapy is the one that he recommended. I didn' ask him on what he based this decision, and I was too naive to ask any farther. In hind sight, I wish I would have been a study participant. I hear they are cared for more closely. I did NOT like this doctor or nurse or the way that I was treated for my lung cancer. I would never, ever go there again. Maybe if I were in a study, I would have had a different experience.
As it is, I am still alive so that's good, but, my lung/heart is fried, that's not good.
Just thinking outloud.
Anyone with study experiences to share? What's it like?
Cindi o'h