Justakid Posted February 16, 2005 Share Posted February 16, 2005 Saw my surgeon and I don't really know why I feel better, but I really trust him. Maybe because we went through surgery, maybe it's because he and my Mom got into a big fight when I was first dx. Don't know what it is but he has a calming affect on me. Maybe I should go hang out with him for a few weeks till I'm feeling better. The dx is really no better, we spent a long time going over everything. He said he has never seen anything like it before. He explained that to go into the other lung that the disease has to travel through your body, I told him about the clean spleen, adreanal and brain....and he said, I know. I asked him what he would do if it were him, he said do chemo a couple times, have a pet and ct scan to see what's happening. The nodules are not as big as I thought, why do doctors like to compare things to veggies. I have pea's like Dave did! The largest is the size of a pea. He doesn't believe that it is SCLC instead of the original dx of NSCLC, he liked the fungal infection suggestion, we discussed that. He said regardless.....I am young and have LC, do the chemo, afterward he will see if he can get in there and take a look, if necessary. He said there may be one good area on the left side that he can get to. I asked about going to a large cancer research area and he said that if it would make me feel better then to go....we discussed that in detail. He didn't want me to get to excited about the fungal infection but did say that until we could prove it wasn't cancer we needed to treat it like cancer and proceed from there. My mom and husband feel a lot better after talking to him, I was high on Xanax so I was just sitting there grinning at him trying to ask intellegent questions. I gave my mom and husband the questions to ask before we went, just in case. Just not sure how I feel, maybe I'm preparing for tomorrow and the poison infusion. Gonna do som research on the various trials and treatment centers you all have suggested and research these fungal infections. That's all I know for now......still scared, apprehensive and dumb-founded! Quote Link to comment Share on other sites More sharing options...
Andrea Posted February 16, 2005 Share Posted February 16, 2005 Beth, That sounds like positive news. I hope Atlima knocks the heck out of it if it is cancer, but of course hope it is not. Are you considering going to a larger cancer center for a second opinion? I personally would research the world class top people, and call t hem just to see if they can help. Just a suggestion, like the surgeon said you are so young, aggressively they can knock it all out and you can go back to being a normal mom :) Quote Link to comment Share on other sites More sharing options...
BeckyCW Posted February 16, 2005 Share Posted February 16, 2005 Beth, just wanted you to know I'm thinking of you and glad you're feeling better about things after talking with the doc. Now if you and Dave can just get rid of those beans (or peas and/or any other bodily veggies), we'll all be happier campers. BeckyCW Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted February 16, 2005 Share Posted February 16, 2005 Beth. I think it is a great idea that you go to stay with him if he has that calming effect on you. Did ja ask him if he has room for you?? I am sure that he would be happy to put you up! I think it is just great that he gave you so much reassurance. I am so glad that your Mom and Kurt were there with you. Aside from the chemo that you have to go through, I think just getting prepared mentally for this next battle is your biggest challenge and it sounds as if this doctor is completely in your court. I hope that you do stay in close contact with him somehow. Could you write a note of thanks to him to let him know how much confidence that he gave to you? And then ask him if he will give you some power talks along the way as you need? I think about you all the time and pray that the Alimta will work a miracle for you...against this cancer or even against this fungus...but BEGONE...whatever it is.. love, Cindi o'h Quote Link to comment Share on other sites More sharing options...
Remembering Dave Posted February 16, 2005 Share Posted February 16, 2005 I have been worried about Beth. She knows my worries and apprehensions. but I know this surgeon, too - he did Dave's pericardial window - and I share her faith in him. he's smart, he's sharp, and he says exactly what he thinks. I talked to Beth when she got home and I could hear the well, relief, in her voice, and I feel better, too. Beth - I will still do anything you need me to do, research wise, or help the family wise, as much as I can, OK? but just want to express my confidence in your plan. I glad you went to see him. hang in there, kiddo. Karen Quote Link to comment Share on other sites More sharing options...
ellakc2 Posted February 16, 2005 Share Posted February 16, 2005 God Beth, fungus sounds like a good thing at this point. Glad your surgeon made you feel better. Think of you often and now I'm praying if it has to be something let it be a fungus. All the strange reactions you have had fungus sounds on the correct track. lol. Take care. Quote Link to comment Share on other sites More sharing options...
kickincancer Posted February 16, 2005 Share Posted February 16, 2005 Just to let you know I am thinking about you. Hang in there. I will keep you in my prayers. Quote Link to comment Share on other sites More sharing options...
daggiesmom Posted February 16, 2005 Share Posted February 16, 2005 Dear Beth, Sounds like you have alot of support and a good dr. I don't know much about nodules but I do remember reading somewhere that about 60% of them are non cancerous (alot of people have them, and they're nothing). I'm so wishing the best for you. Please know my thoughts and prayers are with you. You're the strongest person!!!!! Joanie Quote Link to comment Share on other sites More sharing options...
shineladysue Posted February 16, 2005 Share Posted February 16, 2005 Beth, Next order is change that Avatar to one with a more positive attitude. Every time I see those tears , I cry too. I think you should feel very encouraged by what the surgeon had to say. Just as I was trying to ask you... how big... ok peas.. and what does all this mean really.. well, we don't know... fungal infection? maybe... Beth, all you can do is take it one day at a time and hope for the best..Like Cindi says, maybe a letter ... Hope he will stay in touch with your case. If Alimta is next on the agenda, just know that Mike has been taking it since early December and if we can answer a question we will try. I just want to say that you have our prayers going in to this. Take care... Love, Sue Quote Link to comment Share on other sites More sharing options...
Don Wood Posted February 16, 2005 Share Posted February 16, 2005 Beth, it sounds like a good plan, and you like the surgeon, so I am thinking it is a positive report. Thanks for letting us know. Blessings. Don Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted February 16, 2005 Share Posted February 16, 2005 I don't need to tell you how I feel......I'm in that room with you!!!! Keep it up. luv jim Quote Link to comment Share on other sites More sharing options...
elnodel Posted February 16, 2005 Share Posted February 16, 2005 Beth, I'm so glad you're feeling a bit better about things. Your surgeon sounds terrific. Let's hope the poison works on whatever it is -- and that everything else becomes moot. Given your history of horrible reactions to just about everything, a fungus makes a lot of sense! Will be thinking of you as you go through the chemo. Give whatever it is the works and kick the be-youknowwhat out of it@ Ellen Quote Link to comment Share on other sites More sharing options...
enyaw061032 Posted February 16, 2005 Share Posted February 16, 2005 Hi, Beth: I am so glad to hear that your surgeon has some hope. It is wonderful to have some hope to cling to, and from hope comes solutions! Prayers sent to you! Barb Quote Link to comment Share on other sites More sharing options...
Calintay Posted February 16, 2005 Share Posted February 16, 2005 Beth sounds great I too would feel a if th meeting went well. Quote Link to comment Share on other sites More sharing options...
Wendy Posted February 16, 2005 Share Posted February 16, 2005 I am glad that your appointment went good. Confidence in your doctor is half the battle I believe. Hang in there tomorrow - know that we are all pulling for good results! Wendy Quote Link to comment Share on other sites More sharing options...
NellW Posted February 16, 2005 Share Posted February 16, 2005 Beth, So glad to hear your visit with the surgeon was a good one. I am praying that whatever it is will be kicked out! Love Nell Quote Link to comment Share on other sites More sharing options...
Maryanne Posted February 16, 2005 Share Posted February 16, 2005 Hi Beth, Sounds like your appointment with your surgeon had a positive effect on you. That is really encouraging. I have been thinking alot about you, Addie, Don and Lucie and have been sending out healing thoughts during my meditation sessions. Praying the Altima works, fingers and toes crossed. Take care, keep us informed as always. I have a strong feeling this is all going to turn out in your favor. Hang in there, Maryanne Quote Link to comment Share on other sites More sharing options...
Haylee_38 Posted February 16, 2005 Share Posted February 16, 2005 Beth, I am really glad your surgeon has such a calming effect. It sounds like a good plan with a great doctor. My husband had a lung nodule last April and his was caused by fungus. Fingers and toes crossed this still may just be a fungus. My thoughts are with you, Haylee Quote Link to comment Share on other sites More sharing options...
J.C. Posted February 16, 2005 Share Posted February 16, 2005 Beth, Glad your surgeon has a good effect on you, this is important. Wishes, vibes and prayers that the treatment works well and fast for you. Hugs J.C. Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted February 16, 2005 Share Posted February 16, 2005 What a great guy! And what a great girl. I hear lots of hope in that message and you really are just a kid. Keep going. You can do it. Margaret Quote Link to comment Share on other sites More sharing options...
lindseysmom Posted February 16, 2005 Share Posted February 16, 2005 Beth, Glad to see you feel some what better. Stay positive, stay strong, and FIGHT,FIGHT,FIGHT!!! Best Wishes, Dee Quote Link to comment Share on other sites More sharing options...
Elaine Posted February 16, 2005 Share Posted February 16, 2005 Beth, Thinking of you as you start your treatment. May it be kind to you. elaine Quote Link to comment Share on other sites More sharing options...
TAnn Posted February 16, 2005 Share Posted February 16, 2005 Beth, Your surgeon sounds like a wonderful man. Very level headed. I think doing the chemo and seeing the effects is a good start. I pray that all goes well with the Alitma and you have total success with it. I'm thinking of you all the time......hang in there! TAnn Quote Link to comment Share on other sites More sharing options...
Treebywater Posted February 16, 2005 Share Posted February 16, 2005 I just said the weirdest prayer I think I've uttered. "Please God let it be fungus." Thinking about you, Beth! Quote Link to comment Share on other sites More sharing options...
Don M Posted February 17, 2005 Share Posted February 17, 2005 Beth: I think you might be on to something with the fungus infection idea. I have read that it typically presents with many small nodules and can spread quickly. Look into it some more. http://www.medscape.com/viewarticle/462308_print Quote Link to comment Share on other sites More sharing options...
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