melaniem Posted June 29, 2005 Share Posted June 29, 2005 Hey all, Absolutely unbelievable!! I wqas having terrible headaches last week,also trying to wean off the steroids at the same time. Headaches got worse over weekend, head CT Monday, brain MRI yesterday. Something is back in the exact same place of original tumor site. Massive edema, hence, the headache. Neurosurgeon thinks it is radaiation acrosis, radiation dr. thinks it's new tumor. Either way it has to be removed ASAP, so I will have brain surgery again tomorrow morning. I am numb. I don't know what to think of the doctors who assure me by doing all their procedures (WBR x 20) would protect me from this. Is the treatment worth the cure?? They fried my brain and now the tumor is back anyway. It was a waste of time, all my hair fell out again, not to mention the financial burden it has cost paying a $35 co-pay at each treatment. Seems like a bad week on the boards again. My love to all, I shall pray for all of us who are fighting this horrible, cruel disease. Because of the cross, Melaniem Quote Link to comment Share on other sites More sharing options...
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