Patkid Posted November 10, 2005 Share Posted November 10, 2005 Well, once again, we received bad news. Doctor said Brian's liver enzymes are out of control. Based on that, the other labs and Brian's clinical presentation Doc said NO more Alimta. He said Brian's disease continues to progress rapidly. He is going to try to stop the progression w/ Navelbine and even tho Brian's nueropathy is very concerning he is going to give him a low dose of carboplatin w/ the Navelbine. Brian recived that today and will get it repeated for 2 more weeks. Then 1 week off. We are scheduled to see doc again on 12/8, but he told me to call him anytime. Brian has pain while swallowing now, but doc said the true concern is the liver tumor. It seems to be completely taking over and that is what is causing the abdominal pain that put him in the hospital a couple weeks ago. Doctor always told us that the liver tumor would be the worst of this journey for Brian. He was right. Brian is visibly going down hill. He has some perkier moments but over all the trend is downward. My heart is aching and I am scared silly. At least he got some IV decadron today and his nuelasta. That always gives him a boost. He is napping, but I bet we will have a nice evening. I am counting on it. Brian remains determined and optimistic. I will back him up relentlessly. Please continue prayer. Quote Link to comment Share on other sites More sharing options...
LynneH Posted November 10, 2005 Share Posted November 10, 2005 Pat and Bri, my heart is aching with yours. With your relentlessness and Brian's optimistic determination, I have no doubt that the evening will be lovely. Comfort and love go a very long way..... With love, Lynne Quote Link to comment Share on other sites More sharing options...
melindasue37 Posted November 10, 2005 Share Posted November 10, 2005 Pat, I've been looking for a post from you the last couple days....wondering how Brian was feeling. I'm so sorry that the doctor didn't bring any better news. It hurts to read how your heart aches and how scared you are. My heart is breaking for you Pat. Continue to enjoy each and every day sharing the deep love you have for each other. (As if I have to tell you that.) I hope Brian wakes from his nap and you have a wonderful night together. Sending you strength and hugs ((Pat)) Onward, Melinda Quote Link to comment Share on other sites More sharing options...
mamasbabygirl Posted November 10, 2005 Share Posted November 10, 2005 We will absolteuly keep praying! You think we stopped? Not a chance. Enjoy your evening together my dear. I send my love to you both. Chin up!!! Quote Link to comment Share on other sites More sharing options...
shineladysue Posted November 10, 2005 Share Posted November 10, 2005 (((Pat & Brian))) Continued prayers!!! Love, Sue Quote Link to comment Share on other sites More sharing options...
Ry Posted November 10, 2005 Share Posted November 10, 2005 I am sorry that Brian continues to have progression. You are fortunate to have a doctor that is pulling out every thing he has in his arsenal for Brian. I hope this latest treatment does the trick. Rochelle Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted November 10, 2005 Share Posted November 10, 2005 double drat.. Oh Pat, Just so hard to go through these emotions of sadness and helplessness. I will send prayers for both of you that you will be content in each other's love and presence. love, Cindi o'h Quote Link to comment Share on other sites More sharing options...
Kel M Posted November 10, 2005 Share Posted November 10, 2005 I am sending you both big hugs and saying big prayers that this drug combination helps get the liver under control. Stay strong. Kel Quote Link to comment Share on other sites More sharing options...
Don Wood Posted November 10, 2005 Share Posted November 10, 2005 Prayers continue. Quote Link to comment Share on other sites More sharing options...
Andrea Posted November 10, 2005 Share Posted November 10, 2005 Sending good thoughts yoru way. I hope you are having that pleasant evening. I am so sorry that he seems to be doing worse. I hope that the carbo/navelbine does the trick. Quote Link to comment Share on other sites More sharing options...
Shar Posted November 10, 2005 Share Posted November 10, 2005 Pat I am sending all the positive thoughts I can possibly send to you guys. Enjoy your night together and keep strong. There are so many people on your side. Many hugs, Sharon Quote Link to comment Share on other sites More sharing options...
SBeth Posted November 10, 2005 Share Posted November 10, 2005 Dear Pat, My prayers for you both will too be relentless. Please take care and know that we all care about you both and are here for you. You know how to reach me...anytime Friend! Love, Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted November 10, 2005 Share Posted November 10, 2005 Prayers being sent. Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted November 10, 2005 Share Posted November 10, 2005 Prayers being sent. Quote Link to comment Share on other sites More sharing options...
ginnyde Posted November 10, 2005 Share Posted November 10, 2005 Oh Pat, I hate this news. But as others have said, thank God you have a doctor that never says never. I know it will be hard but try and keep your hopes up, your dear Brian is a major league trooper. Many prayers coming your way. Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted November 10, 2005 Share Posted November 10, 2005 Wish I could do or say something "To make it all better" MY heart is with you both. Jim Quote Link to comment Share on other sites More sharing options...
MilliBr1 Posted November 11, 2005 Share Posted November 11, 2005 Pat I don't know what to say. I am so glad you have a doctor who doesn't give up. My prayers continue. Quote Link to comment Share on other sites More sharing options...
daggiesmom Posted November 11, 2005 Share Posted November 11, 2005 You are such wonderful people. Such fighters! God will guide you. We're all behind you. Brian, keep up the good work! Spunky wants this for you. We all want you to fight. You're the best! You are both in my prayers. ((())) Joanie Quote Link to comment Share on other sites More sharing options...
Larry Posted November 11, 2005 Share Posted November 11, 2005 Oh pat i hate hearing this new's, prayer for you guy's for Healing and comfort in these trying time's..... Quote Link to comment Share on other sites More sharing options...
CharlieD Posted November 11, 2005 Share Posted November 11, 2005 Pat and Brian, We are all pulling and praying for you. CharlieD Quote Link to comment Share on other sites More sharing options...
Nancy B Posted November 11, 2005 Share Posted November 11, 2005 Pat and Brian, I am praying for a miracle for you guys. I have a prayer list written in a book and you guys are at the top. We just have to have faith that God has a plan and that He knows best (hard as that is sometimes). I am praying for strength, comfort, courage and healing. Love and hugs to both of you. Nancy B Quote Link to comment Share on other sites More sharing options...
carolhg Posted November 11, 2005 Share Posted November 11, 2005 I am so very sorry for the news you received. My prayers are with you for continued strength. Carol Quote Link to comment Share on other sites More sharing options...
Kaffie Posted November 11, 2005 Share Posted November 11, 2005 What a heartbreaking post, I can feel your fear and sadness. I hope tonight proves to be good for both of you I will continue to send prayers your, many doctors would have given up by now, you got a good one. Kathy Quote Link to comment Share on other sites More sharing options...
nancy c Posted November 11, 2005 Share Posted November 11, 2005 I am praying, for both of you. God will take care of you. Give Brian alots of love, kisses, and hugs. God bless you, Nancy C Quote Link to comment Share on other sites More sharing options...
lilyjohn Posted November 11, 2005 Share Posted November 11, 2005 Prayers going your way. Every moment is special even the bad ones. I hope for a great evening and many more to come. God Bless both of you. Quote Link to comment Share on other sites More sharing options...
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