JenkazMrs Posted May 11, 2006 Share Posted May 11, 2006 Hiya all, Just popped in to see what was keeping my hubby so busy. I am pleased that he has found this site. I know how important support is from people who understand. Bye for now Deanne xxx Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted May 12, 2006 Share Posted May 12, 2006 Hi Deanne, Pull up a lounge chair..you are here for the ride! How about a spot o' tea, dear? Glad that you are a team. Jimmy will surely be a success with you beating him into submission when he doesn't want to drink water or eat his carrot sticks! lol. Welcome to our group. You will find many caregiver survivors here to befriend. Cindi o'h Quote Link to comment Share on other sites More sharing options...
MsC1210 Posted May 12, 2006 Share Posted May 12, 2006 Hello and welcome Deanne! Sorry you and Jim have to face this awful disease but glad you found this board! Hugs and prayers.... Quote Link to comment Share on other sites More sharing options...
Don Wood Posted May 12, 2006 Share Posted May 12, 2006 Welcome, Deanne! Glad you have posted. Don Quote Link to comment Share on other sites More sharing options...
RandyW Posted May 12, 2006 Share Posted May 12, 2006 It is always good to see both persons posting. get a Organizer to keep track of quetions, Apptmnts, and, Meds List for Onc. Keep us posted on everything and we will helpwhenever you need it. Quote Link to comment Share on other sites More sharing options...
Ry Posted May 12, 2006 Share Posted May 12, 2006 Welcome to the wives club. I am glad you joined in with your hubby. Rochelle Quote Link to comment Share on other sites More sharing options...
Kaffie Posted May 12, 2006 Share Posted May 12, 2006 Welcome, So glad to see you post, the caregiver needs help right along with the person fighting this disease. You'll get lots of support and questions answered here. Kathy Quote Link to comment Share on other sites More sharing options...
JenkazMrs Posted May 12, 2006 Author Share Posted May 12, 2006 Hi all, Just wanted to say thank you for your welcome. We are both new to this and it still feels somewhat ureal. I'm sure you have all been there. I have to say that I am very proud of my husband how he is handling things. I however am not handling this well at all. I know I will get stronger. I have read some of the profiles on here and cried through most of them. Jimmy started his first chemo yesterday the drugs are carboplatin and gemcitabineanyone else on these? Sending you all so much luck! Deanne xxx Quote Link to comment Share on other sites More sharing options...
Donna G Posted May 12, 2006 Share Posted May 12, 2006 Welcome Deanne. It is such a great help to have a loved one to travel this journey with. In the beginning, I believe, many of us are so overwhelmed we get numb and it is so hard to even listen and "hear" what we are being told. We need all the help and support we can get. Another set of ears at an appointment , someone who listens to our grief of having lost our health, listens to our fears , concerns. It is such a blessing to have someone with us who cares. Keep us posted on how things are going. Donna G Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted May 12, 2006 Share Posted May 12, 2006 Deanne,welcome to our support family.There are many knowing and caring people here and usually always someone that can help. Glad to see both of you post. Quote Link to comment Share on other sites More sharing options...
ztweb Posted May 12, 2006 Share Posted May 12, 2006 Welcome! This is an amazing site with so many people here to support us. I can't believe how supportive everyone is. Stay close and keep in touch! Quote Link to comment Share on other sites More sharing options...
Don M Posted May 12, 2006 Share Posted May 12, 2006 welcome Deanne: I had 4 rounds of carboplatin/gemcitabine last year. I tolerated it rather easily, although I was glad when it was over. I had fatigue and a generally felt bad for the first 3 or 4 days after an infusion. I usually felt pretty good in the week just prior to my next infusion. I drank a lot of water. I missed work about 3 or 4 days in each infusion cycle. I could have toughed it out and gone if I really had to, but did not. Don M Quote Link to comment Share on other sites More sharing options...
francesbean Posted May 12, 2006 Share Posted May 12, 2006 Hello and welcome Mr and Mrs Jenkaz! My dad also just started with this chemo cocktail. Quote Link to comment Share on other sites More sharing options...
mamasbabygirl Posted May 12, 2006 Share Posted May 12, 2006 I read the other day that we are co survivors. I think it is so true. A very warm welcome... Quote Link to comment Share on other sites More sharing options...
Maryanne Posted May 13, 2006 Share Posted May 13, 2006 I welcome you here. But who is your husband. Maybe I missed something here. Has he posted? Can you tell me about him? By the way, I love your attitude! Maryanne Quote Link to comment Share on other sites More sharing options...
Nushka Posted May 13, 2006 Share Posted May 13, 2006 Welcome Deanne. Glad you are posting and hope we can be of some help. Nina Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted May 14, 2006 Share Posted May 14, 2006 Welcome Deanne, Glad you found us. Rich Quote Link to comment Share on other sites More sharing options...
elnodel Posted May 14, 2006 Share Posted May 14, 2006 Add my welcome to all those above, Deanne. This board was such an important instrument for me to help my husband through the diagnosis/decision-making/treatment process and then the amazingly empty-feeling time following treatment while you wait to see if it is working.... I second the advice to get an expanded diary where you can keep track of everything -- not all appointments but observations on reactions, questions, medications...just about anything and everything. If you don't write it all down, it'll all blur and get lost. I was (and still am) always there for every appointment. Since your husband found us, he's probably more "proactive" than mine was. I found I had to take the lead in asking the questions, giving my observations on his reactions and/or progress, even calling the doctor when something didn't seem right. But even if you don't have to do as much of that, you'll find that this fight is very much a partnership. It really highlights what marriage is all about. So welcome to the caregiver's club. Ellen Quote Link to comment Share on other sites More sharing options...
Carleen Posted May 17, 2006 Share Posted May 17, 2006 Welcome Deanne from one wife to another. I know exactly what you mean about being proud of how you husband is handling things, but feeling like you aren't doing as well. Trust me, you are doing great. The fact that you get up out of bed and are there loving and supporting him is a feat, and you should give yourself credit. Often we talk about this being a roller coaster ride. There are good days and bad, up times and down, and with that there are times when we feel strong and others where we just fall apart. I wish I could say that with time you will get better and stronger at this, but the truth is that in time things will get easier to accept and get more routine and you will get stronger and then out of nowhere you will feel weak again. It is ok to bottom out every now and then. It is normal, and we've all been throug it. We are here for you to celebrate on those up times, and we are here to help push you back up that hill when you are down. I will be keeping you and Jim in my prayers and I am here for you. Carleen Quote Link to comment Share on other sites More sharing options...
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