antoinettev3 Posted June 15, 2006 Share Posted June 15, 2006 First I want to thank everyone for their prayers and encouragement. Without it the past week would have been unbearable. The PET/CT showed significant progression of disease in some areas and slight progression in others. There does seem to be something in the mid lung field which was not there before but there is NOTHING in the right lung and only one lymph node lit up some. Blessedly no spread to any other organs. I fully expected liver mets because of some new discomfort I had been experiencing. Met with radiation oncologist yesterday. They will fuse the results of this scan with my treatment scan from last year to come up with a new treatment plan. If lung volume is good they will go after all the spots. There is concern about the esophagus being in the field this time and my developing esophagitis. This is my biggest concern. I have stopped Tarceva and continue with Oxycontin and Percocet for pain. I'm hopeful that the radiation will at least give me good pain control like it did last time. I should hear early next week what the radiation schedule will be and then I'll meet with my oncologist to discuss what we will do after radiation. I am angry, sad, frustrated and tired with this battle. 11 years on and off with this sword hanging over my head has drained me but it appears that God is not ready for me just yet. I trust in Him completely no matter how hard this battle is. Thank you all for your support. God Bless. Antoinette Quote Link to comment Share on other sites More sharing options...
Joe B Posted June 15, 2006 Share Posted June 15, 2006 Sounds encouraging Antoinette. Prayers are with you... God Bless. Quote Link to comment Share on other sites More sharing options...
Don Wood Posted June 15, 2006 Share Posted June 15, 2006 Antoinette, I know it is a long haul and exhausting, but from where we sit, 11 years sounds fantastic. Think about the positive things over these past 11 years and maybe it won't seem quite as bad. Blessings. Don Quote Link to comment Share on other sites More sharing options...
EastCoastLadi Posted June 15, 2006 Share Posted June 15, 2006 You hang in there Antoinette, you've seen the peaks and valleys of this and keep that positive attitude, it will definitely get you far!!! Sending my prayers to you... Grace Quote Link to comment Share on other sites More sharing options...
Kasey Posted June 16, 2006 Share Posted June 16, 2006 May a new plan push this back as has been done in the past, Antoinette. I will remain hopeful you regain control and can get a report showing improvement. Kasey Quote Link to comment Share on other sites More sharing options...
ginnyde Posted June 16, 2006 Share Posted June 16, 2006 Antoinette, a plan is always good news. I am sure that 11 years is a very tough journey. But remember that 11 years is good news. I am a true believer that each day that passes offers the hope of the pointy headed sneaker persosn in the lab yelling "EUREKA, I do believe I have found the cure". Quote Link to comment Share on other sites More sharing options...
Don M Posted June 16, 2006 Share Posted June 16, 2006 I am sorry you have to do it again Antoinette. I am a big fan of targeted radiation. Maybe they could target the individual spots around your esophagus, in order to protect it, with cyberknife or image guided radiation and use a conventional radiation on the rest of the area? I suppose there may be too many spots to make it feasible. You have my best wishes. Don M Quote Link to comment Share on other sites More sharing options...
Kaffie Posted June 16, 2006 Share Posted June 16, 2006 I'm sorry to hear of the progression, but am so happy to hear of a plan. You keep on fighting, 11 years is a good long time. It gives hope to so many of us. Praying it can be "cured" this time around Kathy Quote Link to comment Share on other sites More sharing options...
shineladysue Posted June 16, 2006 Share Posted June 16, 2006 Antoinette, You are such an inspiration to others. You've been fighting the good fight for a long time and I just know you aren't about to quit now. Praying for a new plan to inspire the hope you need to continue on. God Bless. Love and Prayers, Sue Quote Link to comment Share on other sites More sharing options...
Welthy Posted June 16, 2006 Share Posted June 16, 2006 Antoinette, Sorry that things are heating up again, but you are truly a "soldier for the cause"! Hang in there, I can't imagine how tiring this is for you after all these years. Keep us updated on the "plan". Best to you, Welthy Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted June 22, 2006 Share Posted June 22, 2006 I'm very sorry to hear that Antoinette, prayers for you for the best. Rich Quote Link to comment Share on other sites More sharing options...
RandyW Posted June 22, 2006 Share Posted June 22, 2006 Hope Fully a tuneup will get you ready for another 11 years. Am glad the Drs. have a game plan and caught it early w/o mets. Go get em girl You have my prayers for strength during this time Quote Link to comment Share on other sites More sharing options...
Ry Posted June 22, 2006 Share Posted June 22, 2006 I am so sorry the Tarceva did not work. I know you're tired and frustrated but you're a fighter. Let us know how things go. Rochelle Quote Link to comment Share on other sites More sharing options...
ma's kid Posted June 22, 2006 Share Posted June 22, 2006 Antoinette, Glad that your docs will come up with a plan of action! Lots of prayers and God bless Libby Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted June 22, 2006 Share Posted June 22, 2006 Antoinette,you have fought this so long and hard it would have to get to making you tired of it. You are a huge inspiration to many of us here.I hope you are able to have radiation as that has always done the best for me.Even with all the damage radiation and chemo have done to me so far they have been worth doing. Wishing all the best with the new game plan. Quote Link to comment Share on other sites More sharing options...
michelepal Posted June 22, 2006 Share Posted June 22, 2006 Sending many prayers your way! Michele Quote Link to comment Share on other sites More sharing options...
bunny Posted June 22, 2006 Share Posted June 22, 2006 I'm so sorry to read of the progression, antoinette. you've been such a trouper. it really is an awful way to live in some ways, but you are a tremendous power of example. I'll keep you in my prayers. Quote Link to comment Share on other sites More sharing options...
Patkid Posted June 22, 2006 Share Posted June 22, 2006 many prayers, beautiful lady. Pat Quote Link to comment Share on other sites More sharing options...
TracyD Posted June 22, 2006 Share Posted June 22, 2006 Antoinette, to have the strength and courage to fight this thing for 11 years, you are truly an inspiration to me. Having just begun this fight I can't imagine the toll it takes after so long, but I certainly hope I'm here 11 years from now to know, maybe then we can sit down and have a drink and talk about it! Remember, every DAY you keep up the fight is another day in which someone might just come up with the cure. You hang in there girl. Lots of prayers coming your way. Tracy Quote Link to comment Share on other sites More sharing options...
Maryanne Posted June 23, 2006 Share Posted June 23, 2006 Antonette, You are so strong, do not let this get you down. I know you will get better results. Keep that fighting spirit you have and you will keep ranking up the years. Do not let this get you down. I always loved you Attitude. Sending prayers you way, Maryanne Quote Link to comment Share on other sites More sharing options...
Jyoung20 Posted June 23, 2006 Share Posted June 23, 2006 Antoinette, You are such a fighter!! Thanks for being our encouragement. I am sorry to hear of your recent news but I know GOD has a plan for you!!! Hang in there!! GOD BLESS!! Jamie Quote Link to comment Share on other sites More sharing options...
carolhg Posted June 23, 2006 Share Posted June 23, 2006 Praying that your doctors will design a plan for you that will give you better reports. Quote Link to comment Share on other sites More sharing options...
ztweb Posted June 23, 2006 Share Posted June 23, 2006 Antoinette, God bless you. You HAVE been dealing with this for a long time. Life is such a roller coaster of ups and downs. I pray for your healing, your courage, and your faith. You give me so much patience when I watch all that you have been through and your faith never leaves you. God bless... Jen Quote Link to comment Share on other sites More sharing options...
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