wendyr Posted July 12, 2007 Share Posted July 12, 2007 ((((((((((((Cindy))))))))))))) So sorry to hear of your dear husband's passing. What you (and he) went through with hospice is totally unnaceptable and I would follow through with a formal complaint. Be sure in the knowledge that you did the absolute best you could under the most difficult of circumstances. Prayers for peace and strength during this difficult time. God Bless wendyr Quote Link to comment Share on other sites More sharing options...
laban Posted July 12, 2007 Share Posted July 12, 2007 It's over now and you can only go on. I pray you find strength to get through these next difficult times and know that you did everything you could for him. He is now in peace and I pray you will be too. Quote Link to comment Share on other sites More sharing options...
Don M Posted July 12, 2007 Share Posted July 12, 2007 Cindy, I am sorry the first hospice did such a dismal job for you and your husband. Please accept my condolences for your loss. Don M Quote Link to comment Share on other sites More sharing options...
Littlegirl Posted July 12, 2007 Share Posted July 12, 2007 Cindy - I am so sorry. Sorry for your loss and for the hell you've been put through these past few days. His pain is gone now and he is in a better place. Take care of yourself! Karen Quote Link to comment Share on other sites More sharing options...
tiredmom959 Posted July 12, 2007 Share Posted July 12, 2007 So sorry for your loss and the pain of the previous several weeks. Quote Link to comment Share on other sites More sharing options...
EastCoastLadi Posted July 12, 2007 Share Posted July 12, 2007 (((Cindy))) I'm so sorry, please take some comfort in knowing his pain is over. I know right now you're on autopilot, that's ok. I want you to know please PM me if you need to, I'm here for you. my prayers to you and your family today. Grace Quote Link to comment Share on other sites More sharing options...
fillise Posted July 12, 2007 Share Posted July 12, 2007 Cindy, I'm so sorry. You remain in my thoughts and prayers. Susan Quote Link to comment Share on other sites More sharing options...
Ry Posted July 12, 2007 Share Posted July 12, 2007 I am sorry-- it didn't have to be that way. When things settle down make a complaint about your first hospice. I am so sorry for your loss. Quote Link to comment Share on other sites More sharing options...
Nova Posted July 12, 2007 Share Posted July 12, 2007 You've been on my mind for days... I'm so very sorry. Please know I'm here, if there's anything I can do. Saying prayers for you, my friend. Nova Quote Link to comment Share on other sites More sharing options...
MsC1210 Posted July 12, 2007 Share Posted July 12, 2007 I am so very sorry. Please accept my sincere sympathies and condolences. Christine Quote Link to comment Share on other sites More sharing options...
Kasey Posted July 13, 2007 Share Posted July 13, 2007 I have followed your story and want to express my sincere sorrow as well as outrage over the treatmennt received from your first hospice. Please let us help carry you through this stage of your journey. I am just so very sorry at all that you have had to experience. Kasey Quote Link to comment Share on other sites More sharing options...
Welthy Posted July 13, 2007 Share Posted July 13, 2007 I'm so very sorry that his journey is over. God bless you and hold you tight in the days ahead. I'm not sure any of us will ever know what "normal" means again. Big hugs, Welthy Quote Link to comment Share on other sites More sharing options...
shineladysue Posted July 13, 2007 Share Posted July 13, 2007 Cindy, First of all my sincere condolences. I am so very sorry for your loss. I have been reading your story, but having no experience with hospice, I had nothing to contribute. I have been however thinking of you and praying for you and your husband. I'm so very sorry you had to go through everything you've been through. I'm sending prayers for strength to get you and your family through all that lies ahead. God Bless, Sue Quote Link to comment Share on other sites More sharing options...
hawkeye Posted July 13, 2007 Share Posted July 13, 2007 We are so sorry for your loss. No one should have to go through what you and your husband have with hospice. I have no expierence with hospice but have learned alot from you and your husband about it. Our prayers are with you and will be with you. hawkeye Quote Link to comment Share on other sites More sharing options...
myagle2 Posted July 13, 2007 Share Posted July 13, 2007 Cindy, My deepest sympathy to you and your family. My hospice experience was not as bad as yours, but it was not the greatest either. He is now free. Mary Quote Link to comment Share on other sites More sharing options...
fillise Posted July 13, 2007 Share Posted July 13, 2007 All, I've had Cindy's experience on my mind a lot. It was hard enough to deal with the fact that her husband was in his last days and hours without having the incompetence of the first set of hospice folks. She isn't the only one this has happed to either. I wonder if we can post a sticky with a set of questions to ask a hospice organizations, what to expect from hospice, etc? I think a lot of us don't realize that there is often more than one in an area and that patients and caregivers should be able to expect certain things from a hospice organization. I'd be happy to coordinate such an effort. Susan Quote Link to comment Share on other sites More sharing options...
Nick C Posted July 13, 2007 Share Posted July 13, 2007 I'm so sad for this...not fair. I am so sorry. Quote Link to comment Share on other sites More sharing options...
Snoopyfn Posted July 13, 2007 Author Share Posted July 13, 2007 fillise.. Actually a good hospice company should tell you what to expect up front... the second one gave me a whole lot of literature on what to expect from them and what they expect from you etc etc... the first one didnt... and in dealing with the second one...they were everything I expected hospice to be and I know tht I wasnt crazy in my expectations.... I should not have the last memories of my husband be of him screaming for help... he was extremely weak as it was...so it was even harder to hear... everyone Wednesday from the time we called 911 through to coming home and his passing was OUTSTANDING.... if any of you are in CA and need hospice...it was Hospice Care of CA... they have a website.... the BAD one was St. Joseph Hospice... Never never never use them.... thank you all for your kind words... i just got back from the cemetary/mortuary making final arrangements.... I just did this for 3 hours a couple of weeks ago thinking it would help and it was still another 3 hours today!!!crazy... but it is done...next friday @1:00 Quote Link to comment Share on other sites More sharing options...
MsC1210 Posted July 13, 2007 Share Posted July 13, 2007 I just wanted to mention this. In the Path Less Traveled Forum there is a sticky about Hospice.. "Personal advice/experiences with HOSPICE. Also, Linda666 has posted many different things, all very well researched and interesting regarding Hospice in that forum. They begin on the 2nd page. Cindy, again, my very deepest sympathies and condolences on the loss of your husband. I am so very sorry about the horrible experiences you had to go through with the first Hospice. I hope this will be of help Christine Quote Link to comment Share on other sites More sharing options...
Judy-OK Posted July 14, 2007 Share Posted July 14, 2007 Cindy, you are amazing. You have gone through so much with the hospice situation and it is hard to read about it let alone experience it. I now know things I will tell the folks that will at some point in my life become my caretakers. Because of you sharing a very personal part of your husbands passing some folks will be more enlightened. My prayers are with you for comfort and peace during your time of grief. Quote Link to comment Share on other sites More sharing options...
fillise Posted July 14, 2007 Share Posted July 14, 2007 Cindy, You are right, you and your husband should not have had to endure what you did. I'll be thinking about you during this week and afterwards. Let us know how you are doing--the good, the bad, and the ugly. We will be here for you. Susan Quote Link to comment Share on other sites More sharing options...
tjrasMOM Posted July 16, 2007 Share Posted July 16, 2007 Cindy, I am so sorry for the pain you've gone through and for your loss. You are in my thoughts and I'm hoping that you find peace through your healing. Sincerely, Tova Quote Link to comment Share on other sites More sharing options...
Treebywater Posted July 16, 2007 Share Posted July 16, 2007 filise and all, I will put a sticky post up in The Path Less Travelled for questions to ask hospice. Folks can add to it as they see fit. Quote Link to comment Share on other sites More sharing options...
fillise Posted July 16, 2007 Share Posted July 16, 2007 Below is a link to an article on hospice care in today's Raleigh News and Observer. http://www.newsobserver.com/front/story/638548.html I'm also going to post this is the General section. Susan Quote Link to comment Share on other sites More sharing options...
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