SandraL Posted June 17, 2008 Share Posted June 17, 2008 I noticed this morning that I had appts on my calendar with clinical trial nurse and med onc. I just dismissed those as I was booted off the trial I was on when my cancer progressed with spine mets. My med onc actually phoned me, asked me how I was doing from 1st alitma treatment and then said no need for me to come in. Fine. Then....the clinical trial nurse calls later in the afternoon. Says I really should have come in. I don't have to of course, but they still want to follow up on me re clinical trial even though I am off of it. So, I say okay, I will come in and see her and my med onc. So I see the nurse...fine. And then med onc comes in and does boring stuff re trial...fine. And then I mention again to med onc, as I had done last week, at pre chemo appt, that my left lung is not feeling right. It is feeling different and I have been a bit worried. She thought maybe it was numb so did the needle thing. Nope, not that. Then she checks my breathing. Not great. And I say I am worried about fluid build up again or....????, I don't even want to say it. My lungs are supposedly clear. So now she looks concerned and says I should go get an x-ray and we should get to the bottom of this asap! Puts right on the requisition, re recurring tumour or pleural effusion....NOW I am freaking out. I was not expecting not ready for this today. I should learn to never ever go to the clinic alone. You just never know what event might unfold. I go across to the hospital and get x-ray and all sorts of nasty things of course start to run through my mind. I am so scared the cancer is back in my lung again now...and I am walking over there and am so SOB. I knew it was getting worse but was just thinking it was because I haven' been able to twork out in so long because of pain in my back re spine mets. My mind wasn't ready for this today. I thought I was results free for a few more weeks, until I got scan done for my back. I wasn't prepared for this and I am absolutely freaking out!! I don't know when I will get x-ray results, but maybe tomorrow or the next day. Your prayers and positive thoughts would be very much appreciated. Sandra Quote Link to comment Share on other sites More sharing options...
LovesLife Posted June 17, 2008 Share Posted June 17, 2008 (((Sandra))) ... what an absolutely horrible day. Freaking out is exactly what I would be doing. I hope they can get the results to you tomorrow. In the meantime I will send prayers and positive thoughts your way. Hugs, Linda Quote Link to comment Share on other sites More sharing options...
Flyman35 Posted June 17, 2008 Share Posted June 17, 2008 Many, Many prayers and positive thoughts coming for a good outcome. (((((Sandra))))) Denise Quote Link to comment Share on other sites More sharing options...
Nushka Posted June 17, 2008 Share Posted June 17, 2008 Sandra, I agree it wasn't a very good day. My prayers are with you that it is something easy to fix. Down south we have had really poor quality air that has many people sob. I know we all hate surprises so I'll hold my fingers in the crossed position as long as I can. I hope you get decent news. Keeping you in my thoughts. Nina Quote Link to comment Share on other sites More sharing options...
Wendy Posted June 17, 2008 Share Posted June 17, 2008 Sandra, Oh, I just hate the unscheduled tests, they are really hard on us survivors. I will have you in my prayers tonight and hopefully tomorrow we will all be celebrating with you with good results. Hang in there, Wendy Quote Link to comment Share on other sites More sharing options...
shineladysue Posted June 17, 2008 Share Posted June 17, 2008 Sandra, You can count on the positive vibes and prayers from me. So sorry that your non-eventful day ended up like this, but if something shows up that needs attention maybe it's a blessing that you went. On the otherhand, it just might show good news.. Hang in there and please let us know how things turn out. Hugs, Sue Quote Link to comment Share on other sites More sharing options...
Treebywater Posted June 17, 2008 Share Posted June 17, 2008 (((((Sandra))))) Praying for you right now! Quote Link to comment Share on other sites More sharing options...
carolhg Posted June 17, 2008 Share Posted June 17, 2008 Praying! Carol Quote Link to comment Share on other sites More sharing options...
Larry's Wife Posted June 17, 2008 Share Posted June 17, 2008 Me, too! Lynn Quote Link to comment Share on other sites More sharing options...
Don M Posted June 17, 2008 Share Posted June 17, 2008 I hope it turns out to be nothing Sandra. Don M Quote Link to comment Share on other sites More sharing options...
Janette Posted June 17, 2008 Share Posted June 17, 2008 Oh Sandra - you know I'm saying one for ya! Quote Link to comment Share on other sites More sharing options...
fillise Posted June 17, 2008 Share Posted June 17, 2008 Sandra, Add my prayers to all the others that this turns out to be nothing. I am also hoping that you find out soon, because we all know what scananxiety can do! Susan Quote Link to comment Share on other sites More sharing options...
Patti B Posted June 17, 2008 Share Posted June 17, 2008 Sandra- You know I have got your back on this one - I am rooting for you and praying hard. I need to know that my crazy cancer sister is OK and wish I could do something to take away your anxiety (as you tried to take away mine with my scan results today). I will be waiting and waiting to hear your good news so that we can celebrate at the pub in FINE fashion. It will be a party like that pub has never seen before!! Hope we don't get thrown out!!! Please hang in there, my friend. I hope you can sleep well tonight so that tomorrow and results will come quicker. Cancer really does suck and scanxiety sucks even more!! Hugs to you - Patti B. Quote Link to comment Share on other sites More sharing options...
jaminkw Posted June 18, 2008 Share Posted June 18, 2008 Sandra, After your reply to my pm I came here and can't believe I missed this yesterday. I can't believe you haven't heard anything today but I'm sure the update would be here if you did. Well, at least if you haven't gotten the results yet I can still keep hoping and crossing my fingers for you. I'm so sorry you have to go through this waiting and worrying. Judy in Key West Quote Link to comment Share on other sites More sharing options...
MsC1210 Posted June 18, 2008 Share Posted June 18, 2008 Sandra I am SO sorry about this latest news. Please know you are in my thoughts and prayers and I am sending you every positive thought I can muster up right now. Love and hugs Chris Quote Link to comment Share on other sites More sharing options...
azgirl Posted June 19, 2008 Share Posted June 19, 2008 Sandra, I don't know if you have heard the results yet, but I am saying a prayer for you right now. I'm so sorry about such an awful day. Maryea Quote Link to comment Share on other sites More sharing options...
Bruce u Posted June 19, 2008 Share Posted June 19, 2008 I was late seeing this post and was so sorry to hear about your unscheduled test. Hoping that the results are good and it was just precautionary testing. Sorry you are having to wait for the results. Big hug and prayers from way up north. Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted June 19, 2008 Share Posted June 19, 2008 Sandra, So sorry to hear about this, my thoughts and prayers are with you for nothing but the best. Rich Quote Link to comment Share on other sites More sharing options...
CaroleHammett Posted June 19, 2008 Share Posted June 19, 2008 Hi, Sandra. Don't know how I missed this on Monday, but am so sorry your day turned upside down and hope the cxr results are helpful in fixing your SOB. Carole Quote Link to comment Share on other sites More sharing options...
SandraL Posted June 19, 2008 Author Share Posted June 19, 2008 Well finally after needing to get real agressive and track down my med onc and results...I find out that there is "no change" in my lungs from previous scans. And my lungs are supposedly pretty clear. A major phew on that one..someone and all you good people are looking out for me. Thanks for all your support. Next is scan for spine mets...I haven't even had that scan yet so will just block that one out of my mind for now, and take today's good news to the bank. From a very happy smilin' Canadian girl! Quote Link to comment Share on other sites More sharing options...
Dave Posted June 19, 2008 Share Posted June 19, 2008 thats great..now go rub a nose aomewhere Quote Link to comment Share on other sites More sharing options...
LovesLife Posted June 19, 2008 Share Posted June 19, 2008 Sandra - what fantastic news - my hand wringing has rubbed my fingers raw! I have been watching and waiting for this and I am so-o-o happy for you. I can't believe they made you wait and wonder for "no change" *#$#*$!!! Time to party (with my glass of ...water ) Linda Quote Link to comment Share on other sites More sharing options...
Patti B Posted June 19, 2008 Share Posted June 19, 2008 Sandra- YEAH!!!! I am so happy!!!!! I have been checking ALL day for this!!! I am meeting you at the Pub - I am buying however much wine you can drink!!! Hugs to my friend, Patti Quote Link to comment Share on other sites More sharing options...
CaroleHammett Posted June 20, 2008 Share Posted June 20, 2008 Congratulations, Sandra!!!! This is fantastic news and has to be a great relief to you. Me and Mick and David are all happy dancing for you! (Hmmm. Now that I'm off chemo, can I have a Baileys on the rocks? ) Carole Quote Link to comment Share on other sites More sharing options...
Bruce u Posted June 20, 2008 Share Posted June 20, 2008 CONGRATULATIONS Sandra !!!! What a relief getting that "no change" news. Good for you. I am so happy for you.. Quote Link to comment Share on other sites More sharing options...
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