bobmc Posted December 24, 2003 Share Posted December 24, 2003 Hello all and hope everyone has a happy and joyous Holiday!! Just left my new radiology oncologist, I like this guy! We don't agree on follow-up care for LC patients but we do agree on taking curative measures and being very agressive with my 2 new unwanted friends - Frick & Frack By the way, they are small, about 6mm or approx. 3/8" and are causing no apparent symptoms. None of this still explains the back pain but we are also going to dig into that a bit deeper. So as of now the plan is to have a PET scan next week, just to rule out any metobolic cancer activity, he does not believe as does my medical oncologist that he'll find any, but it should be done to make sure. I'm also being scheduled to see a neurosurgeon and a radiology dr. specializing in sterotactic radiosurgery. That will be either at Sloan Kettering in NY or at Overlook hospital in Northern NJ. I have to speak to my Insurance Co. about it but I'm learning towards MSKI. As for a treatment plan; he does not want to do whole brain radiation and recommends stereotactic radiosurgery followed up with a preventative measure of low dose brain radiation. I spoke to him about the newer brain chemo drugs and he felt that the tumors would be taken care of without them but will consider it based on any later changes or opinions. I also want to give a big THANK YOU to the " educators " on the board, you know who you are,( John, Jim, Sam Judy Fay and the many other's), It's just so important to be informed. So thanks again!! Bottom line is that I feel real good about how things are coming along and feel confident that we can " wack - Frick and Frack" God bless us all; and may they cure this SOB!!l Bobmc- NSCLC- stageIIB- left pneumonectomy- 5/2/01 MRI's taken 12/18 - 2 brain mets found- named em Frick & Frack "Absolutely insist on enjoying life today!" Quote Link to comment Share on other sites More sharing options...
Sam'swifeShirley Posted December 24, 2003 Share Posted December 24, 2003 You actually found a doc working on Christmas Eve? This is a sign! You're going to do great Bob. Enjoy Christmas and look forward to a new year with NED. Sam Quote Link to comment Share on other sites More sharing options...
Don Wood Posted December 24, 2003 Share Posted December 24, 2003 Sounds like a plan, Bob. Best to you. Don Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted December 24, 2003 Share Posted December 24, 2003 Bob Sounds like Frick & Frack don't stand a chance! I think you've got it covered. Enjoy the holidays and stay positive Bess B Quote Link to comment Share on other sites More sharing options...
Rick Posted December 24, 2003 Share Posted December 24, 2003 Sounds like he is a keeper... Quote Link to comment Share on other sites More sharing options...
chloesmom Posted December 24, 2003 Share Posted December 24, 2003 Bob, That sounds like a great plan. I, along with so many others apparently, have so much confidence in you and your ability to beat this all back@!!!!! May you have a Merrier Christmas with this news and a solid plan in place. I will be rooting for you..... chloesmom Quote Link to comment Share on other sites More sharing options...
norme Posted December 24, 2003 Share Posted December 24, 2003 Bob, am so glad things seem to be working out great for you again. After getting all this accomplished today it won't be long and your new enemy's Frick and Frack will no longer be around. Were will you be going on vacation after this procedure. Hope it will be a little easier then the lung vacation. Isn't it funny how different onc think. when they found buddy with 3 mets to the brain, they wanted whole head radiation first then RFA only if they ever showed their ugly faces again. Their thought was that if there were any others not showing in the scan then the whole head would take care of them the first time around. I hope someday to try and figure all this out. There sure arn't any standard procedures under lc. YOu and your family have as merry a Christmas as the rest of us can and sometimes that is not to easy as we all know. God Bless Quote Link to comment Share on other sites More sharing options...
Tiny Posted December 25, 2003 Share Posted December 25, 2003 Bob- Having a plan in place has to feel good and free up some emotional space to better enjoy Christmas...although I know you would anyway, because enjoying every single day is part of your personal philosophy! Sounds like you and the new Dr. are on a wave-length. Rooting for you to demolish Frick and Frack, good buddy! Quote Link to comment Share on other sites More sharing options...
SandyS Posted December 25, 2003 Share Posted December 25, 2003 Bob - Glad he sounds so positive about things and that you like him! That makes a big difference. Have a blessed Christmas and then get ready to chase Frick and Frack outta here! Hugs and prayers, SandyS Quote Link to comment Share on other sites More sharing options...
DeanCarl Posted December 25, 2003 Share Posted December 25, 2003 Bob, Great that you have a good onc and a good plan in place. Here's hoping Frick and Frack exit, stage GONE real soon. Now, take a "cancer vacation" for a couple of days and enjoy your Christmas. Dean Quote Link to comment Share on other sites More sharing options...
MO_Sugar Posted December 25, 2003 Share Posted December 25, 2003 Bob, Sounds like a plan to me! Prayers and best wishes for a wonderful New Year!! God Bless, MO Quote Link to comment Share on other sites More sharing options...
David A Posted December 25, 2003 Share Posted December 25, 2003 Sounds great Bob, my best to you my friend. David Quote Link to comment Share on other sites More sharing options...
Donna G Posted December 25, 2003 Share Posted December 25, 2003 How wonderful that you could go into the Holiday knowing you have a plan! A great plan! Sounds like he is very optomistic that all will be gone. Have a Merry Christmas , enjoy! Donna G Quote Link to comment Share on other sites More sharing options...
Nancy O. Posted December 25, 2003 Share Posted December 25, 2003 Hey Bob, all I can say is kick some butt. Quote Link to comment Share on other sites More sharing options...
Joe B Posted December 26, 2003 Share Posted December 26, 2003 Great attitude Bob! Doc sounds real good..... Glad you found em early... Frick & Frack are going DOWN ! Joe Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted December 27, 2003 Share Posted December 27, 2003 Great news Bob! Stereotactic radiosurgery was very successful for Bill and I know it will be for you too. Blessings to you, Peg Quote Link to comment Share on other sites More sharing options...
karen335 Posted December 28, 2003 Share Posted December 28, 2003 Bob, Glad to know your docs and you have a plan. The treatments are going to zap Frick and Frack... Never to return. Prayers for you and your family. Hope you had a very Merry Christmas... Peace and God Bless Karen Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted December 29, 2003 Share Posted December 29, 2003 That sounds like a great plan. Sorry it took me so long to find this post and I had been wondering since I knew you had an appointment Wed. Now will someone please tell me what stereotatic radiosurgery is and alos PCT which I see frequently referred to. Keeping those prayers going for you. Quote Link to comment Share on other sites More sharing options...
bluebayou Posted December 29, 2003 Share Posted December 29, 2003 Hey Bob!! Don't know if you are aware of this, but i've just come off of 10 days of WBR. It went rather well...very few side effects. Some memory loss, loss of my hair (scalp only) and of course quite a bit of fatigue and nausea. In my case this will be followed up on the 15th by Radiostatic Surgery. Their line of thought is that WBR will get rid of anything that might be out there but microscopic in nature and the stereotactic surgery will zero in on the two lesions they did find and obliterate them . Stay tuned...will update on the Stereotactic Surgery once completed. Hang in there Bob.. God Bless us All!! Quote Link to comment Share on other sites More sharing options...
ginnyde Posted December 29, 2003 Share Posted December 29, 2003 Good bye and good riddance to Frick and Frack and hello to NED Bob in 2004. Sounds like a good plan to me. Ginny Quote Link to comment Share on other sites More sharing options...
mhutch1366 Posted December 29, 2003 Share Posted December 29, 2003 Bob, Sounds like a good plan. Whack Frick and Frack!! Francine, Glad your treatments are coming along.... You are both in my thoughts and prayers. XOXOX MaryAnn Quote Link to comment Share on other sites More sharing options...
niececola Posted December 29, 2003 Share Posted December 29, 2003 Hi Bob, Thanks for the update! And adios Frick and Frack! Denise Quote Link to comment Share on other sites More sharing options...
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