berisa Posted December 29, 2003 Share Posted December 29, 2003 A brain CT scan was done yesterday and found that my dad has the brain mets. My dad will have the Brain MRI tonight for more precise information on his mets. Oncologist said it shows that my dad did not response well with radiation because he has mets even received PCI treatment. So radiation may not be the good treatment and whether there is surgery for the mets, it all depends on the number of tumor as well as the location. Brain surgeon will come to follow-up my dad tomorrow after the MRI report releases. Do you know what treatment could be considered for my Dad case? Is there any chemo drugs for brain tumor? I will be very appreciate some contributions on this issue. Thank you. Quote Link to comment Share on other sites More sharing options...
annie1129 Posted December 29, 2003 Share Posted December 29, 2003 i'm so sorry to hear that. definitely, it is a very very hard time for u and ur family. if u want anyone to talk to, pls call me anytime. Quote Link to comment Share on other sites More sharing options...
betplace Posted December 29, 2003 Share Posted December 29, 2003 Oh My! I am sooo sorry to hear this news! I will continue to pray for a good outcome for your father! I wish I could give you some answers, but I don't have the knowledge you need. Betty Quote Link to comment Share on other sites More sharing options...
shirleyb Posted December 29, 2003 Share Posted December 29, 2003 I am so sorry about the news for your father. I hope that the doctors are able to help him. You are in my prayers. Much love, Shirley Quote Link to comment Share on other sites More sharing options...
MO_Sugar Posted December 29, 2003 Share Posted December 29, 2003 (((((Berisa))))), I am sorry to hear about your Dad but don't give up hope just yet. There are lots of things that can be tried yet. God Bless and you are in my prayers, MO Quote Link to comment Share on other sites More sharing options...
DeanCarl Posted December 29, 2003 Share Posted December 29, 2003 So sorry to hear of the complications for your Dad. Here's praying the mets are fairly easy to deal with and all turns out well. Dean Quote Link to comment Share on other sites More sharing options...
Rick Posted December 29, 2003 Share Posted December 29, 2003 I am sorry to hear of the recent turn of events. Quote Link to comment Share on other sites More sharing options...
karen335 Posted December 29, 2003 Share Posted December 29, 2003 Dear Berisa, I am so sorry to hear about your father. I don't have any information, but I am sending prayers for you and dad... Peace and God Bless Karen Quote Link to comment Share on other sites More sharing options...
mhutch1366 Posted December 29, 2003 Share Posted December 29, 2003 Berisa, Sorry to hear about the brain mets. Know that you are in our thoughts and prayers. XOXOX MaryAnn Quote Link to comment Share on other sites More sharing options...
-Cheryl- Posted December 29, 2003 Share Posted December 29, 2003 Berisa, So sorry about the news of your Dad. On a positive note, since your Dad has had PCI, the chemo will now be able to penetrate the blood brain barrier and be more effective. Prayers for him are being sent! Cheryl Quote Link to comment Share on other sites More sharing options...
Guest Karen C Posted December 29, 2003 Share Posted December 29, 2003 Berisa, I am heartbroken to hear of your Dad's brain mets. I thought he was doing so well! Unfortunately we know nothing of what he should do next, but he is in good hands with you as his daughter, you work so hard to stay informed about lung cancer, I know you'll find the best treatment for him! God Bless you and your family, Karen C. Quote Link to comment Share on other sites More sharing options...
norme Posted December 29, 2003 Share Posted December 29, 2003 Possibly your dad can have RFA (radio frequency ablivation) or Gamma Knife for the brain mets. A lot of people on here have had one or the other. My husband had whole head radiation and it has worked so far. Should they come back, the onc said RFA would be considered. So far so good..... Quote Link to comment Share on other sites More sharing options...
Tiny Posted December 29, 2003 Share Posted December 29, 2003 Berisa- I was so sorry to see your post of "bad news" and then to read of the brain mets for your dad. I am not knowledgeable about your options, but want you to know how much I admire your devotion to your dad and your advocay for him. Praying that the doctors will have a good plan in place soon. Quote Link to comment Share on other sites More sharing options...
Debaroo Posted December 30, 2003 Share Posted December 30, 2003 Berisa, I am sorry to hear about your dads next challenge. Have you asked about Gamma Knife? It is a high frequency radiation that pinpoints the tumor(s), leaving unaffected/healthy brain tissue untouched. My dad had it in January, and it was wonderful-one session (a long day) and the mets were killed and then reabsorbed by the body at the same rate as they orig. grew. If you would like a bit more information, you can message me, I have posted about it before-a detailed post under one of the orig. General forums that has been archived. The post was in reply by an orig. post made by Alyse. Take care, and keep us posted about your dad-you are in my thoughts and prayers. Deb Quote Link to comment Share on other sites More sharing options...
stephnewyork34 Posted December 30, 2003 Share Posted December 30, 2003 so sorry to hear about your Dad. Maybe he should try Gamma Knife. I wish i Had answers for you. Hugs and you are in my thoughts. Quote Link to comment Share on other sites More sharing options...
Carleen Posted December 30, 2003 Share Posted December 30, 2003 Berisa, I am sorry for this new challenge for your father. I am praying that the mets are treatable and that he pulls through this in true warrior fashion. Carleen Quote Link to comment Share on other sites More sharing options...
Andrea B. Posted December 30, 2003 Share Posted December 30, 2003 Berisa, I am so very sorry to hear about your father. But know that there are a lot of people here who have had success in treating brain mets. I will hold your dear father in my prayers. And I am wishing you much comfort. All my best, Andrea Quote Link to comment Share on other sites More sharing options...
berisa Posted December 31, 2003 Author Share Posted December 31, 2003 The MRI report indicates my dad has 3 lesions, these 3 lesions are sticking together, in total measurement, the size is about 4cm. Oncologist referred my dad's case to neuro-surgeon that the surgeon doctor said he will do the surgery to take these off. The date of surgeon is not yet confirmed but most likely will be next week because he said it only can be done while the fluid in the brain gone. I know surgery is a more aggressive approach and I am very happy with that treatment plan. Thank you so much for all your prayers. I see God's mercy on my dad and prayers are answered. Originally in government hospital, patient could not select specific doctor. For the brain surgery for my dad, which doctor do the job we have no right to choose. But, on Monday, we incidentally met that neuro-sugeron doctor who had do the surgery for my mom 3 years ago, his reputation is high in that hospital. My mom talked to him and he is willing to handle my dad case in person and he will do the surgery for my dad. Mom and Dad trust him and have confidence in him. My Dad feels very comfortable of this and he trusts him. one more good news is, from the latest chest x-ray, the shadow becomes smaller that it proves that this shadow is most likely the Radiation Pneumonitis (from my perception only) because my dad took the Prednisone treatment. That means the shadow response with the Prednisone. But my dad has another pain under the ribs at the right side, he regards it as muscle pain, but i have a bit worry this is a symptom of liver mets. We will not figure this out at this moment. We may arrange him to have PET/CT scan later after surgery. Thank you so much for your prayers and God listens. Thank God for let me meet you all here. This website is very useful. Thank you. Quote Link to comment Share on other sites More sharing options...
john Posted December 31, 2003 Share Posted December 31, 2003 Hope your dad does well with the surgery. I think surgery is always the best option if possible. There is a drug called Xcytrin that is in Phase III trials. Also a drug called Temozolomide is trials for brain mets. Quote Link to comment Share on other sites More sharing options...
Remembering Dave Posted January 1, 2004 Share Posted January 1, 2004 berisa, My prayers are with you and your Dad. Wonderful news about the surgeon. I hope the surgury goes well and that he has a swift recovery. You will be in my prayers. Please keep us up to date. David C Quote Link to comment Share on other sites More sharing options...
Debaroo Posted January 1, 2004 Share Posted January 1, 2004 Berisa, I am glad that your mom and dad have such good feelings about this doctor, it is so important to feel that you are in capable hands. Let us know how things go and tell you dad there are alot of prayers being said on his behalf. Keep us posted, take care, Deb Quote Link to comment Share on other sites More sharing options...
MO_Sugar Posted January 2, 2004 Share Posted January 2, 2004 Prayers and good thoughts coming your Dad's way. God Bless, MO Quote Link to comment Share on other sites More sharing options...
berisa Posted January 3, 2004 Author Share Posted January 3, 2004 Dad today has the eye test and will do further eye test at eye specialist center next Monday. I don't know why my dad should have these kind of tests. Do you know why? My dad said, this may be for checking whether the nerve is pressing his eyes......but what is the relationship between eye-check and craniotomy???? The date of surgeon is not yet confirmed until this moment. I can't wait anymore. I really hope the surgery will be done ASAP. I am afraid the tumors are growing and spreading to other organs...I am just afraid. Sorry for I have too many questions and I think this is the best place I could seek answer from all of you. Sorry for too many questions. Today, I contacted the hospital chapel and request them pay visits to my Dad. I pray for my Dad could have a soft heart to listen the gospel, could know Jesus, could believe in HIM, could hand himself to HIM, and be baptised. Please pray for my Dad. Thank you. Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted January 3, 2004 Share Posted January 3, 2004 I am praying right now for your dear father Berisa.... Peg Quote Link to comment Share on other sites More sharing options...
berisa Posted January 6, 2004 Author Share Posted January 6, 2004 Now the neuro-surgeon scheduled the craniotomy done on this Friday (1/9/04). He is in low spirit and bad mood. He doesn't want to suffer anymore. He is not sure whether he can still survive after surgery. His vision is bad. His balance is not really good. He feels uncomfortable and sick. Please keep my dad always in your prayers and I will really appreciate this. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.