AnneM Posted December 14, 2009 Share Posted December 14, 2009 Hi everyone, well, I had an MRI last week due to headaches and just found out that I have 2 small brain mets and they're recommending whole brain radiation. Things just haven't been going too well lately. I'm having a lot of pain in my chest, and also shooting down my leg (I have a feeling I also have a met in my hip). My pain's gotten so much worse lately, that I'm terrified to wait on the next chemo while I do WBR, and I'm a bit scared of the WBR. I really hate this, my kids (now 3, 9, and 10) need me here and healthy. Quote Link to comment Share on other sites More sharing options...
RandyW Posted December 14, 2009 Share Posted December 14, 2009 Hang in there Anne! Thoughts and prayers for great news and a speedy recovery from this setback.. Quote Link to comment Share on other sites More sharing options...
beatlemike Posted December 14, 2009 Share Posted December 14, 2009 My thoughts and prayers are with you at this difficult time. Quote Link to comment Share on other sites More sharing options...
Calintay Posted December 14, 2009 Share Posted December 14, 2009 I am so sorry. My thoughts and prayers are with you and yours during this difficult time Heidi Quote Link to comment Share on other sites More sharing options...
jstdzy Posted December 14, 2009 Share Posted December 14, 2009 Anne, Sorry to hear about you difficulties. Thoughts and prayers on the way! Dana Quote Link to comment Share on other sites More sharing options...
barbvh Posted December 14, 2009 Share Posted December 14, 2009 Anne, Sorry to hear your news, my prayers are with you. Quote Link to comment Share on other sites More sharing options...
michellep Posted December 14, 2009 Share Posted December 14, 2009 Anne.....you're tough remember? But also know that you have many here who care and are sending prayers your way! (((hugs)))) Quote Link to comment Share on other sites More sharing options...
ginnyde Posted December 14, 2009 Share Posted December 14, 2009 Hang in there Anne. WBR has been very successful for many, so the odds are in your favor. I will include you in my prayers. Quote Link to comment Share on other sites More sharing options...
shineladysue Posted December 15, 2009 Share Posted December 15, 2009 Anne, I am sending prayers for successful treatment. As Ginny says, many have had much success with WBR. Please keep in touch and let us know how you are doing. Hugs, Sue Quote Link to comment Share on other sites More sharing options...
Bud Baker Posted December 15, 2009 Share Posted December 15, 2009 Sorry to read this, Anne. I'm sending positive thoughts your way for very successful treatments. Quote Link to comment Share on other sites More sharing options...
jaminkw Posted December 15, 2009 Share Posted December 15, 2009 Anne, it must be very difficult to face these problems particularly at this time of year. I'm sending many healing thoughts your way with the hope of a speedy successful treatment. Judy in Key West Quote Link to comment Share on other sites More sharing options...
Kasey Posted December 15, 2009 Share Posted December 15, 2009 Well, Anne, that is just a fine howdy-do . Any mention on gamma knife for the two small mets? I don't know a lot, but thought for less than 4 and small, that could be an option. I'm just bummed about this and the pain down your leg. Life turns into one big crap shoot for us all and I'm sorry you're getting more of it lately than most. I'm thinking of you, Anne, and I'll hang onto the hope that this hurdle will be yet another one you jump right over. Kasey Quote Link to comment Share on other sites More sharing options...
AnneM Posted December 15, 2009 Author Share Posted December 15, 2009 Thanks for the prayers everyone. Kasey, yes, GammaKnife is an option, but my rad. onc. is suggesting wbr because there's less chance that it'll come back. I will talk to him further about it Wednesday. Quote Link to comment Share on other sites More sharing options...
recce101 Posted December 15, 2009 Share Posted December 15, 2009 Hi, Anne. You can add one more set of good wishes/thoughts to your arsenal. Sounds like you're getting solid advice from your radiation onc — please let us know what you decide to do. Much Aloha, Ned Quote Link to comment Share on other sites More sharing options...
fillise Posted December 15, 2009 Share Posted December 15, 2009 Anne, Well pooh. I'm thinking brain mets and leg pain were NOT on your Chirstmas list this year. I'll be praying that the WBR zaps those two little mets right outta there and that you get some resolution from your pain. Hang in there--we are here for you when you need us. Susan Quote Link to comment Share on other sites More sharing options...
Barb73 Posted December 16, 2009 Share Posted December 16, 2009 Anne, I read your post with much empathy. Bill had only one, single met to the midbrain and WBR was suggested. Of course, I am no doctor, but I would first opt for individual radiation to the two mets, but if WBR is the final choice, Bill is still here walking around and not being too incapacitated by the whole brain radiation experience. He does experience some loss when expressing himself, but it's not a dire thing. That WBR was completed over 2 1/2 years ago. He has had no recurrence, and is still actively participating in his life with Q of L. Of course, he cannot do all the things he used to do, with much gusto, but hey, he is 79. Whatever you decide, my thoughts and hopes go out ot you for a resolving of the issues which concern you. Sending you my very best, and also send my prayers, Barbara Quote Link to comment Share on other sites More sharing options...
Nick C Posted December 16, 2009 Share Posted December 16, 2009 Anne I was going to suggest what Kasey said. WBR you get one shot at...if you do Gamma or cyber knife, you MAY still be able to do WBR if neccesary later, but ask the rad onc what he thinks. Good luck, we're all pulling for you. Quote Link to comment Share on other sites More sharing options...
Patti B Posted December 17, 2009 Share Posted December 17, 2009 Anne- I know exactly how you feel - I had WBR in August. I wanted Gamma Knife but they said since the MRI from 8 months prior was totally clear, how many tiny mets may be there just too small to show up on an MRI. I panicked before going wondering what would I be like when it was over - and I have to tell you I have been lucky - no memory loss, no nothing!! I wish the same for you. If you ever want to talk about it, feel free to PM me. Hugs - Patti B. Quote Link to comment Share on other sites More sharing options...
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