-Cheryl- Posted August 25, 2004 Share Posted August 25, 2004 Hi Group, Does anyone know of anybody who has had mets to the kidneys (7 total to both, all very small). What treatmens, results, any information? The researchers just kind of blew my mets off, and were interested in the lung cancer. It is weird, I mean, It is not common for it to spread there. No tests were done, but chemo should hit it too I guess. No percautions on diet or advice about drinking lots of water, nothing. I have only met with a doctor a couple of times, otherwise it has been the nurse. Welp, I suppose I will have to get teste won't I. They need me just as much as I need them. Jack is worried I will blow the study by not following protocol to a "T". Ha! Please help me if you may know any information. Again, web tv has squat on it! You guys are a Godsend!!! P.s.. no symptoms at all on the kidneys. Cheryl Quote Link to comment Share on other sites More sharing options...
Donna G Posted August 25, 2004 Share Posted August 25, 2004 It is common to have mets to the adrenal glands, they sit on the kidneys. I guess if it can get to them , I don't know why it couldn't get to the kidneys. Wish I could help more. Donna G Quote Link to comment Share on other sites More sharing options...
john Posted August 25, 2004 Share Posted August 25, 2004 Try searching google for "renal metastasis" lung Quote Link to comment Share on other sites More sharing options...
luvmydog2 Posted August 25, 2004 Share Posted August 25, 2004 Cheryl, I am not sure about mets to the kidneys. My last 2 CT have shown cysts on my kidneys. Onc dosen't seem worried but I do think about it. They were not there prior to surgery etc. Could your's be cysts also or are they sure they are mets? Quote Link to comment Share on other sites More sharing options...
stand4hope Posted August 25, 2004 Share Posted August 25, 2004 Cheryl, I'm at work and have to get out of here, but as soon as I get home, I'll see what I can find if someone else hasn't found anything for you by then. Peggy Quote Link to comment Share on other sites More sharing options...
TAnn Posted August 25, 2004 Share Posted August 25, 2004 Cheryl, I did a google search for you and did not have much luck. Most of the articles I came across were about kidney cancer that metastises to the lung. But I know for sure the chemo attacks the whole body. That is why they put me on chemo. Since I have a malignant pleural effusion, I could have cancer cells anywhere in the body. Therefore, no radiation, no surgery. Sorry, wish I could have found some helpful info for you! TAnn Quote Link to comment Share on other sites More sharing options...
Elaine Posted August 25, 2004 Share Posted August 25, 2004 I too came up empty-handed. I would also question whether it is really mets like Bruce suggested. love and fortitude elaine Quote Link to comment Share on other sites More sharing options...
-Cheryl- Posted August 25, 2004 Author Share Posted August 25, 2004 Thanks Peggy, Donna, Bruce, and John. I will look under renal metastisis. Any help would be greatly appreciated. I suppose treating them with chemo should impact them if theiy are lung mets. Could they be cysts? I guess we won't know for sure unless biopsed. or they respond to chemo? Cheryl Quote Link to comment Share on other sites More sharing options...
-Cheryl- Posted August 25, 2004 Author Share Posted August 25, 2004 Weird thing is my last CT showed no mets to Adrenals or anywhere else, outside of both kidneys. He thought thy were probably mets becaused of the appearance, like my BAC. My onc said that it is unusual, but could happen. They are so small. I am not having any problems out of them...yet. Cheryl Quote Link to comment Share on other sites More sharing options...
Fay A. Posted August 25, 2004 Share Posted August 25, 2004 Cheryl, Have you ever had any previous studies done that included your kidneys from top to bottom? I'm looking for more than just the tops of the kidneys so that they could view your adrenals. And has anyone in your family had a history of Kidney disease of any kind? Quote Link to comment Share on other sites More sharing options...
-Cheryl- Posted August 26, 2004 Author Share Posted August 26, 2004 Fay, My parents died from cancer. I have five siblings. They all are diabetic except my brother and me. One is being treated currently for recurring tumors in her kidneys. She had 3 large tumors and her spleen removed. My masses are small and more in number. It is odd they aren't in my adrenals. I will ask my doctor about them. He seems interested in the lung cancer though, not my kidneys. Any thoughts? Cheryl Quote Link to comment Share on other sites More sharing options...
stand4hope Posted August 26, 2004 Share Posted August 26, 2004 Cheryl, I also came up with nothing. Just the two things below which are really of no help. The first one is just a CT picture, and the second was just a definition. Wish I could have found more. Peggy http://www.nlm.nih.gov/medlineplus/ency ... s/1174.htm Metastases to kidney Usually small, multiple and bilateral, wedge shaped, intracortical Primary sites are lung, melanoma (skin), breast, GI, pancreas, ovary, testis Quote Link to comment Share on other sites More sharing options...
Snowflake Posted August 26, 2004 Share Posted August 26, 2004 My parents died from cancer. I have five siblings. They all are diabetic except my brother and me. One is being treated currently for recurring tumors in her kidneys. She had 3 large tumors and her spleen removed. My masses are small and more in number. It is odd they aren't in my adrenals. I will ask my doctor about them. He seems interested in the lung cancer though, not my kidneys. Any thoughts? Cheryl, Is it just your oncologist that isn't concerned about the spots on your kidneys? What kind of relationship do you have with your GP - is your GP helpful and pro-active on finding the "why" of things that are not cancer? I'm asking because my oncologist deals with anything that MIGHT be cancer, but when cancer is ruled out, he's out of the picture. I then have to call and make an appointment with my GP to find out what is going on... It sounds like your family history contains some kidney problems, maybe you DO have "just cysts"... If the oncologist isn't interested, talk to your GP - then you can get a referral to a renal specialist and maybe some much needed answers... It does seem odd...here's hoping the little somethings are truly nothing to worry you or your oncologist... Becky Quote Link to comment Share on other sites More sharing options...
ginnyde Posted August 26, 2004 Share Posted August 26, 2004 Cheryl, What about jumping up and down on your onc. and saying: You may not be interested, but I AM. If he continues to blow you off, ask him why and if he doesn't answer to your satisfaction then get to another dr. You are entitled to an answer. Thinking about you. Love, Quote Link to comment Share on other sites More sharing options...
Fay A. Posted August 26, 2004 Share Posted August 26, 2004 Cheryl, While you were in the hospital did they do an actual biopsy on some or one of the kidney lesions to determine if they are in fact cancerous, either mets or new primaries? In light of your sister's experiences with renal tumors (malignant or benign?) I hope you will insist that you be referred ASAP to a Nephrologist. Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted August 26, 2004 Share Posted August 26, 2004 deleting all posts Quote Link to comment Share on other sites More sharing options...
Nushka Posted August 26, 2004 Share Posted August 26, 2004 Cheryl, Can't add anything to what has been said except that I wish you luck. Since they are so small, perhaps they are just cysts and will not grow...I am sure they will keep an eye on them but I would want a nephrologist to look at the test as well. Nina Quote Link to comment Share on other sites More sharing options...
Guest bean_si (Not Active) Posted August 26, 2004 Share Posted August 26, 2004 PM'd info Quote Link to comment Share on other sites More sharing options...
john Posted August 26, 2004 Share Posted August 26, 2004 one article said ... the presence of renal metastasis should not always imply a poor prognosis. I think it is pretty rare. But a few articles I read said that Kidney metastasis is often found at autopsy. So in most cases it doesnt cause complications and the chemo should take care of it. Watch out for blood in in urine. One article said an embolism can take care of it so I don't think it is a huge deal if you see any There was one article I read about a long term survivor http://www.ncbi.nlm.nih.gov/entrez/quer ... ds=9752604 http://www.turkjcancer.org/pdf/pdf_TJC_368.pdf There is an article in spanish. But I can't find the text Quote Link to comment Share on other sites More sharing options...
J.C. Posted August 26, 2004 Share Posted August 26, 2004 Cheryl, Found a lot of sites on Copernic all on renal metastases from lung cancer here is one http://www.turkjcancer.org/pdf/pdf_TJC_368.pdf Can you get Copernic ?? J.C. Quote Link to comment Share on other sites More sharing options...
-Cheryl- Posted August 26, 2004 Author Share Posted August 26, 2004 Thanks to you all. I will have a CT next Thurs. I will also hopefully meet with the doctor. The doctors now have moved to an entirely different building downtown. I will try to call Dr. Neumanitus. I appreciate the information you guys have provided. I know that chemo will take care of everything,but I have many questions. I will keep you posted. Cheryl Quote Link to comment Share on other sites More sharing options...
paddy Posted August 26, 2004 Share Posted August 26, 2004 My husband David has a cyst on the kidney but the oncologist is not worried about it. I would ask them point blank otherwise you may be worrying yourself unnecessarily. Paddy Quote Link to comment Share on other sites More sharing options...
Anniemac Posted August 27, 2004 Share Posted August 27, 2004 Cheryl, Tim had a kidney tumor, but it was also a primary tumor, not from his lungs. Can you see a urologist? If your doctor doesn't seem too interested, see if you can take your scans to a urologist, just for some peace of mind. Good Luck! Quote Link to comment Share on other sites More sharing options...
-Cheryl- Posted August 27, 2004 Author Share Posted August 27, 2004 Hey Guys, I spoke to the onc nurse tonight. She said, "Oh it is mets." I asked her how can she be sure. The report read "undertermined" mass. So I will still have to wait till Thursday I guess. The nurse said "Short of surgery to biopsy, if they respond to chemo by changing in size, we will know then." I really don't want surgery, so I will wait and see. You guys are so great. Thanks for your input. Oh, I forgot to mention my baby sister had her spleen taken out, along with three large benign tumors last year. Mine are small and numerous....so I pray for them to be benign. It is probably unlikely though. The nurse said my kidney function is good. I am feeling all these mysterious pains since that aranesp shot to boost my red blood cells. I am starting to get paranoid. Thanks for listening. Any prayers are appreciated, and I pray for you all daily. Cheryl Quote Link to comment Share on other sites More sharing options...
Octobergrace Posted August 27, 2004 Share Posted August 27, 2004 My prayers are with you. I admire your determination and will everytime I read your posts. Many blessings, Octobergrace Quote Link to comment Share on other sites More sharing options...
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