Addie Posted February 18, 2005 Share Posted February 18, 2005 Chemo begins again Monday thru Thursday. Five doses I think, concentrated into four days so that I can have the Neulasta shot on Friday. Apparently topotecan is hard on bone marrow and the blood counts. I have the reports from the MRCP and biopsy. There are four tumors in my liver (edited: I'd said kidney before) and "multiple" masses in the pancreas and "tail" of the pancreas. My onc used the term "generalized" and in context I took it to mean he suspects other, smaller tumors in my gut or other organs that don't show up yet...but are there. But...he maintains there's a chance to reduce the number or size of anything that is there with chemo...and after two or three cycles he'll scan or do an MRI to see if it's working. If not....well, then we go to round three, I guess or clinical trials. I dunno....a lot to think about right now. If the topotecan DOES work...then I'll stay on it...for how long, I don't know, but at some point he said maybe it'd be more a maintenance dose. Anyone ever done this with topotecan? I'm trying hard to stay positive at this point. Can't hurt and might do me some good to remain that way. But underneath the surface...it's like a duck on water......paddling for dear life. I am scared I won't have a lot of time. I know.....define "a lot". How about - am I gonna make it to my 59th birthday (Sept) or be here to decorate a Christmas tree this year? To see my son get engaged and then married? I've always felt the worst part about dying is all you miss out on after you're gone. Any positive thoughts for my future....are gratefully accepted. Quote Link to comment Share on other sites More sharing options...
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