Patkid Posted September 19, 2005 Share Posted September 19, 2005 Well, Our news is somewhere between good and troubling so I will post here in general. Doctor took a lot of time with us and explained some things: *Brian's cancer is behaving much more like small cell lung cancer than non small cell. *That is why he chose to go w/ CPT-11 and Carboplatin when Brian experienced rapid progression of the disease. *He usually uses CPT-11 with Cisplatin for small cell. *Brian had Cisplatin w/ VP-16 for his first protocol. *Doctor has never had anyone on carbo/cpt-11 combination. *So for this doctor we are blazing the trail. * Doc is very concerned about the neuropathy and how quickly it is progressing. * Doc is very concerned about the 'mental withdrawal from his surroundings' experienced last week. * Doc is very concerned about lab work. HOWEVER THERE IS SIGNIFICANT REDUCTION IN TUMOR VOLUME & DENSITY * So the plan: No more Carboplatin.............too risky w/ Neuropathy and other side effects. Brian will have CPT-11 alone (but doc is going to do some research to see if there is another agent he may want to add in place of the Carboplatin) for the next three Thursdays. Then no chemo till after Greg's wedding. (Doc said he will support Brian w/ whatever he can, medically, to help him feel strong enough to go ~ blood products, or whatever............) Then scan when we get back. Then plan moving forward when we get the scan results. We are very very very relieved. We feel very blessed. When Brian began to celebrate the good news a bit; Doc warned us to remember that Brian got this type of reduction after the first 2 rounds of Cisplatin/Vp16 and that his cancer is very aggressive. He did rain on our parade a bit. But right now we are simply praising our Father in Heaven for this good news which we so sorely needed today and we are simply trusting that He will continue to hold us as we move into the future. Today is all we are sure of and today is GOOD. To all of our faithful friends and comrades on LCSC: THANK YOU FOR YOUR PRAYERS, for all positive thoughts and for your loving support. You see us through. This is a good day and we are not going to look beyond today, except that I am going to book our air travel for the wedding. We are trusting God to take us there...............though He may want us to use an earthly flight.......... Lot of love and continuing prayer that our family here on this site can feel some of the peace that is in our hearts today. P Quote Link to comment Share on other sites More sharing options...
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.